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LETTER TO THE EDITOR: Medigap Bill A Welcome Change for Mississippi Dialysis Patients

2022-06-30T12:20:11+00:00June 27th, 2022|Categories: Featured Spotlight, Patient Ambassadors, Patient Stories in the News, Spotlight|

Kristal pictured with her husband, Ernest Higgins. Photo by Cameron B. Potts My kidney transplant failing in 2017 changed my life. I went back on dialysis for the first time since 2012 and was spending more time in the hospital than I had before. Then, I lost my job and the insurance coverage it provided, and I had to go back on Medicare, which didn’t cover the whole cost of dialysis and forced me to pay up to 20 percent of the cost of my treatments. I’m not alone, either. Dialysis patients all over the country struggle to [...]

DPC Hosts Successful 2022 Congressional Advocacy Day

2022-05-24T18:57:59+00:00May 13th, 2022|Categories: Advance Patient Choice, Get Involved, Improve Access to Care, Medigap Coverage, Patient's Voice, Promote Financial Security|

On Thursday, May 12th, DPC hosted its’ annual Advocacy Day when we connect patients, family members, and Partners in Care with their Members of Congress so they can tell their story with dialysis and advocate for legislative priorities that would help them. Once again, out of an abundance of caution, our advocacy day was virtual, but we were still able to have wonderful participation. This year we had 113 participants who participated in 113 meetings and represented 29 states. They talked with their Congressional offices about The Jack Reynolds Memorial Medigap Expansion Act which would give all ESRD patients access to [...]

Dialysis patients under 65 face major cost hurdle

2022-05-24T14:57:15+00:00May 3rd, 2022|Categories: Patient Ambassadors, Patient Stories in the News, Spotlight|

Starting dialysis felt like being swooped into a cage with no warning. At the height of quarantine during the COVID-19 pandemic, I found out the chemotherapy treatments for my breast cancer had contributed to my kidneys failing and I needed to start on dialysis immediately. The next two weeks were a lonely and frightening experience, and I wouldn’t have survived without my medical team’s quick work and my family’s support. After those initial two weeks in the hospital, I spent three months going through four-hour dialysis treatments three times each week. Something that didn’t pose as big an issue for [...]

Support S 2194

2022-04-26T20:20:41+00:00March 28th, 2022|Categories: Patient Ambassadors, Patient Stories in the News, Spotlight|

March 28, 2022 The Honorable Joshua Miller, Chair The Honorable Bridgett G. Valverde, Vice Chair The Honorable Valarie J. Lawson, Secretary Members, Senate Health and Human Services Committee Rhode Island General Assembly RE: Support S 2194 Dear Chair Miller, Vice Chair Valverde, Secretary Lawson, Members of the Committee: As a kidney dialysis patient residing in Woonsocket, a volunteer Patient Ambassador of Dialysis Patient Citizens and on behalf of the more than 1,800(i) fellow Rhode Island residents with End State Renal Disease (ESRD), I write to ask your support of S 2194, which will provide access to fair and equitable Medicare [...]

HB 430 – Letter of Support

2022-03-08T15:54:59+00:00February 28th, 2022|Categories: Patient Ambassadors, Patient Stories in the News, Spotlight|

February 28, 2022 The Honorable Bart Rowland, Chair The Honorable Derek Lewis, Vice Chair House Banking & Insurance Committee Kentucky General Assembly 700 Capitol Avenue Frankfort, KY 40601 RE: HB 430 - SUPPORT Dear Chair Rowland, Vice Chair Lewis and Members of the Committee: My name is James O. “Hap” Strunk. I am a resident of Whitley City, serve as Chairman of the Kentucky Board of Embalmers & Funeral Directors, and also one of the more than 9,000 (i) Kentuckians with End Stage Renal Disease (ESRD). From my volunteer role as a Patient Ambassador for Dialysis Patient Citizens, I write [...]

Dialysis patients need support from lawmakers

2022-02-04T18:00:29+00:00October 8th, 2021|Categories: Patient Stories in the News, Spotlight|

Dear Editor:   This December marks three years in my battle with kidney disease. My kidney failure diagnosis was hard to pin down, and without my husband, I am not sure I would still be here. My diagnosis came with a lot of things you’d expect: many hours spent in doctors’ offices and at dialysis treatment centers. What I didn’t know is that this diagnosis would also eventually put me in the hospital, with medical bills racking up the entire time  Of course, dialysis alone is expensive, especially when patients must pay for any costs that Medicare doesn’t cover. And, for many dialysis [...]

DPC Advocates Take Congress by Web Storm

2021-09-30T16:44:14+00:00September 21st, 2021|Categories: Article, Care Coordination, Get Involved, Improve Access to Care, Medigap Coverage, News, Patient Ambassadors, Policy Issues, Promote Financial Security, State Advocacy|

DPC held its annual Congressional Advocacy Day on September 21st, which was another great success! More than a hundred and fifty DPC Patient Ambassadors, Board members, staff and dialysis partners participated in nearly 200 Congressional meetings throughout the day to lobby on two important federal bills that would provide greater financial security and improve the quality of life for dialysis patients: The Jack Reynolds Memorial Medigap Expansion Act (H.R. 1676) would expand guaranteed issue rights to Medicare supplemental health insurance policies, known as Medigap, to all End Stage Renal Disease (ESRD) patients under age 65 in every state. Access to [...]

Legislations would provide help for dialysis patients

2022-05-24T14:50:22+00:00September 8th, 2021|Categories: Patient Stories in the News, Spotlight|

I’ve lived on dialysis for 22 years, but there was a time when my kidney disease almost took my life. Through dialysis and a failed kidney transplant, though, I’ve done my best to stay upbeat and am excited to get another transplant kidney soon, hopefully. While it’s been a tough road, I’ve at least had the coverage I need to pay for my treatments. A lot of patients I’ve met only have Medicare, which doesn’t always cover their treatments and medications. Instead, they have to pay out-of-pocket costs as high as 20% of the cost of their treatments. Congress can [...]

Letter: Bill can ease costs

2021-11-01T15:26:48+00:00September 8th, 2021|Categories: Patient Stories in the News, Spotlight|

Starting dialysis 12 years ago at 28 completely changed my life. I had to begin going to a clinic for the hours-long treatments that dialysis involves, and the treatments, as well as their effects, forced me to end my career as an EMT. It was a difficult adjustment to make, but I’ve at least been fortunate enough to have supplemental insurance coverage through my wife’s work that helps to cover the cost of my treatments. Without that additional coverage, we’d have to find a way to make up for the 20 percent of the cost Medicare doesn’t pay for. Under [...]

Letter to the Editor: Kidney disease patients are in need of new Medigap Expansion bill

2021-09-01T17:07:36+00:00July 28th, 2021|Categories: Patient Ambassadors, Patient Stories in the News|

As a kid, I remember watching my dad receive his dialysis treatments at home. Kidney disease runs in my family, and tragically it has taken not only my dad’s life, but many others in my family before their time. I received my own kidney disease diagnosis almost 20 years ago. Medical costs are rising and continue to rise for kidney patients, and it is a challenge to overcome the obstacles of what insurance does not cover. However, Medicare doesn’t always cover the cost of care for kidney disease patients under the age of 65, and many people can’t afford to pay [...]

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