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Action Alert – Increase Access to Care Coordination for Dialysis Patients

2020-11-17T15:24:10+00:00November 17th, 2020|Categories: Article, Care Coordination, Take Action|

The BETTER Kidney Care Act (H.R. 8254/S. 4574) is gaining support in Congress. The bill has 72 cosponsors in the House and three cosponsors in the Senate. Please help us get this bill passed by contacting your Members of Congress today. The BETTER Kidney Care Act (H.R. 8254/S. 4574) was introduced by Senators Young (R-IN) and Sinema (D-AZ), along with Representatives Blumenauer (D-OR) and Smith (R-MO). This bill would enhance access to care coordination services for thousands of patients across the United States currently living with End-Stage Renal Disease (ESRD). It could also help with services not covered by Medicare such as [...]

In Rejecting Prop 23, California Voters Protect Patient Access to Care

2020-11-17T15:31:32+00:00November 10th, 2020|Categories: Article, Dialysis Funding, Improve Access to Care, State Advocacy|

California voters overwhelmingly opposed Proposition 23, a statewide measure that threatened dialysis patient access to care. It was the second ballot measure in California proposed by a labor union in the last two years and the second resounding defeat for the union, and this time by an even wider margin than in 2018. DPC was part of a broad and diverse coalition that included other patient advocacy organizations, dialysis providers and caregivers, and groups representing physicians, nurses, veterans and social justice communities that opposed this harmful measure because it threatened patients’ access to care and would have increased overall health care costs without [...]

Dialysis Patient Citizens and Consumers’ Checkbook Introduce Dialysis Plan Choice To Help Patients During Open Enrollment

2020-11-02T20:06:26+00:00November 2nd, 2020|Categories: Advance Patient Choice, Care Coordination, Medicare Advantage, Press Release|

WASHINGTON, D.C., -- Dialysis Patient Citizens (DPC) today introduced Dialysis Plan Choice, a new online tool designed in collaboration with Consumers' Checkbook for dialysis patients to quickly and easily compare their current Medicare Fee-For-Service plan with the options available to them through Medicare Advantage now that Open Enrollment is underway. "For many dialysis patients, this year marks the first time they will be eligible to enroll in Medicare Advantage plans thanks to the passage of the 21st Century Cures Act in 2016," said DPC Board President Andrew Conkling. "Since this is new territory for many dialysis patients, we wanted to provide them with [...]

DPC Opposes California Prop 23 which Threatens Patient Access to Care

2020-10-20T17:47:12+00:00October 19th, 2020|Categories: Article, State Advocacy|

Voting is already underway in several states, including California which has a statewide ballot initiative concerning dialysis patients. Proposition 23, as it is known, is another proposed ballot initiative by a labor union following a similar ballot dispute in 2018, which was defeated by a wide voter margin.  Rather than focus on profit-caps again, this initiative would impose stricter regulations on dialysis clinics. Prop 23 would require a licensed physician (or a nurse practitioner or physician assistant, if an exemption is granted because of the ongoing physician shortage) to be on-site at dialysis clinics whenever patients are dialyzing. It would [...]

Action Alert – Secure Kidney Patient Access to Immunosuppressive Medications

2020-10-19T20:44:19+00:00October 5th, 2020|Categories: Article, Immunosuppressive Drug Coverage, Take Action|

The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act (H.R. 5534, S. 3353) is gaining momentum in Congress. The bill was voted out of the Energy and Commerce Committee, and has over 100 cosponsors in the House and over 20 cosponsors in the Senate. We need you to help us press for passage by contacting your Members of Congress today. This bill was introduced by Representatives Ron Kind (D-WI) and Michael Burgess (R-TX), as well as Senators Bill Cassidy (R-LA) and Dick Durbin (D-IL). This legislation would extend Medicare coverage of immunosuppressive drugs beyond the current limit of 36 [...]

New Bill Would Help Struggling Dialysis Patients

2020-10-19T15:47:20+00:00September 30th, 2020|Categories: Care Coordination, Patient's Voice, Spotlight|

By Dortha Pugh-Thompson, DPC Patient Ambassador When my doctor told me I had kidney disease, I wasn’t aware of just how serious it was. Two years later, though, I passed out and woke up in the emergency room, where doctors said I was experiencing both kidney failure and heart failure. Shortly after, I started dialysis. Fortunately, I was able to do in-home dialysis and remain active in my community and my church. Now, even after receiving a transplant, I’ve found my calling as an advocate for dialysis patients, and I am passionate about helping others through their treatments. ​Over the [...]

CMS Announces Penalties and Rewards for Promoting Home Dialysis and Transplants

2020-09-22T14:49:34+00:00September 22nd, 2020|Categories: Access to Transplant, Article, Dialysis Funding, Transplant Donor Protection, Treatment Options|

On September 18, the Centers for Medicare & Medicaid Services (CMS) announced it finalized the End-Stage Renal Disease Treatment Choices (ETC) Model. The ETC Model was a cornerstone of President Trump’s Advancing Kidney Health Executive Order in 2019. It encourages an increased use of home dialysis and kidney transplants in approximately 30 percent of dialysis facilities and nephrology practices and will be implemented on January 1, 2021. CMS estimated reduced expenditures of $23 million over five and a half years, anticipating that providers assigned to the program will be penalized for not meeting standards. DPC and many other kidney groups opposed this [...]

DPC Hosts Successful Virtual Patient Advocacy Day

2020-09-22T14:56:29+00:00September 20th, 2020|Categories: Article, Care Coordination, Medigap Coverage, Take Action|

DPC patient activists and health care professionals from across the country met with Members of Congress and their legislative staff to advocate on behalf of dialysis patients during DPC’s Annual Advocacy Day on September 15, 2020. This was DPC's largest Annual Advocacy Day with representatives from 32 states and close to 200 virtual Congressional office meetings. It was also DPC's first virtual Advocacy Day due to the COVID-19 pandemic—all Congressional meetings were held via telephone. Advocates asked Congress to ensure all dialysis patients gain access to Medigap through passage of the Jack Reynolds Memorial Medigap Expansion Act. They also discussed the [...]

Action Alert – Support Care Coordination for Dialysis Patients

2020-09-30T15:02:28+00:00September 17th, 2020|Categories: Article, Care Coordination, Take Action|

The BETTER Kidney Care Act (H.R. 8254/S. 4574) was recently introduced by Senators Young (R-IN) and Sinema (D-AZ), along with Representatives Blumenauer (D-OR) and Smith (R-MO). This bill would enhance access to care coordination services for thousands of patients across the United States currently living with End-Stage Renal Disease (ESRD). It could also help with services not covered by Medicare such as dental care and transportation. Coordinated care is essential for improving the overall care and health of ESRD patients. Specifically, better care coordination could mean help for patients with: scheduling doctors’ appointments, reviewing their medication regime, dealing with dialysis [...]

Dialysis Patient Citizens Commends Introduction of the BETTER Kidney Care Act

2020-09-16T18:34:36+00:00September 16th, 2020|Categories: Care Coordination, Press Release|

WASHINGTON, D.C., (September 16, 2020) -- Dialysis Patient Citizens (DPC) today applauded introduction of the BETTER Kidney Care Act (H.R. 8254/S. 4574) by Senators Todd Young (R-IN) and Kyrsten Sinema (D-AZ) along with Representatives Earl Blumenauer (D-OR-3) and Jason Smith (R-MO-8). This bill would enhance access to care coordination services for thousands of patients across the United States currently living with End-Stage Renal Disease (ESRD). "We applaud Senators Young and Sinema along with Representatives Blumenauer and Smith for introducing the BETTER Kidney Care Act. We are grateful for their continued leadership and efforts to improve the lives of Americans who suffer from kidney disease," said DPC Board President [...]

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