News2020-03-21T20:39:15+00:00

Dialysis Patient Citizens News

DPC’s 2020 Annual Membership Survey is Live!

August 6th, 2020|

Elevate the Voice of Patients with Kidney Disease and Their Caregivers Our 2020 Annual Membership Survey is live, and it will remain open until Friday, August 21. We are counting on your participation, as patient feedback helps to shape our public policy agenda and patient education priorities for the next year. This year we ask that both patients and caregivers take our survey. Rest assured your responses will remain completely anonymous. We only share the overall survey results with state and federal level policy makers, so they will [...]

Action Alert – Help us Increase Patient Access to Immunosuppressive Medications

July 28th, 2020|

The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act (H.R. 5534, S. 3353) is gaining momentum in Congress, and we need your help continuing to get the word out. This bill was introduced by Representatives Ron Kind (D-WI) and Michael Burgess (R-TX), as well as Senator Bill Cassidy (R-LA). This legislation would extend Medicare coverage of immunosuppressive drugs beyond the current limit of 36 months for patients who are unable to obtain health insurance coverage elsewhere. Immunosuppressive medications play a critical role in preventing transplant recipients [...]

ESRD Community Honors the Legacy of Congressman John Lewis

July 27th, 2020|

Our nation recently lost one of its most iconic and stalwart champions for justice in Congressman John Lewis. He dedicated his life to fighting for civil rights and social justice for all Americans, and his legacy will forever be remembered. Congressman Lewis was also one of the kidney community’s most consistent, trustworthy, and respected allies, and we join the nation in mourning his passing. Throughout his more than three decades in the U.S. House of Representatives, Congressman Lewis was a champion for patients with End-Stage Renal Disease (ESRD) and worked [...]

Care Coordination Fixes One of the Biggest Flaws in the American Health Care System

July 20th, 2020|

By Gloria Rohrer, DPC Patient Ambassador As a dialysis patient, it has become clear to me that one of the biggest flaws in the American health care system is the disjointed way care is often provided to patients. If patients have chronic conditions alongside other health complications, it can be exceedingly difficult to navigate the different doctors and hospitals we need in order to receive proper care. When seeing so many different doctors at various clinics and hospitals, patients like me can suffer adverse effects if all [...]

Dialysis Patient Citizens Files Lawsuit Against HHS Secretary Alex Azar and CMS Administrator Seema Verma Over New Regulation That Undercuts Dialysis Patient Access to Affordable, High-Quality Care

June 22nd, 2020|

WASHINGTON, D.C., (June 22, 2020) -- Today, Dialysis Patient Citizens (DPC) filed suit in the United States District Court for the District of Columbia against Health and Human Services Secretary Alex Azar, Centers for Medicare and Medicaid Services Administrator Seema Verma, the U.S. Department of Health and Human Services, and the Centers for Medicare and Medicaid Services in opposition to a discriminatory new federal regulation that will limit the ability of hundreds of thousands of End-Stage Renal Disease (ESRD) patients to access affordable, high quality treatment. “ESRD patients [...]

Medicare Removes Important Protection for Dialysis Patients in Managed Care Plans

May 26th, 2020|

The Centers for Medicare & Medicaid Services (CMS) last week issued a regulation for Medicare Advantage (MA) plans that eliminates time and distance limits from network adequacy requirements for dialysis facilities. Network adequacy requirements for health plans ensure that patients can have access to all necessary providers with reasonable promptness. Time and distance limits prescribe a maximum driving time or distance in miles that a consumer must travel to get to a doctor or facility. The limits are higher in rural areas. CMS replaced the time and [...]

Visit the New Kidney Care Matters Site to Find Out What You Can do to Help Dialysis Patients

May 22nd, 2020|

Dialysis Patient Citizens is excited to announce that the new Kidney Care Matters website is live. This initiative, led by DPC, is focused on promoting better kidney care through care coordination for people with End-Stage Renal Disease. Coordinated care means that all health care providers serving a patient share information with each other in a timely manner about the patient’s health, treatments prescribed, and care delivered. Well-structured care coordination has the potential to provide a more focused, dedicated care management approach that would streamline care, improve health [...]

Patient Advocates Raising Awareness Through Letters to the Editor

May 20th, 2020|

Dialysis Patient Citizens takes great pride in the work that our patient ambassadors are doing each and every day in their communities and local dialysis facilities. Through providing additional education and access to resources for fellow dialysis patients, they help to make a difference in the lives of patients and encourage them to be their own advocates. One of the ways our ambassadors are making their voices heard are through letters to the editor, where they write and submit a letter to the editor to his/her local [...]

Sen. Grassley, Leaders in Dialysis Community Pay Tribute to the Late Jack Reynolds, Former DPC President and Founding Board Member

May 11th, 2020|

WASHINGTON, D.C., (May 14, 2020) -- Today, Dialysis Patients Citizens (DPC) released statements from U.S. Senator Chuck Grassley (R-IA) and leaders in the dialysis community in honor of the late Jack Reynolds, who served as former DPC president and a founding Board member. U.S. Senator Chuck Grassley (R-IA): “One of the privileges of public service is meeting Iowans like Jack Reynolds. A farm kid who nearly lost his life at age 4, Jack survived against the odds of a 100-gallon barrel of water crushing his abdomen. By age [...]

Another Dialysis Ballot Initiative Looming in California

April 28th, 2020|

Last week, the Service Employees International Union (SEIU) and United Health Workers West (UHW) submitted petition signatures for a potential ballot initiative in November. If the signatures are approved, California voters will vote on measure to dramatically increase the cost of dialysis care. The same group backed a similar measure (Proposition 8) two years ago, which voters widely rejected. DPC opposes the current ballot initiative because it adds burdensome requirements intended to drive up the cost of care for dialysis patients. One provision, in particular, would require a [...]

ESRD Network – Your Resource for Access to Care

April 27th, 2020|

The Centers for Medicare & Medicaid Services (CMS), which is the federal Agency that oversees the Medicare program, recently reiterated its commitment to ensuring dialysis patient access to care during the current pandemic. They said that if any dialysis patients are having problems with transportation, that prevent you from getting to dialysis, they want to help. CMS also knows that your dialysis access is your lifeline, so if you have any complications with your fistula, graft or catheter and need help – that is why they created the [...]

Sign the Petition to Support Integrated Care for Dialysis Patients

April 23rd, 2020|

We are pleased to report that Congress is working on draft legislation—known as the BETTER Kidney Care Act—to expand care coordination opportunities for dialysis patients. The COVID-19 pandemic has put the health of kidney disease patients at risk more than ever before, while also demonstrating the many challenges to ensuring their continuity of their care. Show your support for improving the lives of dialysis patients during this unprecedented time by signing our on-line petition to increase dialysis patient access to care coordination, then urge Congress to enact [...]

Increasing State Policy Maker Outreach to Better Support our Members During COVID-19

April 21st, 2020|

DPC works tirelessly on behalf of its patient members to elevate their voice and concerns to elected officials about policy issues that impact ESRD patients. As you know, DPC has expanded its state advocacy efforts over the past year and added two staff members who focus on state issues and government relations. So, how does an organization continue this level of engagement during a pandemic when state legislatures are recessed, and social distancing doesn’t allow face-to-face interactions? Moreover, most state governments are focused solely on fighting COVID-19 and [...]

Are You Scared or Anxious about COVID-19?

April 15th, 2020|

We are living in a time of uncertainty with the COVID-19 pandemic, which can lead to stress, fear, depression, and anxiety. We may feel overwhelmed at times and bored at other times. We may be at a loss for how to cope with social distancing, not seeing friends and family, and the possibility of getting sick. If you are a dialysis patient, receiving treatment either in-center or at home, your facility social worker is a great resource for you. Or, if you are a transplant patient, you can [...]

COVID-19 Resources for Dialysis Patients

March 31st, 2020|

Here is a list of resources for dialysis patients to help them get additional support during the COVID-19 viral outbreak and beyond. Resource topics include: disability, financial assistance, nutrition, healthcare, housing and utilities, jobs, transportation, women and children, daily living, and staying safe. In addition, visit your state department of health website for COVID-19 information that is specific to your area.

DPC Supports Increased Access and Quality of Care for Dialysis Patients Amid COVID-19

March 23rd, 2020|

DPC provided feedback to the U.S. Department of Health and Human Services (HHS) regarding the COVID-19-related issues that the kidney community is facing. DPC made recommendations to HHS in the following areas: Transportation COVID-19 Treatments and Vaccinations Home Dialysis People with End-Stage Renal Disease have a higher risk for developing a severe illness from COVID-19. As a result, it is crucial we do all that we can to help this vulnerable population in order to decrease the negative impact and spread of the virus. Read DPC's letter [...]

DPC Comments on CMS Proposed Rule Regarding Medicare Advantage

March 10th, 2020|

In 2021 End-Stage Renal Disease (ESRD) patients will be permitted to enroll in Medicare Advantage (MA) plans, potentially bringing major changes to ESRD care and how patients experience it. When open enrollment begins this fall, we want to make sure patients have access to the same robust benefits offered with MA plans right now. DPC reached out to the Centers for Medicare & Medicaid Services (CMS) with recommendations on how to ensure ESRD patients maintain the access, choice and quality care they expect when these benefits are [...]

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