Dialysis Patient Citizens News
Study: End Stage Renal Disease Patients Face Policy Barriers to Home Dialysis
Current federal policies limit patient access to home dialysis, a treatment option that offers significant clinical and quality-of-life advantages, according to a report released today by Washington, DC-based economist Alex Brill of Matrix Global Advisors (MGA). As a result of policy barriers, Brill finds a key segment of the growing population of patients who have end-stage renal disease (ESRD) miss out on the important health and lifestyle benefits of home dialysis. Brill, formerly chief economist to the House Ways & Means Committee, also finds that innovation in the [...]
Bipartisan Living Donor Protection Act Introduced to Protect Organ Donors
On February 25, Congressman Jerrold Nadler (D-NY) and Congressman Michael Burgess M.D. (R-TX), joined by Senator Kirsten Gillibrand (D-NY) and Senator Mark Kirk (R-IL), introduced the Living Donor Protection Act of 2016 to protect the rights of living organ donors. The Family and Medical Leave Act (FMLA) does not specify that living organ donors can take unpaid leave to recover from their donation and does not guarantee that donors will have a job waiting for them after surgery. Further, according to a 2007 study in the American [...]
DPC Urges Members to Share Stories of Insurance Assistance from the American Kidney Fund
For decades, dialysis patients have received financial assistance from the American Kidney Fund to help them maintain their private insurance or Medigap coverage. Recently, insurers started to reject those payments from AKF in an effort to purge kidney patients from their health plans. We ask you to please share your stories about the help that AKF has provided and about any problems you have experienced due to an insurance company refusing to take AKF payments. You need not give your name. Click here to take our survey. [...]
DPC Encourages Participation in National Kidney Month Awareness
March is National Kidney Month, which provides you with the perfect opportunity to spread awareness by educating your community and your legislators about kidney disease and the importance of kidney health. You can find educational information on the website of our sister organization, the DPC Education Center to share with your family and community. Additionally, we can provide promotional materials for any awareness events you plan to hold in March. To request materials such as pens and squeezable kidneys, visit our materials request page or call us at [...]
Legislation Aims to Improve Access to Telemedicine
Telemedicine is the practice of using technology to deliver various medical services to patients. Examples include video visits with physicians, scheduling appointments online and using electronic devices to monitor vital signs. Medicare coverage for this type of health care remains restricted due to guidelines from the Social Security Act. A new piece of legislation, introduced by a bipartisan group of Senators, would waive these coverage restrictions. The new bill, called the Creating Opportunities Now for Necessary and Effective Care Technologies (CONNECT) for Health Act, would create a “bridge [...]
DPC Sends Comment Letter on Chronic Care Working Group Document
A document released by the Senate Chronic Care Working Group in December contains several policy proposals for the care of end stage renal disease (ESRD) patients. DPC’s most recent e-newsletter outlined the proposal’s topics, which include opening Medicare Advantage plans to dialysis patients, and making Special Needs Plans permanent to better coordinate care. DPC recently submitted a letter commenting on these proposals. DPC supports the proposal to allow ESRD patients to enroll in Medicare Advantage (MA) plans without restrictions. Current guidelines prevent ESRD patients enrolled in traditional Medicare to enroll in Medicare [...]
DPC Encourages Participation in 2016 Primary Elections
While the November presidential election is still months away, DPC encourages its members to participate in the caucuses and primaries in your state. These elections help to shape the ultimate contest in November for President, Members of Congress, as well as for state and local office holders. To be eligible to vote, a person must be a United States citizen, at least 18 years old, and meet his or her state residency requirements. Many states offer absentee ballots that voters can send through the mail. For more information [...]
Is This the Future of ESRD Care? A New Program Goes the Extra Mile for Dialysis Patients
By, Jackson Williams, Government Affairs Director for Dialysis Patient Citizens For more than a decade, officials in Washington, DC have been experimenting with ways to reorganize Medicare to deliver better care at lower costs. Several of these “demonstration projects” have involved ESRD patients. Now, the largest such program for dialysis patients has kicked off at 13 locations across the U.S. It’s called the ESRD Seamless Care Organization, or “ESCO,” model. This article describes what one of these projects, Philadelphia-Camden Integrated Kidney Care, is doing to improve care for [...]
DPC Submits Comments to Chronic Care Working Group Re: Medicare Advantage
Hon. Johnny Isakson Hon. Mark Warner United States Senate Washington, DC 20510 Re: Comments to the Chronic Care Working Group Dear Senators Isakson and Warner: As America’s largest patient-led organization representing persons with end-stage renal disease, with over 28,000 members, Dialysis Patient Citizens (DPC) works to improve quality of life for dialysis patients through education and advocacy. We are grateful to the Working Group for its focus on how chronic illness care could be improved for patients with ESRD. As you know, ESRD patients represent a small [...]
Paper from Senate Group Focuses on Improving Access to Healthcare
A recent document released by the Senate Chronic Care Working Group contains several policy proposals relating to the care of end-stage renal disease (ESRD) patients. The working group was formed last year under by Senate Finance Committee as a way to explore potential bipartisan policy changes to improve health care. DPC was pleased to see that committee discuss many of our our policy priorities including: dialysis patient access to Medicare Advantage Plans, Telehealth for dialysis patients and the desire to make the successful Special Needs Plans permanent [...]
DPC Mourns the Loss of Board Member
Dialysis Patient Citizens was saddened to learn of the recent passing of board member Nance Lehman. Nance was a tremendous advocate for ESRD patient across the country and especially in her home state of Montana. Nance met with legislators in Washington D.C. on numerous occasions and was known to move legislative staff with her compelling stories. Most recently, Nance represented the patient perspective as a voting representative of Kidney Care Partners (KCP). Nance was committed to creating a better policy environment for ESRD patients across the country. [...]
2015 Year in Review
Happy New Year! In 2015, DPC leadership and its strong patient advocacy efforts at the state level fought to: prevent dramatic cuts to dialysis funding in Alabama and Illinois and preserve charity payments for dialysis patient premiums. Other highlights include: The opportunity for DPC CEO Hrant Jamgochian and board member Bob Lee to testify in front of the Oregon insurance commissioner on the discriminatory language found in two private insurance plans that would limit coverage for ESRD patients. The commissioner ruled against the language. DPC board member [...]
DPC Urges CMS to Prioritize Patient Access
Last month, DPC sent a letter commenting on the “Notice of Benefit and Payment Parameters for 2017” proposed rule. This annual rule by the Centers for Medicare and Medicaid Services (CMS) contains proposed changes to the exchange plan coverage of the Affordable Care Act. DPC’s letter focuses on the importance of insurance coverage and network quality for end-stage renal disease (ESRD) patients. One issue the letter comments on pertains to network adequacy. Network adequacy describes an insurance plan’s ability to provide a sufficient amount of in-network providers [...]
RE: CMS–9937–P: Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2017
Andrew Slavitt Acting AdministratorCenters for Medicare and Medicaid Services 7500 Security BoulevardBaltimore, MD 21244RE: CMS–9937–P: Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2017Dear Acting Administrator Slavitt,On behalf of the more than 430,000 patients who rely upon dialysis services, we appreciate the opportunity to comment on the “Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2017” Proposed Rule (Proposed Rule). We strongly encourage the Centers for Medicare and Medicaid Services (CMS) to protect the rights of [...]
Medicaid-Eligible Dialysis Patients Not Fully Informed of Treatment Options, Survey Finds
End-stage renal disease (ESRD) patients who receive Medicaid are less likely to be informed of home modality and transplantation options than patients covered by Medicare or commercial insurance, according to survey research DPC released earlier this month. DPC recently partnered with Baxter to facilitate a panel discussing these disparities at the National Black Caucus of State Legislators (NBCSL) Conference in Los Angeles, California. The DPC survey found that while about 74 percent of ESRD patients overall are informed about the option of home hemodialysis, there is an information [...]
DPC Submits Feedback to CMS on Proposed Additions to Dialysis Facility Compare Tool
The Centers for Medicare and Medicaid Services (CMS) recently announced plans to add more measures to their Dialysis Facility Compare (DFC). The DFC is an online tool that allows users to search and compare dialysis facilities within a certain area based on ratings and certain measures. The added measures would examine fluid management, the rate of blood stream infections in in-center hemodialysis patients and pediatric peritoneal dialysis adequacy. Data collected through the Consumer Assessment of Healthcare Providers & Systems In-Center Hemodialysis (CAHPS ICH) surveys would also be [...]
CMS Updates Policies and Payment Rates for End-Stage Renal Disease Facilities for 2016
On October 30, the Centers for Medicare & Medicaid Services (CMS) issued a final rule to update payment policies and rates under the End-Stage Renal Disease (ESRD) Prospective Payment System (PPS) for renal dialysis services furnished after January 1, 2016. The agency said the “ESRD final rule is one of several rules for calendar year 2016 that reflect a broader Administration-wide strategy to provide quality care at lower cost by improving ways to deliver care, pay providers, and use information.” This final rule also includes changes to [...]
CMS to Expand Prior Authorization of Transportation Services to Six More States
The Centers for Medicare and Medicaid Services (CMS) will begin expanding a prior authorization model for non-emergency ambulance transportation for dialysis patients into six states: Maryland, Delaware, the District of Columbia, North Carolina, Virginia and West Virginia. The program expansion will begin on January 1, 2016 and requires ambulance providers in those states to obtain documentation from physicians prior to beginning service. CMS plans to reach out to ambulance providers and Medicare beneficiaries about the program through educational materials. This model was originally implemented in New Jersey, Pennsylvania and [...]
Bipartisan Budget Deal Includes Lower Premium Hikes for Medicare Part B
Earlier this week, the President signed a two-year bipartisan budget deal that changes the premium and deductible amounts for Medicare Part B plans. ESRD patients whose Medicare premiums are not deducted from their Social Security checks were initially facing a premium increase of 50 percent to $159 a month, but now will pay around $120 a month. The lower rate was established through a loan from the Treasury Department to the Supplemental Medical Insurance Trust Fund. The difference will be made up through monthly $3 repayment fees added [...]
DPC and Patient Advocates Win Oregon Ruling on Discriminatory Insurance Practices
DPC and kidney advocates won a ruling from the Oregon insurance commissioner against discriminatory language in an insurance policy limiting coverage for ESRD patients. Bob Lee, a DPC Patient Ambassador and ESRD patient, and Hrant Jamgochian, Executive Director of DPC, attended a public hearing on the topic in Salem and presented testimony on behalf of DPC’s membership. The insurance commissioner ruled: Insurers are prohibited from discriminating based on health factors. Insurers may not require enrollment in Medicare, regardless of member entitlement or eligibility. Insurers providing information to [...]