My career in dialysis began when I “crashed” into renal failure in December 1974, at the age of 22 years, and I have elected to continue to dialyze 3 times a week in-clinic ever since. It was not until my involvement with Dialysis Patient Citizens that I began to understand and be personally committed to advocacy and the sharing of information about Medicare and kidney health-directed legislation. Watching our organization grow and continue to evolve has educated me and been a most positive experience. The DPC Patient Ambassador Program has helped me connect with numerous kidney citizens across the country, as well as my home state of Iowa. Regardless of what options for renal therapy that an individual may choose to utilize, it is important to remember the payment chain and how much our lives are dependent on adequate federal dollars to maintain optimal and accessible care. Dialysis Patient Citizens is truly committed to further building a healthy, educated, and empowered kidney citizen organization that represents all of the dialysis and CKD community.
I was born with only one functioning kidney, as well as a host of other issues. When I was born, doctors told my parents there was no way I would live more than a day. When I made it two days, they were told that I would not live more than a week – wrong again! Then they were told that yes, I may live but I would need to be placed in a state facility. Fortunately my parents did not agree to this either. For many years, I had been told that I would need to start dialysis. Thankfully, through careful attention from much more qualified doctors and the grace of God, I made it until I was 25-years-old before I had to start dialysis. That was 10 years ago. During my time on dialysis, I went back to college and earned a Bachelor’s of Science in Political Science from Athens State University in Athens, Alabama. I am not eligible for a transplant so I am very interested in new technology including the possibility of a wearable kidney, or even stem cell research.
I am honored to have been elected to the DPC Board of Directors. I also have the honor of serving as the patient representative at my local clinic. Being involved is the only way to see the changes we need as patients to live fulfilled lives. Together I believe we can achieve great things for the needs of ESRD patients and their families.
I have been on and off of dialysis since I was 12 years old and diagnosed with kidney failure as a result of a bicycle accident. I was lucky enough to receive a transplant from my mother which lasted for seven years until my body rejected it in 2000. I was temporarily put on hemodialysis but now undergo peritoneal dialysis three times a week for 10 hours while I sleep.
I am thankful for dialysis because it has provided me with the gift of life. I am honored to have been given the opportunity to become part of a larger community of empowered patients, like DPC’s Board of Directors, who are continually working to improve the lives of patients just like ourselves.
During the period of time when I was on hemodialysis, I discovered my passion for really getting to know my fellow dialysis patients and helping them remain positive and optimistic. I began visiting my dialysis facility on my days off from treatment to visit with patients and help raise their spirits, and was even asked by facility staff members to speak at various banquets for other people who were also suffering from kidney failure. I have traveled from my hometown of Selma, CA to Washington, D.C. several times to lobby for important legislation for my kidney community.
I am currently on the waiting list for another transplant, but I feel that being on dialysis has made me stronger and has given me a completely different outlook on life, even inspiring me to go to college to become a medical interpreter for Spanish speaking people who may have language barriers in accessing their health care.
I feel honored to be included among the DPC Board of Directors. Three years ago, this is not something I would have ever anticipated. I went on vacation in the Spring of 2008 thinking I had the flu and ended up hospitalized with kidney failure. Since then I have been an in-center hemodialysis patient, while working towards a kidney transplant (which has been an interesting journey in itself), and continuing to work full-time as a Business Continuity manager in the Kansas City, Missouri, area. As a result of my professional background, I am always interested in emergency preparedness as it relates to dialysis patients and others with special medical needs.
Two things that have been key to my success on this journey are becoming educated about my situation and the strong support team I have developed, both among the dialysis clinic staff, other medical providers, family and co-workers. I have found that any issues generally lie within the systems, not the people, and wish that everyone could get the quality of treatment I have received.
In particular, I have been motivated by one of my late co-workers, who in spite of suffering through several serious medical situations in her life, never let those challenges get the better of her. She encouraged me to take control of the situation as best I could, and to not let the challenges get me down. I hope to bring that attitude to my time on the DPC Board of Directors.
I grew up in the South Jamaica section of Queens, NY and was raised in a household and community that taught family first and service to others. This is the mindset with which I have pursued life. After getting my start as a nurses’ aide, I eventually advanced to EKG technician, and later to supervisor of the EKG department. I finally retired after 37 years of service. During the course of my career, I served on various committees to improve employee relations, educate employees and unite the hospital and community, and I was recognized for the New York City Health and Hospital Corporation’s achievement award for bringing diversity to the work force, among other awards.
I have committed much of my life to being a parent to my two wonderful children and to being actively involved in the local community, and I have taken pride in those roles. So when I suffered a stroke in 2004, my life in those roles was threatened. It was only months later that I lost vision in both eyes, and in 2005, I was diagnosed with acute renal failure. This was hard news for my children because they lost their father to renal failure in 1981.
Although traumatic, I never had the chance to lose hope. My children stepped in with the unwavering determination, resiliency and faith they were raised to have. Surrounded by this love and support, I made it through those tough times and came out ready to make an impact on anyone I could help.
I continue to serve as a pillar in my church, serving as a senior usher and intercessor. I recently developed Single Mothers in Christ, a spiritually-based empowerment and mentoring program for single mothers of the church. Now, I welcome the opportunity to serve as a DPC Board Member, in hopes of providing preventive education to the world, serving as a voice of hope for survivors of renal failure and as a voice of consciousness to elected officials and health care providers.
In the year 2001 I was advised by the Veteran's Hospital in Columbus,OH that I had CKD (chronic kidney disease). The CKD was later diagnosed as Polycystic Kidney Disease (PKD). By doing research, I found out that PKD was the most common form of kidney disease that can be inherited.
In 2013, I was diagnosed with papillary cancer which lead to the removal of my left kidney. It was then I began my journey on dialysis. As I was looking for more information about treatment, I was introduced to Dialysis Patient Citizens and attended my first advocacy day to meet with legislators.
I have always wanted to be a voice for the people who don't think they have anyone who cares. It is with great honor that I was chosen to be that voice. With the education I will receive, this knowledge will make my voice even stronger.
The journey of End Stage Renal Disease (ESRD) will only make me stronger; I will never give up, or give in to it and will always give my best to those I represent.
I have ESRD, ESRD does not have me.
Fr. Pius Murray
My name is Pius Charles Murray, born in Worcester, MA. On the one hand, with three of my maternal grandmother’s brothers having entered the seminary (and two having been ordained priests), religion and a life of service to others played a central formative role in developing my values. On the other hand, my maternal grandfather was Dean (or the then-current term) of the Graduate School at Worcester State College in the 1960s. He firmly believed that education was the way to resolve social problems and overcome intolerance. Those two strands, religion and education, have been the backbone of my life. I am a priest in the American Catholic Church in the United States, acting as God’s vessel dispensing His grace through prayer and the sacraments. Along the way, I have been blessed to obtain a substantial education which is used currently in my service on a number of local municipal boards in Somersworth, serving its residents. When, in August 2013, I was diagnosed with End State Renal Disease and began dialysis, I did not want simply to mope around. But it did take several years to see this as yet another God-given opportunity to serve God’s people. In the waiting room at the dialysis center what I go to is a poster from the Dialysis Patient Citizens organization. For a while, I simply looked at it without taking any action. As I became accustomed to dialysis, I wanted to demonstrate to myself and others that I could still contribute so I applied to become a Patient Ambassador. This experience was a refreshing reminder of my grandfather’s emphasis on education as a way to solve problems. Reflecting on my contributions to the various stakeholders in Somersworth by my service on various municipal boards and commissions, I decided that I would like offer my background to DPC and its 29,000 stakeholders. As a DPC board member and DPC Education board member, I will strive to utilize my talents advocating for better medical care for patients with kidney failure and developing new ways to educate the general public in issues relating to the care of kidney failure patients.
I am from Newark, Delaware and am a registered nurse, an ordained minister, and I was an in-center hemodialysis patient since my kidney disease diagnosis in 2004 until I received a kidney transplant in the spring of 2012. I have been involved with DPC as a Patient Ambassador, Secretary of the Board, Vice President of the Board, and I currently serve as the President of the Board of Directors for DPC Education Center.
Beyond my DPC involvement, I serve as a patient representative of Advisory Board at ESRD Network 4 and a Chairperson at Henrietta Johnson Medical Center for Clinical Evaluation Committee. I established a support group to encourage better communication between clinic staff and patients, and have traveled to Washington, D.C., to meet with lawmakers. Before joining the Board in 2007 I was honored to receive the DPC Hero Award.
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