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Action Alert – Support Care Coordination for Dialysis Patients

2020-09-17T15:24:22+00:00September 17th, 2020|Categories: Article, Care Coordination, Take Action|

The BETTER Kidney Care Act (H.R. 8254/S. 4574) was recently introduced by Senators Young (R-IN) and Sinema (D-AZ), along with Representatives Blumenauer (D-OR) and Smith (R-MO). This bill would enhance access to care coordination services for thousands of patients across the United States currently living with End-Stage Renal Disease (ESRD). It could also help with services not covered by Medicare such as dental care and transportation. Coordinated care is essential for improving the overall care and health of ESRD patients. Specifically, better care coordination could mean help for patients with: scheduling doctors’ appointments, reviewing their medication regime, dealing with dialysis [...]

Action Alert – Provide ALL Dialysis Patients with Access to Medigap

2020-09-10T16:19:29+00:00September 9th, 2020|Categories: Article, Medigap Coverage, Take Action|

Jack Reynolds The Jack Reynolds Memorial Medigap Expansion Act (H.R. 8181) was recently introduced by U.S. Representative Cynthia Axne (D-IA) in honor of DPC founding Board member and our longest serving president Jack Reynolds. This bill would require Medigap plans to offer coverage to all End-Stage Renal Disease (ESRD) Medicare beneficiaries regardless of age. Without supplemental insurance like Medigap, Medicare patients bear significant out-of-pocket expenses for physician visits, hospital admissions, and other services they need to stay alive. Medicare has no out-of-pocket limit, unlike private insurance, and because ESRD patients under age 65 do not have access to [...]

Mark Your Calendar for our September Patient Ambassador Call

2020-08-25T15:45:57+00:00August 25th, 2020|Categories: Article, Patient Ambassadors, Take Action|

Please join us early next month for our next Patient Ambassador call: Engaging with Elected Officials on Social Media During a Pandemic. Learn tips about what you can do to elevate your voice online. Please RSVP to let us know you can attend the call. Call Details are below: Date: Thursday, September 3, 2020 Time: 2:00 PM ET, 1:00 PM CT, 12:00 PM MT, 11:00 AM PT Follow these instructions at the time of the call: Call: 1-877-399-5186 Enter Meeting Code: 269 743 2061 Join Online (optional): https://dialysispatients.adobeconnect.com/advocacy/ Thank you for helping to improve the quality of life for dialysis patients [...]

Scientists Report Favorable Findings for Peritoneal Dialysis Patients

2020-08-25T15:27:37+00:00August 19th, 2020|Categories: Article, Treatment Options|

Researchers found a 48 percent decrease in mortality and a 13 percent decrease in transition to in-center hemodialysis among peritoneal dialysis (PD) patients over time. The positive findings were most prevalent for patients in urban and larger PD program (25+ patients) settings. With COVID-19 cases and hospitalizations increasing among people with End-Stage Renal Disease (ESRD), these findings may be reassuring for people interested in trying an alternative home dialysis treatment amid the global pandemic. Whether or not peritoneal dialysis is an appealing or viable treatment option, patients should choose the modality that works best for them. Read more about the study.

DPC’s 2020 Annual Membership Survey is Live!

2020-08-10T14:19:35+00:00August 6th, 2020|Categories: 5-Star Ratings, Access to Transplant, Article, Care Coordination, Charitable Premium Assistance, Dental Coverage, Dialysis Funding, Get Involved, Immunosuppressive Drug Coverage, Innovation, Medicaid, Medicare Advantage, Medigap Coverage, Quality Incentive Program, Take Action, Transplant Donor Protection, Transportation Services, Treatment Options|Tags: |

Elevate the Voice of Patients with Kidney Disease and Their Caregivers Our 2020 Annual Membership Survey is live, and it will remain open until Friday, August 21. We are counting on your participation, as patient feedback helps to shape our public policy agenda and patient education priorities for the next year. This year we ask that both patients and caregivers take our survey. Rest assured your responses will remain completely anonymous. We only share the overall survey results with state and federal level policy makers, so they will better understand your needs, experiences, and preferences. Your feedback is crucial. Therefore, we will [...]

Action Alert – Help us Increase Patient Access to Immunosuppressive Medications

2020-07-28T16:29:34+00:00July 28th, 2020|Categories: Article, Immunosuppressive Drug Coverage, Medicare Advantage, News, Take Action|

The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act (H.R. 5534, S. 3353) is gaining momentum in Congress, and we need your help continuing to get the word out. This bill was introduced by Representatives Ron Kind (D-WI) and Michael Burgess (R-TX), as well as Senator Bill Cassidy (R-LA). This legislation would extend Medicare coverage of immunosuppressive drugs beyond the current limit of 36 months for patients who are unable to obtain health insurance coverage elsewhere. Immunosuppressive medications play a critical role in preventing transplant recipients from rejecting a donor kidney. Right now, after dialysis patients receive a transplant, [...]

Medicare Removes Important Protection for Dialysis Patients in Managed Care Plans

2020-05-26T18:43:33+00:00May 26th, 2020|Categories: Article, Medicare Advantage, Treatment Options|

The Centers for Medicare & Medicaid Services (CMS) last week issued a regulation for Medicare Advantage (MA) plans that eliminates time and distance limits from network adequacy requirements for dialysis facilities. Network adequacy requirements for health plans ensure that patients can have access to all necessary providers with reasonable promptness. Time and distance limits prescribe a maximum driving time or distance in miles that a consumer must travel to get to a doctor or facility. The limits are higher in rural areas. CMS replaced the time and distance limits with another standard, a network “consistent with the prevailing community pattern [...]

Visit the New Kidney Care Matters Site to Find Out What You Can do to Help Dialysis Patients

2020-07-28T14:40:11+00:00May 22nd, 2020|Categories: Article, Care Coordination, Policy Issues|

Dialysis Patient Citizens is excited to announce that the new Kidney Care Matters website is live. This initiative, led by DPC, is focused on promoting better kidney care through care coordination for people with End-Stage Renal Disease. Coordinated care means that all health care providers serving a patient share information with each other in a timely manner about the patient’s health, treatments prescribed, and care delivered. Well-structured care coordination has the potential to provide a more focused, dedicated care management approach that would streamline care, improve health outcomes and reduce healthcare costs. Kidney Care Matters is dedicated to providing patients [...]

Patient Advocates Raising Awareness Through Letters to the Editor

2020-07-28T14:55:21+00:00May 20th, 2020|Categories: Advance Patient Choice, Article, Care Coordination, Press|

Dialysis Patient Citizens takes great pride in the work that our patient ambassadors are doing each and every day in their communities and local dialysis facilities. Through providing additional education and access to resources for fellow dialysis patients, they help to make a difference in the lives of patients and encourage them to be their own advocates. One of the ways our ambassadors are making their voices heard are through letters to the editor, where they write and submit a letter to the editor to his/her local newspaper about a kidney disease issue and/or the importance of advocating for better [...]

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