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2024 Advocacy Day – 24 Hours Left to Apply!

2024-01-25T16:27:44+00:00January 25th, 2024|Categories: Advance Patient Choice, Article, Get Involved, Improve Access to Care, Increase Quality of Care, Patient Ambassadors, Policy Issues, Promote Financial Security, Protect Patient Care, Take Action|

Dialysis Patient Citizens (DPC) will host our 20th Anniversary Celebration and Annual Congressional Advocacy Day May 6-7, 2024. Participants will be selected based on the quality of their applications, legislative priorities, and previous involvement in DPC's advocacy efforts. We will hold a training session ahead of our congressional meeting for those participating to explain the process and review our current legislative “asks.” The application period is open until January 26, 2024. We just ask that you tell us a little about yourself and why you think you would be a good candidate for this incredible opportunity. We will make a decision [...]

Dialysis Patient Citizens Applauds New Legislation Restoring Protections for Dialysis Patients

2023-12-20T18:05:51+00:00December 20th, 2023|Categories: Dialysis Funding, Medicare Advantage, News, Press Release, Private Insurance Coverage, Promote Financial Security, Protect Patient Care|

WASHINGTON, D.C. (December 20, 2023) -- Dialysis Patient Citizens (DPC), the leading advocacy organization for dialysis patients nationwide, today released the following statement applauding the introduction of the Restore Protections for Dialysis Patients Act by Representatives Mike Kelly (R-PA), Yvette Clark (D-NY), Neal Dunn (R-FL), Danny Davis (D-IL), John Joyce (R-PA), and Raul Ruiz (D-CA) to restore access to critical health insurance coverage for patients who choose it. “We applaud Representatives Kelly, Clark, Dunn, Davis, Joyce, and Ruiz for standing with dialysis patients by introducing this critical legislation,” said DPC Board President Andrew Conkling. “For decades, many patients have relied [...]

DPC’s Letter to Hon. Chiquita Brooks-LaSure, Administrator for CMS, on End Stage Renal Disease (ESRD) Prospective Payment System (PPS) Calendar Year (CY) 2024 Proposed Rule (CMS-1782-P)

2023-09-14T16:35:23+00:00August 18th, 2023|Categories: Comment Letter, Improve Access to Care, Medicare Advantage, Protect Patient Care, Staffing Shortages|

August 18, 2023 Hon. Chiquita Brooks-LaSure, Administrator Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD  21244 Re:       End Stage Renal Disease (ESRD) Prospective Payment System (PPS) Calendar Year (CY) 2024 Proposed Rule (CMS-1782-P) Dear Administrator Brooks-LaSure: Dialysis Patient Citizens (DPC) writes to offer its comments on the above referenced proposed rule. DPC's membership, currently about 35,000, is restricted to kidney disease patients and their family members. DPC is a patient-led organization.  Our by-laws require that the President, Vice President and at least 51% of the Board be current dialysis patients.  The non-dialysis patients serving on our Board [...]

DPC Elevates Patient Advocacy Work to State Lawmakers

2023-08-28T17:45:24+00:00August 17th, 2023|Categories: Article, Medigap Coverage, Policy Issues, State Advocacy|

Over August 14 – 16, 2023, Dialysis Patient Citizens (DPC) spent time advocating for dialysis patients at the National Conference of State Legislatures (NCSL) Annual Legislative Summit, held in Indianapolis, Indiana. Yolanda Brisbane, Grassroots Manager and State Advocacy Directors, Elizabeth Lively and Pamela Zielske spoke with lawmakers from across the nation about issues that impact dialysis patients. With more than 6,000 legislators and staff in attendance, the NCSL conference was a tremendous opportunity to elevate our advocacy work with state policymakers. Conversations also extended to delegations from around the globe, as attendees from South Africa, Nigeria, Ghana, Portugal, India, Brazil, Germany, [...]

Affordable Medigap Access Now Available in Rhode Island, Kentucky and Virginia Coming Soon!

2023-07-27T14:32:58+00:00July 25th, 2023|Categories: Article, Medigap Coverage, News, Patient Ambassadors, State Advocacy|

During 2022 and 2023, DPC worked tirelessly to secure passage of legislation providing access to affordable Medigap coverage for under age 65 kidney failure patients living in three states. Those states – Kentucky, Rhode Island and Virginia, are creating regulations to implement the new state laws. The law in Rhode Island became effective July 1, 2023. In Kentucky and Virginia, the laws passed this year become effective January 1, 2024. If you live in one of these states and are not yet age 65, check with your dialysis facility finance or social workers to learn more about the Medigap Plans being [...]

House Introduction of the Living Donor Protection Act

2023-05-25T15:00:59+00:00May 1st, 2023|Categories: Access to Transplant, Article, Promote Financial Security, Protect Patient Care|

On April 27th, Congressman Jerrold Nadler (D-NY), Congressman Troy Balderson (R-OH), Congresswoman Lisa Blunt Rochester (D-DE), Congressman Jim Costa (D-CA), Congressman John Curtis (R-UT), Congresswoman Diana DeGette (D-CO), Congresswoman Mariannette Miller-Meeks (R-IA), Congressman Gregory F. Murphy, M.D. (R-NC), and joined by Senator Kirsten Gillibrand (D-NY) and Senator Tom Cotton (R-AR), introduced the Living Donor Protection Act to protect the rights of living organ donors. This legislation would prohibit life, disability, and long-term care insurance companies from denying or limiting coverage and from charging higher premiums for living organ donors; It would amend the Family and Medical Leave Act of 1993 [...]

Dialysis Patient Citizens Applauds Kentucky Legislation Expanding Medigap Access

2023-04-18T17:01:11+00:00April 6th, 2023|Categories: Medigap Coverage, News, Press Release, State Advocacy|

WASHINGTON, D.C. (April 6, 2023) -- Dialysis Patient Citizens (DPC) today applauds the signing of Kentucky bill HB 345, which will ensure access to Medicare Supplement – also called Medigap -- coverage for Kentuckians under 65 living with End-Stage Renal Disease (ESRD) or Amyotrophic Lateral Sclerosis (ALS). This bill received resounding bipartisan support in both the Kentucky Senate, where it passed on a 37-0 vote, and in the Kentucky House of Representatives, which passed the measure on a 91-1 vote. HB 345, which was introduced by Representative Kimberly Poore Moser (R-District 64), allows Commonwealth residents under 65 to acquire affordable Medigap plans to supplement their Medicare coverage. In [...]

DPC State Advocacy – March 2023 Update

2023-03-29T16:43:49+00:00March 27th, 2023|Categories: Access to Transplant, Article, Get Involved, Medigap Coverage, Patient Ambassadors, State Advocacy, Transplant Donor Protection|

It has been a busy and productive legislative session for DPC’s state advocacy efforts. Bills impacting dialysis patients have been introduced in multiple state legislatures and in most cases have moved quickly through the legislative process. Improving access to Medigap coverage is a top priority for DPC, and we are thrilled that several states are working to improve Medigap access. Just last week, DPC celebrated Governor Glenn Youngkin's (R) signing of Virginia bills SB 1409 and HB 1640 into law, guaranteeing access to affordable Medigap coverage for thousands of Virginians under 65 living with end-stage renal disease (ESRD). In Kentucky, Medigap [...]

Dialysis Patient Citizens Celebrates Virginia Legislation Guaranteeing Medigap Access

2023-03-27T20:09:32+00:00March 24th, 2023|Categories: Medigap Coverage, Press Release, Promote Financial Security, State Advocacy|

WASHINGTON, D.C. (March 24, 2023) -- Dialysis Patient Citizens (DPC) today celebrates Governor Glenn Youngkin’s (R) signing of Virginia bills SB 1409 and HB 1640 into law, guaranteeing access to affordable Medigap coverage for thousands of Virginians under 65 living with end-stage renal disease (ESRD). Each of these bills, which contain identical language and were passed with nearly unanimous support in both the Virginia Senate and House of Delegates, were spearheaded by House Majority Leader Terry Kilgore (R-1) and Senator George Barker (D-39). These pieces of legislation come with no fiscal impact to the Commonwealth, and are only estimated to have [...]

2023 State Advocacy Kick-Off

2023-01-26T14:35:32+00:00January 25th, 2023|Categories: Article, Medigap Coverage, News, State Advocacy, Transplant Donor Protection|

It’s been a busy start in 2023 for DPC’s state advocacy efforts. Bills impacting dialysis patients are being introduced in multiple state legislatures and moving quickly through the legislative process. Legislation to expand Medigap access has already been introduced in Hawaii, Indiana, Kentucky, Nebraska, and Virginia. Improving Medigap access is a top policy priority for DPC, and we are pleased that multiple states are considering how they can expand access to Medigap plans, particularly in states that have limited or no access to Medigap for the under-age 65 End State Renal Disease (ESRD) population. Hearings are scheduled in the coming days [...]

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