Elevate the Voice of Patients with Kidney Disease and Their Caregivers Our 2020 Annual Membership Survey is live, and it will remain open until Friday, August 21. We are counting on your participation, as patient feedback helps to shape our public policy agenda and patient education priorities for the next year. This year we ask that both patients and caregivers take our survey. Rest assured your responses will remain completely anonymous. We only share the overall survey results with state and federal level policy makers, so they will better understand your needs, experiences, and preferences. Your feedback is crucial. Therefore, we will [...]
By Gloria Rohrer, DPC Patient Ambassador As a dialysis patient, it has become clear to me that one of the biggest flaws in the American health care system is the disjointed way care is often provided to patients. If patients have chronic conditions alongside other health complications, it can be exceedingly difficult to navigate the different doctors and hospitals we need in order to receive proper care. When seeing so many different doctors at various clinics and hospitals, patients like me can suffer adverse effects if all our treatments are not designed to address our full medical history, rather than [...]
We are living in a time of uncertainty with the COVID-19 pandemic, which can lead to stress, fear, depression, and anxiety. We may feel overwhelmed at times and bored at other times. We may be at a loss for how to cope with social distancing, not seeing friends and family, and the possibility of getting sick. If you are a dialysis patient, receiving treatment either in-center or at home, your facility social worker is a great resource for you. Or, if you are a transplant patient, you can talk to your transplant social worker for support. You have people who can [...]
DPC is now on Instagram and LinkedIn! Be sure to follow us to learn about our policy issues, action alerts how you can get involved and more. In addition to these platforms, you can also find us on Facebook, Twitter and YouTube. Use the links below to get started: Instagram LinkedIn Facebook Twitter YouTube
During this webinar you will learn the latest on: 1) What kidney patients need to do (dialysis & transplant), 2) What dialysis facilities are doing and 3) What we can learn from New York’s COVID-19 experience.
Here is a list of resources for dialysis patients to help them get additional support during the COVID-19 viral outbreak and beyond. Resource topics include: disability, financial assistance, nutrition, healthcare, housing and utilities, jobs, transportation, women and children, daily living, and staying safe. In addition, visit your state department of health website for COVID-19 information that is specific to your area.
DPC provided feedback to the U.S. Department of Health and Human Services (HHS) regarding the COVID-19-related issues that the kidney community is facing. DPC made recommendations to HHS in the following areas: Transportation COVID-19 Treatments and Vaccinations Home Dialysis People with End-Stage Renal Disease have a higher risk for developing a severe illness from COVID-19. As a result, it is crucial we do all that we can to help this vulnerable population in order to decrease the negative impact and spread of the virus. Read DPC's letter to HHS below for more details: Kumiko Lippold, PhD, MPH Department of Health [...]
In 2021 End-Stage Renal Disease (ESRD) patients will be permitted to enroll in Medicare Advantage (MA) plans, potentially bringing major changes to ESRD care and how patients experience it. When open enrollment begins this fall, we want to make sure patients have access to the same robust benefits offered with MA plans right now. DPC reached out to the Centers for Medicare & Medicaid Services (CMS) with recommendations on how to ensure ESRD patients maintain the access, choice and quality care they expect when these benefits are available to everyone. Currently, the only ESRD patients with MA plans are those [...]
Learn about COVID-19 and what you and your family can do to protect yourselves. You will also learn about the CDC’s guidance for dialysis facilities and how your facility staff is working to prevent the spread of infection.
Coronavirus disease 2019 (abbreviated COVID-19) is a new respiratory virus spreading to the United States. Although the health risk is low in this country at this time, we know that people who have chronic illnesses, weakened immune systems and/or are over the age of 60 could pose an increased risk if they develop the disease. That said, it is not a time to panic, but rather a time to use procedures that help prevent the flu, coronavirus and other infections.