Gloria Rohrer lost a leg after needing multiple surgeries when her kidney transplant failed. Rohrer later lost her eyesight in one eye while vacationing in Florida, which could have been avoided with proper care coordination. She could have shut down and become angry with the world, instead Rohrer became a stalwart advocate for patient access to care coordination services, so that others can avoid similar complications.
WASHINGTON, D.C., (June 22, 2020) -- Today, Dialysis Patient Citizens (DPC) filed suit in the United States District Court for the District of Columbia against Health and Human Services Secretary Alex Azar, Centers for Medicare and Medicaid Services Administrator Seema Verma, the U.S. Department of Health and Human Services, and the Centers for Medicare and Medicaid Services in opposition to a discriminatory new federal regulation that will limit the ability of hundreds of thousands of End-Stage Renal Disease (ESRD) patients to access affordable, high quality treatment. “ESRD [...]
The Centers for Medicare & Medicaid Services (CMS) last week issued a regulation for Medicare Advantage (MA) plans that eliminates time and distance limits from network adequacy requirements for dialysis facilities. Network adequacy requirements for health plans ensure that patients can have access to all necessary providers with reasonable promptness. Time and distance limits prescribe a maximum driving time or distance in miles that a consumer must travel to get to a doctor or facility. The limits are higher in rural areas. CMS replaced the time and [...]
Dialysis Patient Citizens is excited to announce that the new Kidney Care Matters website is live. This initiative, led by DPC, is focused on promoting better kidney care through care coordination for people with End-Stage Renal Disease. Coordinated care means that all health care providers serving a patient share information with each other in a timely manner about the patient’s health, treatments prescribed, and care delivered. Well-structured care coordination has the potential to provide a more focused, dedicated care management approach that would streamline care, improve health [...]
Dialysis Patient Citizens takes great pride in the work that our patient ambassadors are doing each and every day in their communities and local dialysis facilities. Through providing additional education and access to resources for fellow dialysis patients, they help to make a difference in the lives of patients and encourage them to be their own advocates. One of the ways our ambassadors are making their voices heard are through letters to the editor, where they write and submit a letter to the editor to his/her local [...]
WASHINGTON, D.C., (May 14, 2020) -- Today, Dialysis Patients Citizens (DPC) released statements from U.S. Senator Chuck Grassley (R-IA) and leaders in the dialysis community in honor of the late Jack Reynolds, who served as former DPC president and a founding Board member. U.S. Senator Chuck Grassley (R-IA): “One of the privileges of public service is meeting Iowans like Jack Reynolds. A farm kid who nearly lost his life at age 4, Jack survived against the odds of a 100-gallon barrel of water crushing his abdomen. By age [...]
Last week, the Service Employees International Union (SEIU) and United Health Workers West (UHW) submitted petition signatures for a potential ballot initiative in November. If the signatures are approved, California voters will vote on measure to dramatically increase the cost of dialysis care. The same group backed a similar measure (Proposition 8) two years ago, which voters widely rejected. DPC opposes the current ballot initiative because it adds burdensome requirements intended to drive up the cost of care for dialysis patients. One provision, in particular, would require [...]
The Centers for Medicare & Medicaid Services (CMS), which is the federal Agency that oversees the Medicare program, recently reiterated its commitment to ensuring dialysis patient access to care during the current pandemic. They said that if any dialysis patients are having problems with transportation, that prevent you from getting to dialysis, they want to help. CMS also knows that your dialysis access is your lifeline, so if you have any complications with your fistula, graft or catheter and need help – that is why they created the [...]
We are pleased to report that Congress is working on draft legislation—known as the BETTER Kidney Care Act—to expand care coordination opportunities for dialysis patients. The COVID-19 pandemic has put the health of kidney disease patients at risk more than ever before, while also demonstrating the many challenges to ensuring their continuity of their care. Show your support for improving the lives of dialysis patients during this unprecedented time by signing our on-line petition to increase dialysis patient access to care coordination, then urge Congress to enact [...]
DPC works tirelessly on behalf of its patient members to elevate their voice and concerns to elected officials about policy issues that impact ESRD patients. As you know, DPC has expanded its state advocacy efforts over the past year and added two staff members who focus on state issues and government relations. So, how does an organization continue this level of engagement during a pandemic when state legislatures are recessed, and social distancing doesn’t allow face-to-face interactions? Moreover, most state governments are focused solely on fighting COVID-19 [...]
We are living in a time of uncertainty with the COVID-19 pandemic, which can lead to stress, fear, depression, and anxiety. We may feel overwhelmed at times and bored at other times. We may be at a loss for how to cope with social distancing, not seeing friends and family, and the possibility of getting sick. If you are a dialysis patient, receiving treatment either in-center or at home, your facility social worker is a great resource for you. Or, if you are a transplant patient, you can [...]
DPC is now on Instagram and LinkedIn! Be sure to follow us to learn about our policy issues, action alerts how you can get involved and more. In addition to these platforms, you can also find us on Facebook, Twitter and YouTube. Use the links below to get started: Instagram LinkedIn Facebook Twitter YouTube
During this webinar you will learn the latest on: 1) What kidney patients need to do (dialysis & transplant), 2) What dialysis facilities are doing and 3) What we can learn from New York’s COVID-19 experience.
Here is a list of resources for dialysis patients to help them get additional support during the COVID-19 viral outbreak and beyond. Resource topics include: disability, financial assistance, nutrition, healthcare, housing and utilities, jobs, transportation, women and children, daily living, and staying safe. In addition, visit your state department of health website for COVID-19 information that is specific to your area.
DPC provided feedback to the U.S. Department of Health and Human Services (HHS) regarding the COVID-19-related issues that the kidney community is facing. DPC made recommendations to HHS in the following areas: Transportation COVID-19 Treatments and Vaccinations Home Dialysis People with End-Stage Renal Disease have a higher risk for developing a severe illness from COVID-19. As a result, it is crucial we do all that we can to help this vulnerable population in order to decrease the negative impact and spread of the virus. Read DPC's letter [...]
In 2021 End-Stage Renal Disease (ESRD) patients will be permitted to enroll in Medicare Advantage (MA) plans, potentially bringing major changes to ESRD care and how patients experience it. When open enrollment begins this fall, we want to make sure patients have access to the same robust benefits offered with MA plans right now. DPC reached out to the Centers for Medicare & Medicaid Services (CMS) with recommendations on how to ensure ESRD patients maintain the access, choice and quality care they expect when these benefits are [...]
Learn about COVID-19 and what you and your family can do to protect yourselves. You will also learn about the CDC’s guidance for dialysis facilities and how your facility staff is working to prevent the spread of infection.
Coronavirus disease 2019 (abbreviated COVID-19) is a new respiratory virus spreading to the United States. Although the health risk is low in this country at this time, we know that people who have chronic illnesses, weakened immune systems and/or are over the age of 60 could pose an increased risk if they develop the disease. That said, it is not a time to panic, but rather a time to use procedures that help prevent the flu, coronavirus and other infections.
We recently launched a new and fully-responsive website, making it easier than ever for dialysis patients, family members and policy makers to learn more about the issues affecting kidney disease patients and what they can do to help improve patient quality of life. Learn about kidney disease, stay abreast of the key issues that impact the lives of people with kidney disease, discover ways to get more involved with DPC, find helpful resources for taking action as an active advocate and stay informed with our latest news. Check out the [...]