The following websites offer additional information to help you understand kidney disease and dialysis, transplantation, dialysis industry news and other opportunities available for dialysis patients.
General Pre-Dialysis and Dialysis Education
- http://www.lifeoptions.org/ (pre-dialysis and dialysis education)
- http://www.kidneyschool.org/ (pre-dialysis and dialysis education)
- http://www.davita.com/ (pre-dialysis and dialysis info)
- http://www.kidney.org/ National Kidney Foundation; kidney disease, research
- http://www.kidneytrust.org/ The Kidney TRUST - Chronic Kidney Disease education and testing
- http://www.kidneywatch.org (chronic kidney disease risk factors and education)
Dialysis Treatment Options
- http://www.homedialysis.org/ Home Dialysis Central offers resources and support for patients interested in peritoneal dialysis and home hemodialysis. Talk to other patients, read stories, find a home clinic, and more.
- CMS Dialysis Facility Compare
Transplantation
- http://www.unos.org/ (transplantation)
- http://www.transplantliving.org/
Paying for Dialysis
- http://www.medicare.gov/, then enter search term “dialysis” (Medicare benefits for dialysis patients)
-
http://www.kidneyfund.org/ American Kidney Fund
Dialysis Industry News and Medical Breakthroughs
- http://www.nephnews.com/ (dialysis industry news)
- http://www.usrds.org/ (dialysis statistics, data)
Vascular Access
-
Fistula First
When you can have one, an AV fistula is the best type of vascular access. AV Fistula First is a program where Medicare and many key groups and people who care for people with kidney disease have joined together to support more fistulas in the U.S.
Other Kidney Organizations
- http://www.kidneycarepartners.org/ (coalition of kidney groups, providers and organizations and companies)
- http://www.esrdnetworks.org/ (resource for patient grievances)
- http://www.renalsupportnetwork.org/ (Renal Support Network)
- http://www.pkdcure.org/
- http://www.renalresources.org
Emergency Preparedness
- http://www.ready.ga.gov/Plan Create your own emergency plan for your family. The website was developed by the state of Georgia, and has helpful emergency preparedness information for people from any state. You can create a customized plan to account for your needs as a CKD patient.
- http://www.diversitypreparedness.org/Language/34 Helpful emergency preparedness information in many languages.
- http://www.kcercoalition.com/ Kidney Community Emergency Response Coalition
- http://www.ready.gov/america/local/index.html Local Emergency Contact Information
Anemia
-
www.anemia.org National Anemai Action Council
Dialysis Patient Travel
- 1-866-4DIALYSIS (1-866-434-2597, Option 2) – provides free assistance in locating and scheduling dialysis treatment for all patients traveling in the United States and abroad.
- www.dialysisfinder.com helps you locate a dialysis centers around the country.




