3 Things You Can Do for National Kidney Month
March is National Kidney Month which provides the perfect opportunity to educate your community about kidney disease! Here are some suggestions to help you increase awareness about kidney disease: The DPC Education Center is holding a grassroots fundraiser to raise money for our kidney education efforts. We'll give you the tools you will need to participate. Fundraise World Kidney Day is March 13. If you are interested in handing out information in your dialysis facility or your community, we can provide all the materials and instructions you will need. Hold an Event Visit our Legislative Action Center to [...]
We Need to Hear From You!
DPC is currently working on two initiatives that require your input! First, the National Quality Forum is conducting a study of "Person-Centered Care" and is looking for patient input. DPC has volunteered to collect patient viewpoints on this subject, and we are inviting our members and other dialysis patients to share your experience with and insights into the care you've received. The National Quality Forum is an organization that endorses the standardized healthcare performance measures that are used by Medicare and other insurers to monitor quality. Its goal in this project is to figure out how to assess whether care is person-centered, which may [...]
DPC Thanks Texas for Allowing ESRD Patients to Purchase Medigap Plans
Ms. Sara Waitt, General Counsel Texas Department of Insurance P.O. Box 149104 Austin, TX 78714-9104 Re: Minimum Standards for Medicare Supplement Policies Dear Ms. Waitt, As America’s largest patient-led organization representing dialysis patients, Dialysis Patient Citizens (DPC) works to improve the quality of life of all dialysis patients through education and advocacy. Today we are writing on behalf of over 37,000 dialysis patients in Texas, specifically those who use the Texas Health Insurance Pool for supplemental insurance. We would like to express our gratitude for the recent decision to extend an additional two-month guaranteed issue period from the date of [...]
For New Kidney Failure Patients Under 65: Is Medicare or an Exchange Plan the Better Insurance Option?
Chronic Kidney Disease (CKD) patients who progress to end-stage renal disease (ESRD) before the age of 65 now have a new health insurance option—exchange health plans under the Affordable Care Act (ACA). Non-elderly patients who do not have, or will not be continuing, employer-sponsored insurance may be better off in an exchange plan depending on their financial circumstances. The reason for this is that the Affordable Care Act is more generous than Medicare in providing extra financial assistance to low-income individuals. Medicare Programs for Low-Income Patients Patient advocates have never considered Medicare to be a particularly generous health benefit, because it [...]
DPC Thanks California for Reinstating Nutritional Supplement Coverage
Ms. Pilar Williams, Chief Medical Supplies & Enteral Nutrition Benefits Branch, Pharmacy Benefits Division California Department of Health Care Services P. O. Box 997413, MS 4604 Sacramento, CA 95899-7413 Re: Proposed Policy Changes to Medi-Cal Enternal Nutrition Products Benefit Dear Ms. Williams, On behalf of the more than 50,000 people on dialysis in California, Dialysis Patient Citizens (DPC) would like to thank you and the state of California for restoring Medi-Cal coverage of enteral nutritional supplements for dialysis patients. With 30,000 members nationwide, DPC works to improve the quality of life of all kidney patients. Access to medically necessary oral [...]
DPC Encourages Coverage of Renal Dialysis in Exchange Plans
Hon. Marilyn Tavenner, Administrator Centers for Medicare and Medicaid Services Department of Health and Human Services Hubert H. Humphrey Building 200 Independence Ave, SW Washington, D.C. 20201 Re: Coverage of Renal Dialysis in Exchange Plans Dear Administrator Tavenner: Dialysis Patient Citizens, America’s largest patient-led organization representing dialysis patients, is comprised of more than 26,000 dialysis and pre-dialysis patients and their families. We seek to ensure the patient point of view is considered by policy makers. We are writing to express our concerns about language we found in a spot-check of exchange plan documents that appears to permit disenrollment of patients [...]
Giving Tuesday: What Can We as Dialysis Patients Give?
By James Myers, DPC Patient Ambassador On the website for the Polycystic Kidney Foundation, there is an announcement about Giving Tuesday, December 3rd, 2013. It says you can give one of three ways: your voice, your time or your dollars. As a dialysis patient, I don’t know about you, but I don’t have any money. But two things that I have a lot of are voice and time, and I am more than happy to lend those to the cause of defeating PKD. I can honestly say that having an invisible fatal illness has colored every decision that I have [...]
HOPE Act Signed Into Law
After tireless efforts by DPC and others in the kidney community, President Obama signed the HIV Organ Policy Equity (HOPE) Act into law on November 21, 2013. The HOPE Act was introduced with strong bipartisan support in the House of Representatives by Rep. Lois Capps and Rep. Andy Harris and in the Senate by Sen. Barbara Boxer and Sen. Tom Coburn. The HOPE Act legalizes the research of transplanting HIV positive organs into HIV positive recipients. If this research proves this practice to be effective, the organ supply in the United States could increase by 500 organs per year. Many of these organs [...]