I have been on hemodialysis for four years. My grandmother was also on dialysis. I started just a year or two after she did. So when I say kidney disease runs in my family, I mean it in the most personal way possible. Dialysis is exhausting. You sit for four to five hours at a time, sometimes dealing with staff who aren't always sensitive to what patients are going through. I am also managing more than just kidney failure. I am a below-the-knee amputee facing a second amputation, and that exhaustion becomes almost unbearable. I started on employer-sponsored private insurance [...]

I never knew I was sick. I went to the doctor’s office for a routine procedure, and the lab results sent me straight to the hospital. That was how I learned my kidneys were failing. There was no warning and no symptoms. I was working at AT&T at the time and had private insurance that carried me through. I received a kidney transplant. I was fortunate. My wife worked, and I had faith, family and friends. Not everyone has these luxuries. Now, because of a recent Supreme Court ruling, private insurers can push newly diagnosed dialysis patients off their coverage [...]

To The REVIEW: When I lost my second kidney in my 50s, I was suddenly thrown into a world of dialysis, medical bills and fear. I was self-employed and carried my own insurance, but as my health declined, I became too sick to work. Dialysis is exhausting enough on its own. No patients should also have to spend months or years fighting to keep health coverage and stay financially afloat. Yet, that was my reality. It took two and a half years of fighting before I was finally approved for disability benefits. During that time, medical bills piled up, and [...]

My father, Earl, treated dialysis like going to work. Diagnosed with diabetes and high blood pressure, he went on dialysis in 2014 and never let it slow him down. He lost weight, got healthier, and even won a Halloween costume contest that fall (my sister dressed him up as a wizard). He was in his 70s and furious about it. That photo is one of our family’s most treasured memories. Through his dialysis journey, I watched my dad find a new community and family at his clinic. I also saw firsthand how vulnerable that lifeline can be and how much [...]

When I was diagnosed with end-stage renal disease in 2017, I was working for a major U.S. airline carrier with strong health insurance coverage. During COVID, as a flight attendant and flight service duty manager with 30 years of experience, I accepted an early-out retirement package. Dialysis had made it increasingly difficult to continue working, and my doctor advised it, given my high risk. As part of that package, I kept active employee-rate health coverage for 36 months. This stability was invaluable and allowed me to delay enrolling in Medicare until the month of my transplant. No dialysis patient should [...]