New Bill Give Dialysis Patients Certainty and Security

2022-01-12T15:27:59+00:00January 10th, 2022|Categories: Patient Stories in the News|

The last thing that folks living with End-Stage Renal Disease (ESRD) should have to worry about is whether they can afford to pay for their treatments. As someone who has been on dialysis since 2009, I’ve met a number of patients who live with a financial burden and uncertainty because they do not have access to Medigap insurance. Thankfully, Congress is working to expand Medigap coverage through a new bill called the Jack Reynolds Memorial Medigap Expansion Act. This bill would allow patients under the age of 65 to gain access to Medigap coverage, and it would be a huge [...]

Louisiana Kidney Patients Counting on New Care Coordination Bill

2021-12-15T18:25:17+00:00December 15th, 2021|Categories: Patient Stories in the News|

My kidney disease diagnosis four years ago meant a lot of things, including the beginning of many doctor appointments, dialysis treatments, and medications. While these changes keep me alive and well, there are certain areas of care for dialysis patients that are lacking. For starters, I have found myself navigating between doctors to communicate my needs and make sure all of my prescriptions are working together, especially when I first started dialysis. Patients need a coordinated care system to make it easier for their doctors to communicate their prescribed health plans. Dialysis patients also require frequent visits to centers for their treatments. [...]

Support Sen. Young’s Kidney Care Act

2021-11-29T19:40:44+00:00November 28th, 2021|Categories: Patient Stories in the News|

A kidney disease diagnosis is life-changing. It means undergoing hours-long dialysis treatments several times every week, spending more time at doctors' appointments, and completely overhauling how patients live their lives. The stress of that change is only complicated by the fact that for a lot of dialysis patients, the responsibility for tracking treatments, medications and communicating with their nephrologist and primary care doctor and any number of other care providers so that treatments do not overlap or interfere with each other. Sen. Todd Young has introduced a bill called the BETTER Kidney Care Act, which would make it easier for [...]

Letter to the Editor: Medigap expansion bill can address coverage concerns

2021-12-02T16:04:48+00:00November 25th, 2021|Categories: Patient Stories in the News|

Being a nurse practitioner gives me a glimpse into patients’ daily struggles that aren’t always obvious from the outside looking in, like the problems patients face when their coverage suddenly changes, and they can’t afford the medications they need. This is something I’ve particularly noticed for dialysis patients. Since a lot of them rely on Medicare for coverage, they have large out-of-pocket expenses when it doesn’t cover something they need, like actual dialysis treatments (which patients usually need three to four times a week) and medications, since Medicare often only covers 80% of those costs. And since many don’t have [...]

Readers React: Bill would help dialysis patients under age 65

2021-11-12T16:12:37+00:00November 10th, 2021|Categories: Patient Stories in the News|

Dialysis has involved a lot of waiting since I started it years ago. Treatments take hours at a time, and I’m left waiting for the call to finally tell me that a donor kidney is ready. It simply cannot come soon enough. However, I at least have coverage for my treatments through my wife’s job, in addition to Medicare, which I know is not the case for others. For them, treatments that aren’t covered by Medicare have to be paid out of pocket, and the added costs and stress can be overwhelming. We need lawmakers to support the Jack Reynolds Memorial [...]

LETTER TO THE EDITOR: Law would make life easier for dialysis patients

2021-11-08T19:47:54+00:00November 7th, 2021|Categories: Patient Stories in the News|

When I first went into the hospital because of a heat stroke a few years ago, I never would’ve imagined it would lead to me starting dialysis. After 19 days in the hospital, I was back just one day after being discharged. Before long, doctors were forced to put me into a medically induced coma while I experienced heart and respiratory failure, which required a tracheostomy to help me breathe. When I came out of the coma, I was already on dialysis. This diagnosis came with expensive new medications, and now I have to work to make sure my cardiologist [...]

I’ve had a kidney transplant and know these bills will help others

2021-11-01T16:47:17+00:00October 30th, 2021|Categories: Patient Stories in the News|

Before I was diagnosed with polycystic kidney disease while I was pregnant with my son, I knew nothing about kidney disease. I never would have imagined all the different things that go into treating it, and what it would eventually be like to go on dialysis. Once I did start dialysis in 2016, I found myself in a whole different world. I remember just being overwhelmed learning about it all, and asking myself how I would possibly find a donor as I prepared each day for overnight dialysis treatments that lasted eight and a half hours. What made things especially [...]

Cover the Medigap

2021-10-22T15:27:30+00:00October 21st, 2021|Categories: Patient Stories in the News|

As a dialysis patient, one-time kidney transplant recipient, and a dialysis tech of 12 years, I’ve seen kidney care from just about every angle. I was fortunate to have insurance through my job which meant I didn’t have to deal with the out-of-pocket costs and hassle that sometimes come with Medicare, but that’s not true for everyone. Instead, they rely only on Medicare, and if it doesn’t cover certain costs, they can get stuck with a huge bill. Lawmakers can help change that by passing bills like the Jack Reynolds Memorial Medigap Expansion Act, which would open Medigap coverage to [...]

TX Kidney Patients Eager for a Transplant Need Medigap Expansion

2021-10-20T15:09:32+00:00October 14th, 2021|Categories: Patient Stories in the News|

It took me two doctors' visits to get a liver transplant. It was a fairly seamless process all things considered, but the medications eventually cost me my only kidney and forced me onto dialysis. Getting a kidney transplant couldn't be more different, Just getting on the list feels like I'm running in circles, with constant tests and never any progress or solution. I've spent years on dialysis, which has changed my life drastically and even cost me a job I loved because I couldn't travel as much anymore. Dialysis isn't just difficult because of the long hours in the chair, [...]

Kidney disease patients need coverage, new Medigap bill

2021-10-20T15:11:55+00:00October 13th, 2021|Categories: Patient Stories in the News|

I’ve battled kidney disease for over half my life, experiencing one failed kidney transplant and 16 years on dialysis — all before my 30th birthday. Fortunately, I’m able to receive full coverage for the cost of the treatments and medications I need to fight my kidney disease. However, I know there are other patients out there who can’t say the same thing. Many dialysis patients struggle to afford the basic care they need since Medicare doesn’t always cover the cost of the treatments and medications needed to fight kidney disease for patients who are under the age of 65. Luckily, [...]

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