Dialysis Patient Citizens News

Rep. Pallone: Help NJ’s dialysis patients

June 9th, 2024|

Being diagnosed with End Stage Renal Disease, ESRD, or kidney failure, changed my life. Suddenly, I needed intravenous treatment three times per week to survive. Like so many ESRD patients, I had to uproot my life to receive treatment. I kept my job during my dialysis journey, working six hours a day and receiving treatment afterwards. I was perpetually exhausted — but I got through it. Adding to the challenges ESRD patients like me face, a recent Supreme Court decision allows private insurers to push high-cost consumers [...]

Letter: Medicare, Medicaid not keeping up with inflation, hurting patient care

June 5th, 2024|

Dear Editor, I was born with a rare genetic disorder that caused my kidneys and eyes to be underdeveloped. I have battled chronic kidney disease at all levels throughout my entire life. At age 25, I went into complete kidney failure (AKA End Stage Renal Disease) and began dialysis, which is a continuous and grueling treatment which does the work my kidneys can’t. The financial and emotional difficulties I’ve dealt with have been very challenging. Unfortunately, I must also worry about medical workforce shortages caused by a [...]

Dialysis needs

June 2nd, 2024|

After I received a kidney transplant, I wrote a letter to the family of my donor expressing my immense gratitude. My journey with end stage renal disease took a toll, and the transplant marked a new beginning. I moved to Kansas City, began working full time and started a family. I received dialysis — a treatment three times per week to replace my kidney function — for almost seven years before receiving a transplant. I am extremely thankful for dialysis, but it was exhausting. I qualified for [...]

Kidney patients need protections restored

May 21st, 2024|

I was 14 when my father was diagnosed with End Stage Renal Disease, or kidney failure. I witnessed the suffering, anxiety, and helplessness the disease brought upon my family. I also witnessed the financial burden of medical bills, which became unaffordable once my father was forced off of his marketplace insurance. Traditionally, private insurance companies cover dialysis for 30 months after an individual starts treatment, providing patients with the opportunity to focus on their health rather than worrying about their finances. However, a recent U.S. Supreme Court [...]

DPC’s 2024 Advocacy Day

May 20th, 2024|

Earlier this month, DPC hosted our annual Advocacy Day in Washington, D.C. where we bring together patients, family members, and care givers to meet with their Members of Congress to elevate the patient story for dialysis patients. This year we had 65 advocates attend, representing 25 states, who had almost 80 Congressional meetings. Our patients spoke to Congressional offices asking them to support H.R. 6860 – The Restore Protections for Dialysis Patients Act and H.R. 5027 – The Chronic Kidney Disease Improvement in Research and Treatment Act. [...]

Buchanan Can Help Dialysis Patients

May 16th, 2024|

I have kidney failure, and I need dialysis to survive. Dialysis is a treatment which removes excess water and toxins from my blood because my kidneys do not function naturally anymore. It has been a challenge, and my body is still getting used to the frequent treatment which wears down my body. Dialysis patients already worry enough about their physical condition. They should not have to worry about finances too. Sadly, they do. I was lucky to be retired and have sufficient coverage when I began dialysis, [...]

Help dialysis patients

May 7th, 2024|

End Stage Renal Disease (ESRD), commonly called kidney failure, changed my life. I was first diagnosed with kidney disease in 2014, and my kidneys totally failed in 2020 after a battle with covid-19. I relied on dialysis, the treatment which replaced my kidneys' blood-filtering function, from 2020 until August of 2023 when I received a kidney transplant. As an ESRD patient advocate lucky enough to have received a transplant, I feel obligated to call on Congressman French Hill to help future dialysis patients afford lifesaving dialysis care. [...]

Support the Restore Protections for Dialysis Patients Act

May 6th, 2024|

Kidney failure, or end-stage renal disease (ESRD), affects Americans of all ages. I was 14 years old when I received my diagnosis. I’ve been on dialysis for many years and have received two transplants in the process, but perhaps more stressful than dialysis has been paying for all my healthcare expenses. I’ve relied on private insurance for much of my ESRD journey. After my second transplant, I had private insurance that proved essential once my transplant failed and I needed to stay in the hospital. I eventually [...]

Letter: Medicare failed us

May 6th, 2024|

As a program coordinator for the Kidney Foundation of Central Pennsylvania, I have made it my life’s mission to help kidney patients manage their condition. I see or hear stories of the inadequate standards of care currently practiced at clinics, hospitals and specialist practices in this country. Many patients I talk to are frustrated and feel like they have been forgotten. We must do better. The problem lies in the lack of health care workers. A severe lack of funding makes it more difficult to hire and [...]

Pass Restore in ‘24

May 6th, 2024|

Becky's daughter Dianne relied heavily on her insurance coverage that paid to treat all of her complications and extended her time with her two children. Becky's story is why Congressman Mike Kelly is fighting for the entire kidney community to ensure access to coverage for all dialysis patients. Thank you Rep. Kelly for your efforts to Pass Restore in '24. Learn more about Private Insurance Coverage and view the video.

Rep. Van Drew, please help dialysis patients

May 2nd, 2024|

At 20 years old, I was diagnosed with end stage renal disease (ESRD), or kidney failure. Two years later, I began receiving dialysis. I was employed upon diagnosis, but lost my job before beginning dialysis. I began dialysis on Medicare. Since Medicare only covers 80%, and my disability income disqualified me from Medicaid, I could not cover the remaining 20%. I went deep into medical debt just to survive. Six years of dialysis, a kidney transplant and 15 years later, I can now say that I am [...]

Dialysis Patient Citizens Issues Statement on Passing of Congressman Donald Payne Jr.

April 24th, 2024|

Rep. Payne Received Dialysis Treatment and Supported DPC Advocacy Efforts WASHINGTON, D.C. (April 24, 2024) - Today, Dialysis Patient Citizens (DPC) Board President Andrew Conkling issued the following statement on the passing of Rep. Donald Payne Jr. (D-NJ). Rep. Payne received dialysis treatment, advocated for better care and insurance coverage for dialysis patients, and spoke at a DPC advocacy event in Washington, DC. “We are deeply saddened to learn of the passing of Congressman Payne, who was a true friend to Dialysis Patient Citizens and a tireless advocate [...]

DPC Seeks Information on Patients’ Experience With Itching

April 24th, 2024|

A couple of years ago, a new drug was approved to treat ESRD-related pruritis. Medicare approved an additional payment for the drug Korsuva for a period of 2 years. But, because of the short expiration date, very few nephrologists prescribed the medication, so even fewer dialysis facilities dispensed the drug. As a result, Korsuva never took hold to become the standard of care for pruritis. We’d like to know (1) Have experienced pruritis? (2) If so, did your clinicians tell you about Korsuva? We would like to convey [...]

Support the Restore Protections for Dialysis Patients Act

April 16th, 2024|

To Whom It May Concern, Like many patients with End Stage Renal Disease (ESRD) – or kidney failure – my diagnosis came as a shock. About a decade ago, I went to my doctor feeling ill. I discovered that my kidneys were failing and I had to get on dialysis, the costly but life-saving treatment which replaces my kidney function. I have been on dialysis ever since. My healthcare journey has been difficult, and many ESRD patients like me deal with financial challenges as a result of [...]

Poor care? Blame Medicare payments

April 14th, 2024|

My husband Raymond and I met on a blind date. Three months later, his kidney unexpectedly failed, and I have walked alongside him on his patient journey ever since. My husband’s life depends on dialysis, the treatment that does what his kidney can’t do. Unfortunately, we confronted problems with our dialysis center that reflect larger trends caused by insufficient reimbursements from the Center for Medicare and Medicaid Services (CMS). Our nation is confronting a demographic crisis, with fewer working-aged people and more patients, which is why we [...]

Letter: Congress needs to act to restore protections for dialysis patients

April 11th, 2024|

In the United States, dialysis treatment should be affordable. Unfortunately, inadequate coverage for dialysis often plunges patients into debt. Dialysis should not bankrupt you. In our system, Americans on dialysis almost always wind up using Medicare. Since Medicare only covers 80% of the bill, patients must figure out how to cover the remainder. I was on dialysis for 10 years, and I received a kidney transplant in 2018. I was forced to stop working when I began dialysis, but my mother’s private insurance covered my bill. Private [...]

Congress must not leave kidney patients behind

April 9th, 2024|

I have chronic kidney disease. Thankfully, my kidneys are still functioning, but they are at risk of failure any time. I became a dialysis patient advocate because I may eventually have to withstand the difficulties that come with dialysis in America. I am fighting for my future and for the future of all dialysis patients in America. I am concerned with a recent Supreme Court decision that allows private insurers to essentially push new dialysis patients off of their private insurance and onto Medicare soon after beginning [...]

Reimbursement rates for health care professionals needs to be increased

April 7th, 2024|

As a patient with End Stage Renal Disease (ESRD), or kidney failure, I know how health care workforce shortages can affect patients. I have been on dialysis for 7 years. At the clinic where I receive dialysis – the life-saving treatment which replaces my kidney function – any staff shortage can mean the difference between a smooth treatment and chaos. America is facing a historic health care workforce crisis. Staffing challenges and high demand have led to gaps in care like longer emergency room wait times. Unfortunately, Medicare is [...]

Go to Top