Dialysis Patient Citizens News
Dialysis Patient Citizens Applauds Texas Legislature for Passing Historic Bill Expanding Affordable Medigap Access for Dialysis and ALS Patients
Austin, TX (June 23, 2025) – House Bill 2516 has become public law, a significant victory for Texans living with End-Stage Renal Disease (ESRD), or kidney failure, and Amyotrophic Lateral Sclerosis (ALS). The legislation, championed by Representative Ryan Guillen (R-TX-31), received overwhelming bipartisan support in the Texas State Legislature, passing the House with a 133-4 vote and the Senate unanimously. The law guarantees that ESRD and ALS patients under the age of 65 can access affordable Medigap insurance. Specifically, Medigap Plans A, B, and D will be [...]
Medigap Protections become Law in Nevada and Texas
Two historic bills that expand affordable access to Medicare Supplement Insurance coverage, otherwise known as Medigap, have passed with overwhelming support in the states of Nevada and Texas this legislative session. Both bills provide affordable access to Medigap plans for dialysis patients who are under age 65. Sponsored and championed by Nevada State Senator, Roberta Lange (D-NV-7) and signed at the beginning of June by Governor Joe Lombardo (R-NV) Senate Bill 292 guarantees access to affordable Medigap coverage to Nevadans who are under age 65 and on dialysis. [...]
Rhode Island Passes Birthday Rule and Evaluates Community Rating for Medigap Plans
On Friday, June 20, the Rhode Island House passed SB610, Sub B, joining the Senate in approving a birthday rule and evaluation of adopting community rating for all Medicare Supplement plans. SB 610 is awaiting the Governor’s signature. SB 610 does a number of things, including establishing a guaranteed-issue 6-month open enrollment period for individuals under-age 65 enrolled in a Medicare supplement (Medigap) plan who wish to switch to a different plan upon turning age 65. While all individuals turning age 65 who enroll in Medicare Part B [...]
Delaware Unanimously Passes Medigap Birthday Rule
With a unanimous vote in the Delaware House of Representatives on June 12, the Delaware General Assembly has unanimously passed SB 71 in both chambers. This legislation, called a birthday rule, creates a special open enrollment window for persons already enrolled in a Medicare Supplement policy (also called Medigap) to switch to another plan that provides the same or lesser benefits, allowing Enrollees to find a plan that better fits their financial circumstances. Further, this bill allows those on Medicare Advantage plans to switch back to Medicare Supplement [...]
Dialysis Patient Citizens Applauds Nevada Governor Signing Legislation Expanding Access to Affordable Medigap Coverage for Dialysis Patients
Carson City, NV (June 9, 2025) – Governor Joe Lombardo (R-NV) and the Nevada State Legislature have taken a historic step to ensure affordable access to Medicare Supplement Insurance plans, also known as Medigap, to Medicare enrollees under age 65, including Nevada residents with End-Stage Renal Disease (ESRD). Senate Bill 292, sponsored and championed by Senator Roberta Lange (D-NV-7), passed the Senate unanimously and the Assembly with overwhelming bipartisan support (39-3), and it was signed into law by Governor Lombardo. SB 292 guarantees that dialysis patients under [...]
Support Medigap Plans
I have end-stage renal disease (ESRD), or kidney failure. My journey began after a serious accident at age 12 caused my kidneys to fail. My mother selflessly donated one of her kidneys, which lasted about eight years. At 20, my body began rejecting the transplant, and I had to start dialysis—a taxing but life-saving treatment done three times a week to filter the blood. The transition was overwhelming. I often rode a bus to San Francisco at 6 a.m. and returned home at midnight. Like many others, [...]
Support a state law that helps those living in an insurance gap
I’ve been living with kidney failure since 2019. Like so many Californians, I’ve faced more than just one diagnosis—diabetes, high blood pressure, gastroparesis, gout—and even the amputation of my foot due to sepsis. Dialysis, an intensive treatment done three times per week to keep me alive, has permanently affected my life. But I’ve fought every step of the way to stay strong and keep pursuing my goals. I returned to school at age 37, majoring in nutrition and dietetics to learn how food could help heal my [...]
DPC and the DPC Education Center Mourn the Passing of Diane Brisbane
It is with a heavy heart that Dialysis Patient Citizens (DPC) and the DPC Education Center learned of the passing of former Board Member, Diane Brisbane. Diane grew up in the South Jamaica section of Queens, NY and was raised in a household and community that taught family first and service to others. This is the mindset with which she pursued life. After getting her start as a nurses’ aide, she eventually advanced to EKG technician, and later to supervisor of the EKG department, and finally retired after [...]
Medical funding
I was diagnosed with kidney failure at 34. I lacked formal education about the disease, and within a year I began losing my sight to diabetic retinopathy. I’m now legally blind and depend on others for daily tasks. It’s been a difficult journey, but I’ve grown as a person throughout it. Patients like me shouldn’t have to worry about finances. I’m lucky enough to afford dialysis, a frequent treatment that filters my blood since my kidneys can’t, since it’s covered by Medicare and charitable donations. I remember [...]
Texas Medigap Update – May 2025
Texas House Bill 2516 was unanimously approved by the House Insurance Committee and passed off the House Floor with overwhelming bipartisan support (130-19). This legislation, which will provide affordable access to Medicare Supplement Insurance (Medigap) to individuals who are under age 65 with ESRD, is now in the Texas Senate. HB 2516 recently passed unanimously out of the Senate Health and Human Services Committee and is expected to be heard on the Senate Floor shortly. Throughout the legislative process, we’ve had nearly 20 Texas legislators join author [...]
DPC Submits Letter to HRSA on Out-of-Sequence Organ Donation
On May 21, 2025, DPC submitted a letter to Thomas J. Engels, Administrator at the Health Resources and Services Administration (HRSA), expressing concern about the growth in out-of-sequence organ transplants reported in a recent New York Times article. The article outlines a recent shift in the transplant system, where someone’s ranking on the transplant list may be ignored and instead the organ is given to a patient further down the list, usually due to easier coordination for the transplant. As a patient-led organization whose board is comprised [...]
DPC’s Letter to Thomas J. Engels, Administrator at Health Resources and Services Administration, on Out-of-Sequence Organ Allocations
May 21, 2025 Thomas J. Engels, Administrator Health Resources and Services Administration 5600 Fishers Lane Rockville, MD 20857 Re: Out-of-Sequence Organ Allocations Dear Administrator Engels: Dialysis Patient Citizens (DPC) writes to express our concerns about the growth in out-of-sequence organ transplants reported in a recent New York Times article. DPC's membership, currently about 35,000, is restricted to kidney disease patients and their family members. DPC is a patient-led organization. Our by-laws require that the President, Vice President and at least 51% of the Board be current dialysis [...]
Nevada Medigap Update – May 2025
After unanimous passage in the Nevada State Senate, the Nevada Assembly Committee on Commerce and Labor unanimously approved Senate Bill 292 on May 16th. Sponsored by State Senator Roberta Lange (NV-7), this important legislation will provide access to affordable Medicare Supplement Insurance, otherwise known as Medigap to the under age 65 Medicare eligible population. Currently individuals under age 65 in the state of Nevada who are eligible for Medicare as a result of End Stage Renal Disease or by disability are not able to access Medigap coverage. [...]
State must guarantee Medigap for dialysis
I have progressive chronic kidney disease (CKD). One day, my kidneys will fail. Dialysis — a life-saving treatment that removes waste from the blood when the kidneys fail — is in my future. Right now, I am doing everything I can to slow the progression of my disease. But one thing I can’t control is whether I’ll be able to afford very expensive dialysis treatment when the time comes. I recently lost my job, which means I lost my private insurance. I bought my own private plan [...]
Letter to the Editor: Expanding Medigap Will Save Lives
As a dialysis patient and healthcare professional, I urge California’s state legislature, especially Sen. Caroline Menjivar (CA-20) and Assemblymember Nick Schultz (CA-44), to support Senate Bill 242. This bill expands access to affordable Medigap plans for all dialysis patients, regardless of age. Kidney failure comes unexpectedly for most, as it did for me. Kidney failure requires routine dialysis treatment to stay alive while awaiting a transplant, and I spent two years on peritoneal dialysis before receiving a kidney and pancreas transplant. Without reliable healthcare coverage, my transplant [...]
Dialysis Patient Citizens and the DPC Education Center Mourn the Passing of Natalie Zuniga
It is with a heavy heart that DPC and the DPC Education Center Board, staff, and volunteers learned of the passing of our Board Vice President, Natalie Zuniga. Natalie was from San Antonio, TX, where she lived with her husband of 40 years, Eddie, and raised their daughter. Natalie worked as a corporate travel agent for over 30 years before she was diagnosed with end-stage renal disease (ESRD), a job she loved because she got to travel and meet new people. Natalie was a dialysis patient for [...]
Dialysis Patient Citizens Applauds Introduction of Bipartisan Legislation Restoring Protections for Dialysis Patients
WASHINGTON, D.C. (March 30, 2025) -- Dialysis Patient Citizens (DPC), the leading advocacy organization for dialysis patients nationwide, today released the following statement applauding the introduction of the Restore Protections for Dialysis Patients Act (S. 1173/H.R. 2199) to restore access to critical health insurance coverage for patients who choose it. The bill was introduced in the Senate by Senators Cory Booker (D-NJ), Bill Cassidy (R-LA), Kevin Cramer (R-ND) and Martin Heinrich (D-NM), and it was introduced in the House by Representatives Mike Kelly (R-PA), Yvette Clarke (D-NY), Neal [...]
Nevada Moves Closer to Medigap for ESRD Patients
On March 27th, the Nevada Senate Committee on Commerce and Labor unanimously approved Senate Bill 292. Sponsored by State Senator Roberta Lange (NV-7), this important legislation will provide affordable access to Medigap coverage to the under age 65 Medicare eligible population. Nevada resident and DPC Patient Ambassador, Chuck Lizer, shared his story with the committee, helping legislators understand the unique challenges faced by dialysis patients. SB 292 will now go to the full Senate for consideration, and if approved, moves to the Nevada State Assembly. Thank you, [...]
Dialysis Patient Citizens and the DPC Education Center Mourn the Passing of Stephen Ahern
It is with a heavy heart that DPC and the DPC Education Center Board, staff, and volunteers learned of the passing of one of our Board Members, Stephen (Steve) Ahern. Steve was born and raised just outside of Philadelphia, PA, and was a lifelong Eagles fan. He worked for the Federal Bureau of Investigation before working as a Commercial Loans Officer for PSFS Bank. Steve moved to Cape May County 40 years ago and worked as a real estate agent in Avalon and Stone Harbor, NJ, a seasonal [...]