With summer temperatures on the rise, so too are kidney care issues both nationally and in California, where dialysis policies in particular remain hot button topics despite the defeat of Proposition 8 last November by a relatively wide margin.
Elevate the Voice of Patients with Kidney Disease and Their Caregivers
Fellow kidney patients and family members, our 2019 Annual Membership Survey is live, and it will remain open until Friday, August 16. This survey takes your input as a patient with kidney disease and helps to shape our public policy agenda and patient education priorities for the next year. This year we are also surveying family caregivers of dialysis patients.
DPC supports an adequately funded treatment infrastructure that offers stable and convenient sources of care that rewards performance and incentivizes quality outcomes. In addition, we are committed to ensuring access to all forms of treatment for end-stage renal disease, including transplantation. As a result, we work closely with others within the renal community to advocate for adequate policy solutions that encourage organ donation and protect patients' health.
Advocates spent a day of training getting up to speed on the latest legislation impacting the kidney community, which included presentations by Representative Donald Payne Jr. and DPC CEO Hrant Jamgochian. A rooftop reception followed where advocates strategized about the next day's meetings on Capitol Hill. The event culminated with over 100 meetings with lawmakers and their legislative staff about improving dialysis patient care.
Below are the photos from DPC's Advocacy Day:
Congressman Donald Payne Jr. is a Representative for New Jersey's 10th congressional district. He has end-stage renal disease (ESRD) and receives in-center dialysis treatment multiple times a week. Payne spoke with advocates during DPC's 2019 Annual Fly-In about his experience with dialysis and the efforts he is taking to elevate the patient voice.
Activists from across the country gathered on Capitol Hill to advocate on behalf of dialysis patients at DPC's Annual Advocacy Day on June 11, 1019. Advocates represented 26 different states and had over 100 meetings with Members of Congress and their legislative staff. The focus of the Hill discussions centered around preserving access to Charitable Assistance and ensuring access to Medigap for all dialysis patients.
Join us next month on June 20th at 2:00 pm ET for our upcoming Patient Ambassador call.
We will have special guest speakers to discuss the inside scoop learned during DPC's fly-in and the actions you can take to help kidney patients.
Dialysis Patient Citizens continues to work hard advocating to increase quality of care for patients. We are supporting a house bill that encourages research and innovations to provide patients with hope and new treatment options.
Dialysis Patient Citizens helps patients by working to improve access to care, promote financial security, increase quality of care and advance patient choice.
Two leading members of the US Senate Committee on Finance, which oversees the Medicare program, recently raised concerns to the Centers for Medicare & Medicaid Services (CMS) on issues impacting the care of dialysis patients.
Many of these items align with our priorities to improve the quality of life for patients with end-stage renal disease.
Emphasis was placed on the following dialysis-care issues: