As temperatures cool and the California legislature winds down from a flurry of late summer activity, two bills that would impact kidney disease patients recently landed on Governor Newsom’s desk for his signature or veto.
Dialysis Patient Citizens (DPC) works hard to promote financial security as financial hardships are common for many people with end-stage renal disease. Congress has introduced a bill that would decrease the financial burden experienced by many dialysis patients and improve their access to care.
Last month, DPC spoke with lawmakers at the National Conference of State Legislatures about the importance of having access to a supplemental insurance like Medigap to help pay for the deductibles and co-pays not covered by Medicare. When Medigap plans were first introduced, Congress only guaranteed issue of these plans to traditional Medicare beneficiaries and therefore did not extend this protection to those who gain Medicare coverage prior to age 65, including people with end-stage renal disease.
With summer temperatures on the rise, so too are kidney care issues both nationally and in California, where dialysis policies in particular remain hot button topics despite the defeat of Proposition 8 last November by a relatively wide margin.
Elevate the Voice of Patients with Kidney Disease and Their Caregivers
Fellow kidney patients and family members, our 2019 Annual Membership Survey is live, and it will remain open until Friday, August 16. This survey takes your input as a patient with kidney disease and helps to shape our public policy agenda and patient education priorities for the next year. This year we are also surveying family caregivers of dialysis patients.
DPC supports an adequately funded treatment infrastructure that offers stable and convenient sources of care that rewards performance and incentivizes quality outcomes. In addition, we are committed to ensuring access to all forms of treatment for end-stage renal disease, including transplantation. As a result, we work closely with others within the renal community to advocate for adequate policy solutions that encourage organ donation and protect patients' health.
Advocates spent a day of training getting up to speed on the latest legislation impacting the kidney community, which included presentations by Representative Donald Payne Jr. and DPC CEO Hrant Jamgochian. A rooftop reception followed where advocates strategized about the next day's meetings on Capitol Hill. The event culminated with over 100 meetings with lawmakers and their legislative staff about improving dialysis patient care.
Below are the photos from DPC's Advocacy Day:
Congressman Donald Payne Jr. is a Representative for New Jersey's 10th congressional district. He has end-stage renal disease (ESRD) and receives in-center dialysis treatment multiple times a week. Payne spoke with advocates during DPC's 2019 Annual Fly-In about his experience with dialysis and the efforts he is taking to elevate the patient voice.