DPC Fly-In Participants Lobby Members of Congress Despite Snow Storm, Government Closure

DPC’s annual Kidney Month fly-in was held last Wednesday and Thursday (March 4 & 5).  Patient advocates from across the country flew to Washington, DC to speak with their Members of Congress on issues critical to their care.  And despite numerous obstacles, they made sure their voices were heard. 

On March 4, patient advocates participated in an in-depth advocacy training, as many were going to Capitol Hill for the first time. This training helped to ensure that participants had the information and confidence to discuss the importance of preserving dialysis funding as well as why dialysis patients should be allowed to enroll in Medicare Advantage (both contained in newly introduced legislation). They were also prepared for almost every possibility, including snow. And many received dialysis that evening.

 

Advocates from across the country gathering before they go to Capitol Hill

 

On March 5, as our advocates ate breakfast, the snow began to fall. The federal government also just announced that it would close for the day, expecting the snow to continue throughout the day. Despite the weather conditions, patients (who were joined by several healthcare professionals) trudged through the ice-cold wind and snow to Capitol Hill, determined to share their stories and remind their Members of Congress that dialysis patients are more than just a line-item in the federal budget.

 

DPC Patient Ambassador Darrel Ratliff with Sen. Mitch McConnell’s staff

 

Despite the weather and federal government closure, most congressional offices were still open that day, perhaps because many back home do not like to hear that their elected officials took the day off due to the threat of snow. That was not the case for other advocacy organizations, as many decided to cancel their Capitol Hill visits. As a result, our advocates had the chance to hold lengthy meetings with congressional staff as well as several Members of Congress who were scheduled to fly home that evening.

 

DPC Education Center Board Member Chuck Leggett (right) with Sen. Cory Gardner (center) and DaVita Facility Administrator Cole Casey (left)

 

Unfortunately, there were a few congressional offices that were closed for the day. When that happened our advocates left a packet of information discussing our priorities along with a personalized note for their Members of Congress. These offices also received follow-up e-mails that included video messages from our fly-in participants, along with a request for a follow-up meeting with DPC staff that they could call in to. The day before the storm, we had a videographer record the personal stories of our advocates as well as why they came to Washington, DC. These videos are now posted to YouTube, and you can also see them at the bottom of this page.

 

DPC Patient Ambassador David Grant with his Senator Maria Cantwell

 

While DPC had no control over the snow, we had our travel agent on standby, as a handful of our attendees’ flights were cancelled or had to be rerouted in order to make connections. We also had a couple of DaVita and Fresenius facilities on standby, as a few patients received dialysis on Friday after their return flight was cancelled on Thursday. While we worked hard to anticipate every potential challenge, much of the credit goes to the many advocates who remained positive throughout, and remained committed to speaking out for all of those who could not be with us in Washington, DC.

 

DPC Board Member Mike Guffey (right) with Rep. Mike Pompeo’s chief of staff (center) and DaVita Regional Operations Director Bethany Mills (left) 

 

One thing is certain, whether a seasoned advocate or a first-time participant, this was an adventure that no one will soon forget…and neither will the congressional staff whom they met with on Capitol Hill, as they heard firsthand from patients and healthcare professionals alike why they needed to support critical kidney legislation (while many others chose to stay home).   

 

Below are videos patient advocates and healthcare professionals sent to their Members of Congress.

 

Patient Advocate Videos

 

John Ackland, DPC Patient Ambassador

Minocqua, WI

 

Donnie Anderson, DPC Patient Ambassador

Kalamazoo, MI

 

Diane Brisbane, DPC & DPC Education Center Board Member

Brooklyn, NY

 

Julie Crandall, DPC Patient Ambassador

Hurricane, UT

 

Ken Crandall, DPC Patient Ambassador

Snowville, UT

 

Christina Esposito, DPC & DPC Education Center Board Member

Brooklyn, NY

 

David Grant, DPC Patient Ambassador

Renton, WA

 

Alvin Gridiron, DPC Patient Ambassador

Indianapolis, IN

 

Mike Guffey, DPC & DPC Education Center Board Member

Overland Park, KS

 

Daniel Iniguez, DPC & DPC Education Center Board Member

Selma, CA

 

Liz Kashmiri, DPC Patient Ambassador

Laveen, AZ

 

Nafide Korkmaz, DPC Patient Ambassador

Patterson, NJ

 

Robert Lee, DPC Patient Ambassador

Portland, OR

 

Chuck Leggett, DPC Education Center Board Member

Colorado Springs, CO

 

Nance Lehman, DPC & DPC Education Center Board Member

Billings, MT

 

Devon Osborne, DPC & DPC Education Center Board Member

Hurst, TX

 

Darrel Ratliff, DPC Patient Ambassador

Madisonville, KY

 

S. James Schmittle, DPC Patient Ambassador

Erie, PA

 

Nancy Scott, DPC Education Center Board President & DPC Board Member

Newark, DE

 

Gwendolyn Snell, DPC Patient Ambassador

East Cleveland, OH

 

Ellen Sonenthal, DPC Patient Ambassador

Henderson, NV

 

Janice Starling-Williams, DPC Patient Ambassador

St. Petersburg, FL

 

Antoine and Treavce Whitmore, DPC Patient Ambassadors

Portsmouth, VA

 

 

Healthcare Professional Videos

 

Gail Begaye

Chinle, AZ

 

Sara Beidelschies

Sandusky, OH

 

Karen Blink

Benton Harbor, MI

 

Amy Bogan and Katie Ingram

Annapolis, MD

 

Cole Casey

Denver, CO

 

Derrell Chandler

Walterboro, SC

 

Janny Freeman

McKinney, TX

 

Dave Gelter

Cincinnati, OH

 

Kris Johnson

Zephyrhills, FL

 

Bethany Mills

Wichita, KS

 

Michelle Mortensen Sullivan

Missoula, MT

 

Luke Santillo

Kannapolis, NC

 

Seth Southwick

American Fork, UT

 

Yasuyo Tsunemine

Portland, OR

 

Ryan Welter

North Las Vegas, NV

 

Kathy Wiggins

Detroit, MI

 

Miles Williams

Birmingham, AL

 

Penny Winkelman

Waterloo, IA

Dialysis Patient Citizens
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Email: dpc@dialysispatients.org