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Letter to the Editor: Kidney disease patients are in need of new Medigap Expansion bill

2021-09-01T17:07:36+00:00July 28th, 2021|Categories: Patient Ambassadors, Patient Stories in the News|

As a kid, I remember watching my dad receive his dialysis treatments at home. Kidney disease runs in my family, and tragically it has taken not only my dad’s life, but many others in my family before their time. I received my own kidney disease diagnosis almost 20 years ago. Medical costs are rising and continue to rise for kidney patients, and it is a challenge to overcome the obstacles of what insurance does not cover. However, Medicare doesn’t always cover the cost of care for kidney disease patients under the age of 65, and many people can’t afford to pay [...]

Expanding Medigap coverage

2021-09-01T17:14:16+00:00June 21st, 2021|Categories: Patient Ambassadors, Patient Stories in the News, Spotlight|

I first started dialysis just over 20 years ago, and in that time I’ve done both home and in-center dialysis treatments in addition to receiving two kidney transplants. Along the way, I’ve been fortunate enough to have good coverage that kept my treatments affordable. As I’ve met other dialysis patients, I’ve realized just how rare that is. Many people with kidney disease receive their coverage through Medicare and if they are under 65, they can get hit with big bills that they have to pay out-of-pocket if Medicare doesn’t cover the whole cost of their treatment. No one should have [...]

Former firefighter advocates for fellow renal failure patients

2021-07-12T19:31:03+00:00June 8th, 2021|Categories: Patient Stories in the News, Spotlight|

Former firefighter Terry Peeler of Livingston has released a statement urging Alabama lawmakers to support new bipartisan legislation that offers coverage for dialysis patients. Peeler’s career as a firefighter ended when he was diagnosed with kidney failure. “Starting dialysis in 2016 was unbelievably difficult,” Peeler said. “It brought my career as a firefighter to a sudden halt, and meant I needed to make a 72-mile round trip three times every week to undergo a procedure that takes five hours.” “I was fortunate, though, because the cost was not prohibitive for me,” Peeler explained. “My job provided me with good insurance [...]

Opinion | Letter: Pass Kidney-care Bill

2021-06-03T16:31:14+00:00June 1st, 2021|Categories: Care Coordination, Patient Ambassadors, Patient's Voice, Spotlight|

By Kristi Flynn of Grovetown, GA I have struggled with kidney disease my entire life. I was diagnosed when I was 7, then started dialysis at 25 before finally receiving a kidney transplant in 2018. Throughout all of this, the role of coordinating care has fallen completely on me, a task I find particularly difficult because I am legally blind. Even within my transplant center, doctors can’t always communicate, and even more frustrating, occasionally change each other’s plans without consulting each other. With a more streamlined approach to care coordination, a lot of these problems could be relieved. Thankfully, Congress is [...]

Letters: Action Needed to Help Alabama Dialysis Patients

2021-05-06T19:06:29+00:00May 1st, 2021|Categories: Care Coordination, Patient Ambassadors, Patient's Voice, Spotlight|

By Cortney Beavers of Pell City, AL. One of the most difficult moments of my life was finding out that, despite being only 24 years old, my kidney was beginning to fail. After years of dialysis and a kidney transplant, I learned through my experiences in the health care system what needs to be improved. Doctors and nurses need a better care coordination framework to more effectively treat their patients. I had the benefit of working with terrific nurses and other providers who met my needs and communicated well between one another, but unfortunately that’s not the case for every [...]

Support New Kidney Care Act

2021-04-06T18:02:04+00:00April 1st, 2021|Categories: Care Coordination, Patient Ambassadors, Patient's Voice, Spotlight|

By Antonio Green of Virginia Beach, VA. While working in Abu Dhabi, I found out I had kidney disease and needed to begin dialysis. I was able to continue working abroad for a few more years, but a 2017 trip to the hospital showed me it was time to move back home. Since then, I’ve noticed that a better, more coordinated system is needed to help dialysis patients. Even when I had a care coordinator, I found the system never really worked for me. Whether it was managing medications, doctors’ appointments or even my attempts to get a kidney transplant, [...]

DPC’s Annual Advocacy Day Application is Now Open! Apply by April 9, 2021

2021-03-23T17:06:29+00:00March 19th, 2021|Categories: Article, Get Involved, Take Action|

Each year Dialysis Patient Citizens is pleased to bring kidney patients and transplant recipients to Washington, D.C. to meet with their legislators and talk about issues that affect their quality of care. Due to the ongoing pandemic and out of abundance of safety for our patients, this year we will be hosting our fly-in virtually on September 21st, with two opportunities of training beforehand. Participants will be selected based on the quality of their application, legislative priorities, and previous involvement in DPC's advocacy efforts. Next year when we are hopefully able to resume an in person fly-in, previous participation will also [...]

Dori Wolf: Kidney Care

2021-03-25T16:52:00+00:00March 8th, 2021|Categories: Care Coordination, Patient's Voice, Spotlight|

By Dori Wolf of Woodland, CA, DPC Patient Ambassador Finding out I had kidney disease in 1984 forced me to change a lot in my life. Thankfully, due to my work to stay healthy, I was able to avoid needing dialysis until 2007. Starting dialysis was a draining experience that required drastic changes to my diet and exercise habits, despite constantly feeling unwell. However, with the support of my family, I’ve been able to follow doctors’ advice and keep up with treatments. A major frustration, however, has been a lack of coordination in my care. I have 32 allergies to [...]

DPC Advocates Advance Dialysis Patient Issues at the State Level

2021-02-25T14:12:53+00:00February 19th, 2021|Categories: Advance Patient Choice, Medigap Coverage, Patient Ambassadors, Patient's Voice, State Advocacy, Transplant Donor Protection|

Despite the ongoing pandemic and economic crisis, many state legislators recognize the added challenges faced by dialysis patients every day. Some have responded by introducing legislation to increased dialysis patient access to Medigap plans to help patients cover their 20% coinsurance expenses. Others are working to advance legislation to help increase the pool of living kidney donors. DPC would like to recognize some of the patient leaders who are elevating the patient voice by educating state legislators on the importance of these efforts. DPC Board Members Adrian Miller and Pius Charles Murray are pressing for passage of critical legislation in their [...]

The BETTER Kidney Care Act is an important step forward

2021-02-19T12:59:07+00:00February 19th, 2021|Categories: Care Coordination, Patient's Voice, Spotlight|

By Bryce Mumford, DPC Patient Ambassador My experience with dialysis extends four years: from when my first kidney transplant failed in 2014 to when I received my second transplant in 2018. During that time, the most frustrating thing I encountered was a lack of care coordination. I bounced between several doctors who treated my various health issues independently. Every doctor’s visit required me to provide my full medical history, which was time-consuming and labor-intensive. This was a burdensome task while still working a full-time job to support my family. However, my treatment center began implementing greater care coordination. This meant [...]

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