DPC advocates flew to Washington, DC for our 2014 World Kidney Day Fly-in. Twenty-six patients and family members were joined by 19 provider representatives from 24 states. Advocates conducted 94 meetings with Members of Congress and their staff. This year, we asked Congress to protect funding for the Medicare ESRD program and to
DPC is currently working on two initiatives that require your input!
First, the National Quality Forum is conducting a study of "Person-Centered Care" and is looking for patient input. DPC has volunteered to collect patient viewpoints on this subject and we are inviting our members and other dialysis patients to share your experience with and insights into the care you've received.
Chronic Kidney Disease (CKD) patients who progress to end-stage renal disease (ESRD) before the age of 65 now have a new health insurance option—exchange health plans under the Affordable Care Act (ACA). Non-elderly patients who do not have, or will not be continuing, employer-sponsored insurance may be better off in an exchange plan depending on their financial circumstances.
The Centers for Medicare and Medicaid Services (CMS) acknowledged patient concerns by delaying for two years its planned cut to the Medicare End Stage Renal Disease (ESRD) program. The Medicare agency’s decision didn’t give dialysis patients everything we asked for, but it does mean that nearly $2 billion slated to be cut from kidney care in 2014 and 2015 will remain available to treat patients. However, it also means that patient advocates must be vigilant for any signs that access to care is shrinking as providers anticipate cuts now scheduled to take effect in 2016.