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Action Alert – Increase Access to Care Coordination for Dialysis Patients

2020-11-17T15:24:10+00:00November 17th, 2020|Categories: Article, Care Coordination, Take Action|

The BETTER Kidney Care Act (H.R. 8254/S. 4574) is gaining support in Congress. The bill has 72 cosponsors in the House and three cosponsors in the Senate. Please help us get this bill passed by contacting your Members of Congress today. The BETTER Kidney Care Act (H.R. 8254/S. 4574) was introduced by Senators Young (R-IN) and Sinema (D-AZ), along with Representatives Blumenauer (D-OR) and Smith (R-MO). This bill would enhance access to care coordination services for thousands of patients across the United States currently living with End-Stage Renal Disease (ESRD). It could also help with services not covered by Medicare such as [...]

In Rejecting Prop 23, California Voters Protect Patient Access to Care

2020-11-17T15:31:32+00:00November 10th, 2020|Categories: Article, Dialysis Funding, Improve Access to Care, State Advocacy|

California voters overwhelmingly opposed Proposition 23, a statewide measure that threatened dialysis patient access to care. It was the second ballot measure in California proposed by a labor union in the last two years and the second resounding defeat for the union, and this time by an even wider margin than in 2018. DPC was part of a broad and diverse coalition that included other patient advocacy organizations, dialysis providers and caregivers, and groups representing physicians, nurses, veterans and social justice communities that opposed this harmful measure because it threatened patients’ access to care and would have increased overall health care costs without [...]

Dialysis Patient Citizens and Consumers’ Checkbook Introduce Dialysis Plan Choice To Help Patients During Open Enrollment

2020-11-02T20:06:26+00:00November 2nd, 2020|Categories: Advance Patient Choice, Care Coordination, Medicare Advantage, Press Release|

WASHINGTON, D.C., -- Dialysis Patient Citizens (DPC) today introduced Dialysis Plan Choice, a new online tool designed in collaboration with Consumers' Checkbook for dialysis patients to quickly and easily compare their current Medicare Fee-For-Service plan with the options available to them through Medicare Advantage now that Open Enrollment is underway. "For many dialysis patients, this year marks the first time they will be eligible to enroll in Medicare Advantage plans thanks to the passage of the 21st Century Cures Act in 2016," said DPC Board President Andrew Conkling. "Since this is new territory for many dialysis patients, we wanted to provide them with [...]

New Bill Would Help Struggling Dialysis Patients

2020-10-19T15:47:20+00:00September 30th, 2020|Categories: Care Coordination, Patient's Voice, Spotlight|

By Dortha Pugh-Thompson, DPC Patient Ambassador When my doctor told me I had kidney disease, I wasn’t aware of just how serious it was. Two years later, though, I passed out and woke up in the emergency room, where doctors said I was experiencing both kidney failure and heart failure. Shortly after, I started dialysis. Fortunately, I was able to do in-home dialysis and remain active in my community and my church. Now, even after receiving a transplant, I’ve found my calling as an advocate for dialysis patients, and I am passionate about helping others through their treatments. ​Over the [...]

DPC Hosts Successful Virtual Patient Advocacy Day

2020-09-22T14:56:29+00:00September 20th, 2020|Categories: Article, Care Coordination, Medigap Coverage, Take Action|

DPC patient activists and health care professionals from across the country met with Members of Congress and their legislative staff to advocate on behalf of dialysis patients during DPC’s Annual Advocacy Day on September 15, 2020. This was DPC's largest Annual Advocacy Day with representatives from 32 states and close to 200 virtual Congressional office meetings. It was also DPC's first virtual Advocacy Day due to the COVID-19 pandemic—all Congressional meetings were held via telephone. Advocates asked Congress to ensure all dialysis patients gain access to Medigap through passage of the Jack Reynolds Memorial Medigap Expansion Act. They also discussed the [...]

Action Alert – Support Care Coordination for Dialysis Patients

2020-09-30T15:02:28+00:00September 17th, 2020|Categories: Article, Care Coordination, Take Action|

The BETTER Kidney Care Act (H.R. 8254/S. 4574) was recently introduced by Senators Young (R-IN) and Sinema (D-AZ), along with Representatives Blumenauer (D-OR) and Smith (R-MO). This bill would enhance access to care coordination services for thousands of patients across the United States currently living with End-Stage Renal Disease (ESRD). It could also help with services not covered by Medicare such as dental care and transportation. Coordinated care is essential for improving the overall care and health of ESRD patients. Specifically, better care coordination could mean help for patients with: scheduling doctors’ appointments, reviewing their medication regime, dealing with dialysis [...]

Dialysis Patient Citizens Commends Introduction of the BETTER Kidney Care Act

2020-09-16T18:34:36+00:00September 16th, 2020|Categories: Care Coordination, Press Release|

WASHINGTON, D.C., (September 16, 2020) -- Dialysis Patient Citizens (DPC) today applauded introduction of the BETTER Kidney Care Act (H.R. 8254/S. 4574) by Senators Todd Young (R-IN) and Kyrsten Sinema (D-AZ) along with Representatives Earl Blumenauer (D-OR-3) and Jason Smith (R-MO-8). This bill would enhance access to care coordination services for thousands of patients across the United States currently living with End-Stage Renal Disease (ESRD). "We applaud Senators Young and Sinema along with Representatives Blumenauer and Smith for introducing the BETTER Kidney Care Act. We are grateful for their continued leadership and efforts to improve the lives of Americans who suffer from kidney disease," said DPC Board President [...]

DPC Comments on CMS Proposed ESRD Annual Payment Rule to Increase Dialysis Patient Quality Care

2020-09-22T15:12:47+00:00September 1st, 2020|Categories: Access to Transplant, Care Coordination, Comment Letter, Innovation, Medicaid, Medicare Advantage, Quality Incentive Program, Treatment Options|

Each year—typically during the summer—the Centers for Medicare and Medicaid Services (CMS) puts out rules for how they are going to pay for dialysis treatment. The rules reflect CMS’ latest policies, and organizations have the opportunity to provide feedback about the rules before they go into effect on January 1. DPC provided feedback to CMS regarding their End-Stage Renal Disease (ESRD) Annual Payment rule. DPC’s letter addresses the following important topics for improving ESRD patient care: Protect Access for Costlier Patients by Completing Reconsideration of Case-Mix Adjusters Protect Access for Patients in Disadvantaged Regions by Addressing Social Risk Factors Focus [...]

The Coronavirus Outbreak Puts Dialysis Patients At Risk

2020-08-25T16:16:23+00:00August 14th, 2020|Categories: Care Coordination, Patient's Voice, Spotlight|Tags: |

Jeff Needham turned his lifestyle around with diet and exercise after he was diagnosed with kidney disease. A true inspiration, Needham competed in two Olympic distance triathlon relays, as well as a three-day, 230-mile cycling ride, in support of a better health care system. In addition, Needham warns about the increased dangers of COVID-19 for dialysis patients and highlights the benefits of participating in a coordinated care pilot program.

DPC’s 2020 Annual Membership Survey is Live!

2020-08-10T14:19:35+00:00August 6th, 2020|Categories: 5-Star Ratings, Access to Transplant, Article, Care Coordination, Charitable Premium Assistance, Dental Coverage, Dialysis Funding, Get Involved, Immunosuppressive Drug Coverage, Innovation, Medicaid, Medicare Advantage, Medigap Coverage, Quality Incentive Program, Take Action, Transplant Donor Protection, Transportation Services, Treatment Options|Tags: |

Elevate the Voice of Patients with Kidney Disease and Their Caregivers Our 2020 Annual Membership Survey is live, and it will remain open until Friday, August 21. We are counting on your participation, as patient feedback helps to shape our public policy agenda and patient education priorities for the next year. This year we ask that both patients and caregivers take our survey. Rest assured your responses will remain completely anonymous. We only share the overall survey results with state and federal level policy makers, so they will better understand your needs, experiences, and preferences. Your feedback is crucial. Therefore, we will [...]

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