The BETTER Kidney Care Act (H.R. 8254/S. 4574) was recently introduced by Senators Young (R-IN) and Sinema (D-AZ), along with Representatives Blumenauer (D-OR) and Smith (R-MO). This bill would enhance access to care coordination services for thousands of patients across the United States currently living with End-Stage Renal Disease (ESRD). It could also help with services not covered by Medicare such as dental care and transportation. Coordinated care is essential for improving the overall care and health of ESRD patients. Specifically, better care coordination could mean help for patients with: scheduling doctors’ appointments, reviewing their medication regime, dealing with dialysis [...]
WASHINGTON, D.C., (September 16, 2020) -- Dialysis Patient Citizens (DPC) today applauded introduction of the BETTER Kidney Care Act (H.R. 8254/S. 4574) by Senators Todd Young (R-IN) and Kyrsten Sinema (D-AZ) along with Representatives Earl Blumenauer (D-OR-3) and Jason Smith (R-MO-8). This bill would enhance access to care coordination services for thousands of patients across the United States currently living with End-Stage Renal Disease (ESRD). "We applaud Senators Young and Sinema along with Representatives Blumenauer and Smith for introducing the BETTER Kidney Care Act. We are grateful for their continued leadership and efforts to improve the lives of Americans who suffer from kidney disease," said DPC Board President [...]
Jack Reynolds The Jack Reynolds Memorial Medigap Expansion Act (H.R. 8181) was recently introduced by U.S. Representative Cynthia Axne (D-IA) in honor of DPC founding Board member and our longest serving president Jack Reynolds. This bill would require Medigap plans to offer coverage to all End-Stage Renal Disease (ESRD) Medicare beneficiaries regardless of age. Without supplemental insurance like Medigap, Medicare patients bear significant out-of-pocket expenses for physician visits, hospital admissions, and other services they need to stay alive. Medicare has no out-of-pocket limit, unlike private insurance, and because ESRD patients under age 65 do not have access to [...]
Jack Reynolds WASHINGTON, D.C., (September 8, 2020) -- Dialysis Patients Citizens (DPC) today applauded the introduction of the Jack Reynolds Memorial Medigap Expansion Act, new legislation sponsored by U.S. Representative Cynthia Axne (D-IA-3) in honor of founding DPC Board member and longest serving president Jack Reynolds. This bill would expand Medigap coverage for End-Stage Renal Disease (ESRD) patients under the age of 65. “My top priorities in Congress have been to protect those living with pre-existing conditions and making health care accessible for those in need of treatment,” Rep. Axne said. “For someone like Jack who had kidney [...]
Researchers found a 48 percent decrease in mortality and a 13 percent decrease in transition to in-center hemodialysis among peritoneal dialysis (PD) patients over time. The positive findings were most prevalent for patients in urban and larger PD program (25+ patients) settings. With COVID-19 cases and hospitalizations increasing among people with End-Stage Renal Disease (ESRD), these findings may be reassuring for people interested in trying an alternative home dialysis treatment amid the global pandemic. Whether or not peritoneal dialysis is an appealing or viable treatment option, patients should choose the modality that works best for them. Read more about the study.
Jeff Needham turned his lifestyle around with diet and exercise after he was diagnosed with kidney disease. A true inspiration, Needham competed in two Olympic distance triathlon relays, as well as a three-day, 230-mile cycling ride, in support of a better health care system. In addition, Needham warns about the increased dangers of COVID-19 for dialysis patients and highlights the benefits of participating in a coordinated care pilot program.
Elevate the Voice of Patients with Kidney Disease and Their Caregivers Our 2020 Annual Membership Survey is live, and it will remain open until Friday, August 21. We are counting on your participation, as patient feedback helps to shape our public policy agenda and patient education priorities for the next year. This year we ask that both patients and caregivers take our survey. Rest assured your responses will remain completely anonymous. We only share the overall survey results with state and federal level policy makers, so they will better understand your needs, experiences, and preferences. Your feedback is crucial. Therefore, we will [...]
The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act (H.R. 5534, S. 3353) is gaining momentum in Congress, and we need your help continuing to get the word out. This bill was introduced by Representatives Ron Kind (D-WI) and Michael Burgess (R-TX), as well as Senator Bill Cassidy (R-LA). This legislation would extend Medicare coverage of immunosuppressive drugs beyond the current limit of 36 months for patients who are unable to obtain health insurance coverage elsewhere. Immunosuppressive medications play a critical role in preventing transplant recipients from rejecting a donor kidney. Right now, after dialysis patients receive a transplant, [...]
Our nation recently lost one of its most iconic and stalwart champions for justice in Congressman John Lewis. He dedicated his life to fighting for civil rights and social justice for all Americans, and his legacy will forever be remembered. Congressman Lewis was also one of the kidney community’s most consistent, trustworthy, and respected allies, and we join the nation in mourning his passing. Throughout his more than three decades in the U.S. House of Representatives, Congressman Lewis was a champion for patients with End-Stage Renal Disease (ESRD) and worked with them to increase access to treatment. Specifically, he repeatedly introduced the Chronic Kidney Disease [...]
Gloria Rohrer lost a leg after needing multiple surgeries when her kidney transplant failed. Rohrer later lost her eyesight in one eye while vacationing in Florida, which could have been avoided with proper care coordination. She could have shut down and become angry with the world, instead Rohrer became a stalwart advocate for patient access to care coordination services, so that others can avoid similar complications.