Dialysis Patient Citizens Files Lawsuit Against HHS Secretary Alex Azar and CMS Administrator Seema Verma Over New Regulation That Undercuts Dialysis Patient Access to Affordable, High-Quality Care

2020-06-22T20:14:13+00:00June 22nd, 2020|Categories: Care Coordination, Medicare Advantage, News, Press Release|

WASHINGTON, D.C., (June 22, 2020) -- Today, Dialysis Patient Citizens (DPC) filed suit in the United States District Court for the District of Columbia against Health and Human Services Secretary Alex Azar, Centers for Medicare and Medicaid Services Administrator Seema Verma, the U.S. Department of Health and Human Services, and the Centers for Medicare and Medicaid Services in opposition to a discriminatory new federal regulation that will limit the ability of hundreds of thousands of End-Stage Renal Disease (ESRD) patients to access affordable, high quality treatment. “ESRD patients successfully fought to get Congress to pass bipartisan legislation that would ensure they [...]

Medicare Removes Important Protection for Dialysis Patients in Managed Care Plans

2020-05-26T18:43:33+00:00May 26th, 2020|Categories: Article, Medicare Advantage, Treatment Options|

The Centers for Medicare & Medicaid Services (CMS) last week issued a regulation for Medicare Advantage (MA) plans that eliminates time and distance limits from network adequacy requirements for dialysis facilities. Network adequacy requirements for health plans ensure that patients can have access to all necessary providers with reasonable promptness. Time and distance limits prescribe a maximum driving time or distance in miles that a consumer must travel to get to a doctor or facility. The limits are higher in rural areas. CMS replaced the time and distance limits with another standard, a network “consistent with the prevailing community pattern [...]

Visit the New Kidney Care Matters Site to Find Out What You Can do to Help Dialysis Patients

2020-05-26T14:02:02+00:00May 22nd, 2020|Categories: Article, Care Coordination, Patient's Voice, Policy Issues|

Dialysis Patient Citizens is excited to announce that the new Kidney Care Matters website is live. This initiative, led by DPC, is focused on promoting better kidney care through care coordination for people with End-Stage Renal Disease. Coordinated care means that all health care providers serving a patient share information with each other in a timely manner about the patient’s health, treatments prescribed, and care delivered. Well-structured care coordination has the potential to provide a more focused, dedicated care management approach that would streamline care, improve health outcomes and reduce healthcare costs. Kidney Care Matters is dedicated to providing patients and [...]

Patient Advocates Raising Awareness Through Letters to the Editor

2020-05-26T14:59:07+00:00May 20th, 2020|Categories: Advance Patient Choice, Article, Care Coordination, Patient's Voice, Press|

Dialysis Patient Citizens takes great pride in the work that our patient ambassadors are doing each and every day in their communities and local dialysis facilities. Through providing additional education and access to resources for fellow dialysis patients, they help to make a difference in the lives of patients and encourage them to be their own advocates. One of the ways our ambassadors are making their voices heard are through letters to the editor, where they write and submit a letter to the editor to his/her local newspaper about a kidney disease issue and/or the importance of advocating for better [...]

Sen. Grassley, Leaders in Dialysis Community Pay Tribute to the Late Jack Reynolds, Former DPC President and Founding Board Member

2020-05-14T17:24:43+00:00May 11th, 2020|Categories: News|

WASHINGTON, D.C., (May 14, 2020) -- Today, Dialysis Patients Citizens (DPC) released statements from U.S. Senator Chuck Grassley (R-IA) and leaders in the dialysis community in honor of the late Jack Reynolds, who served as former DPC president and a founding Board member. U.S. Senator Chuck Grassley (R-IA): “One of the privileges of public service is meeting Iowans like Jack Reynolds. A farm kid who nearly lost his life at age 4, Jack survived against the odds of a 100-gallon barrel of water crushing his abdomen. By age 22, his internal injuries led to renal failure. For more than 45 years, [...]

Another Dialysis Ballot Initiative Looming in California

2020-04-28T15:24:39+00:00April 28th, 2020|Categories: Article, News, Policy Issues, Treatment Options|

Last week, the Service Employees International Union (SEIU) and United Health Workers West (UHW) submitted petition signatures for a potential ballot initiative in November. If the signatures are approved, California voters will vote on measure to dramatically increase the cost of dialysis care. The same group backed a similar measure (Proposition 8) two years ago, which voters widely rejected. DPC opposes the current ballot initiative because it adds burdensome requirements intended to drive up the cost of care for dialysis patients. One provision, in particular, would require a nephrologist to be present at all times at the dialysis facility whenever patients [...]

ESRD Network – Your Resource for Access to Care

2020-04-27T16:40:23+00:00April 27th, 2020|Categories: Article, Improve Access to Care, Medicaid, Medicare Advantage, News, Transportation Services|

The Centers for Medicare & Medicaid Services (CMS), which is the federal Agency that oversees the Medicare program, recently reiterated its commitment to ensuring dialysis patient access to care during the current pandemic. They said that if any dialysis patients are having problems with transportation, that prevent you from getting to dialysis, they want to help. CMS also knows that your dialysis access is your lifeline, so if you have any complications with your fistula, graft or catheter and need help – that is why they created the End Stage Renal Disease (ESRD) Network Program – to help patients. So, while [...]

Sign the Petition to Support Integrated Care for Dialysis Patients

2020-04-28T16:33:41+00:00April 23rd, 2020|Categories: Improve Access to Care, Patient's Voice, Take Action|

We are pleased to report that Congress is working on draft legislation—known as the BETTER Kidney Care Act—to expand care coordination opportunities for dialysis patients. The COVID-19 pandemic has put the health of kidney disease patients at risk more than ever before, while also demonstrating the many challenges to ensuring their continuity of their care. Show your support for improving the lives of dialysis patients during this unprecedented time by signing our on-line petition to increase dialysis patient access to care coordination, then urge Congress to enact the BETTER Kidney Care Act. Sign the petition>> The Importance of Care Coordination [...]

Increasing State Policy Maker Outreach to Better Support our Members During COVID-19

2020-04-27T16:34:26+00:00April 21st, 2020|Categories: Advance Patient Choice, Article, Improve Access to Care, Increase Quality of Care, News|Tags: |

DPC works tirelessly on behalf of its patient members to elevate their voice and concerns to elected officials about policy issues that impact ESRD patients. As you know, DPC has expanded its state advocacy efforts over the past year and added two staff members who focus on state issues and government relations. So, how does an organization continue this level of engagement during a pandemic when state legislatures are recessed, and social distancing doesn’t allow face-to-face interactions? Moreover, most state governments are focused solely on fighting COVID-19 and not passing bills or expanding regulation unrelated to COVID-19. The COVID-19 crisis has [...]