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From the Welcome Desk at DPC: November

2024-03-29T02:09:01+00:00November 28th, 2012|Categories: Blog, Immunosuppressive Drug Coverage|

By Stephen C., Administrative Assistant Hello all! I hope everyone’s doing well and you’re all ready for a wonderful (renal-friendly) holiday season. This week, I wanted to share my experience visiting the kind folks at ESRD Network 11 in Milwaukee for their annual meeting. I had a great time talking with nurses and patients about everything we do at DPC. I think my favorite moment during the whole event was when a nurse approached our table and asked me if we were doing anything about immunosuppressant drug coverage for transplant patients. She explained that the lack of immunosuppressant coverage was causing [...]

Changes are Coming to Kidney Transplant Allocation Policies

2024-03-29T02:09:01+00:00November 27th, 2012|Categories: Access to Transplant, Blog|

By Jessica N., Director of Public Affairs When DPC weighs in on policy proposals, we aim to speak on behalf of the people that we represent. This means that periodically we look to all of you to let us know how you feel about certain changes and how you think they will affect your care…and this is one of those times. Recently, the Organ Procurement Transplant Network (OPTN) and United Network for Organ Sharing (UNOS) released a proposal to change the way kidney transplants are allocated. The proposal makes several key modifications to current policy that could have an impact [...]

Health Reform Implementation Continues at the State Level

2024-03-29T02:09:01+00:00October 11th, 2012|Categories: Access to Transplant, Blog, Immunosuppressive Drug Coverage, State Advocacy|

By Carrie L., Director of Congressional and State Relations I have the unenviable job of trying to make state health reform both easy to understand and interesting, but I have given it my best shot. In this article I will be discussing two topics that are important for kidney disease patients, essential health benefit benchmark plans and the formation of state-based health insurance exchanges. State governments and health reform boards have been busy over the past couple of months determining how they will deal with implementing the Affordable Care Act (ACA) in their states. Deadlines have come and gone for [...]

DPC Urges Nevada Commission of Insurance to Not Make Cuts for Patients’ Modality, Transportation, Care and Treatment

2024-03-29T02:09:01+00:00September 27th, 2012|Categories: Access to Transplant, Comment Letter, Immunosuppressive Drug Coverage, Improve Access to Care, State Advocacy, Transplant Donor Protection, Treatment Options|

Scott J. Kipper Commissioner of Insurance State of Nevada 1818 E. College Parkway, Suite 103 Carson City, NV 89706 Dear Commissioner Kipper: As America’s largest patient-led organization representing dialysis patients, Dialysis Patient Citizens (DPC) works to improve the quality of life of all dialysis patients through education and advocacy. Today we are writing on behalf of the nearly 3,000 dialysis patients in Nevada to make sure that their health and interests are represented in the State’s essential health benefits plan. DPC is committed to improving patient health and quality of life and to that end, there are several important benefits [...]

A Recent Meeting with CMMI

2024-03-29T02:09:01+00:00September 11th, 2012|Categories: Blog, Care Coordination, Innovation, Promote Financial Security|

By Jessica N., Director of Public Affairs Hi, my name is Jessica and I am the Director of Public Affairs for Dialysis Patient Citizens. That means I create and coordinate the communications that come out of the DPC office, including the Patient Citizen that is on its way to your mailbox. I also work with our policy team on federal initiatives that impact dialysis patients, including changes to Medicare, the “bundle” and QIP and efforts to make sure all of you can take advantage of new policies put in place through health reform. Because my work at DPC is different [...]

DPC Comments on the Creation of Nephrology Specific Integrated Care Pilot Projects

2024-03-29T02:09:25+00:00September 5th, 2012|Categories: Care Coordination, Comment Letter, Innovation|

Dialysis Patient Citizens (DPC) appreciates the opportunity to engage in ongoing dialogue and the continuous ability to provide feedback to the Centers for Medicare and Medicaid Services (CMS), Center for Medicare and Medicaid Innovation (CMMI) on issues related to the improvement of care for chronic disease (CKD) patients. In our July 23, 2012 letter to CMMI leadership, we proposed several initiatives to consider as integrated care projects are considered. To further enhance our earlier statements, we have included timely data from our nationwide survey of patients with end stage renal disease (ESRD). For clarity, the following list includes the primary [...]

DPC’s Letter to Daniel Farmer of the Stakeholder Engagement Group at CMMI

2024-03-29T02:09:25+00:00July 23rd, 2012|Categories: Care Coordination, Comment Letter, Innovation|

Daniel Farmer Stakeholder Engagement Group Center for Medicare and Medicaid Innovation (CMMI) Centers for Medicare and Medicaid Services (CMS) 7500 Security Boulevard Baltimore, MD 21244 Dear Mr. Farmer: Dialysis Patient Citizens (DPC) appreciates the opportunity to provide ongoing feedback from the patient prospective to the Centers for Medicare and Medicaid Services (CMS), Center for Medicare and Medicaid Innovation (CMMI) on issues related to the improvement of care for chronic kidney disease (CKD) patients. We applaud the mission of the department and your role in shaping healthcare through the identification of new delivery and payment options and the promotion of best [...]

DPC Encourages New York State Office of Health Insurance Plans to Reinstate Coverage of Oral Nutritional Supplements

2024-03-29T02:09:25+00:00July 10th, 2012|Categories: Comment Letter, Medicaid, State Advocacy|

Dr. Jonathan Curtin, Medical Director NYS Department of Health Division of OHIP Operations Office of Health Insurance Programs 150 Broadway Albany, NY 12204 Jonathan Bick, Acting Director NYS Department of Health Division of OHIP Operations Office of Health Insurance Programs 150 Broadway Albany, NY 12204 RE: Medicaid Coverage of Enteral Nutritional Supplements Dear Dr. Curtin and Acting Director Bick, Dialysis Patient Citizens (DPC), the nation’s largest patient-led organization representing dialysis patients, strives to improve the quality of life of all end stage renal disease (ESRD) patients through education and advocacy. We are writing today on behalf of the 25,695 dialysis [...]

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