A commentary about workforce shortage issues authored by DPC Vice President of Public Policy Jackson Williams amplifies findings from this summer’s DPC member survey to explain how ESRD patients have been impacted. The article also discusses how Medicare policies must adapt for an era with fewer working-age Americans and more retirees. The article is available on AJMC’s website: https://www.ajmc.com/view/contributor-medicare-s-leadership-needs-to-confront-our-shrinking-us-workforce, as well as on DPC’s website: https://www.dialysispatients.org/news/medicares-leadership-needs-to-confront-our-shrinking-us-workforce/.
August 18, 2022 Hon. Chiquita Brooks-LaSure, Administrator Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD 21244 Re: End Stage Renal Disease (ESRD) Prospective Payment System (PPS) Calendar Year (CY) 2023 Proposed Rule (CMS-1768-P) Dear Administrator Brooks-LaSure: Dialysis Patient Citizens (DPC) writes to offer its comments on the above referenced proposed rule. DPC's membership, currently over 30,000, is restricted to kidney disease patients and their family members. DPC is a patient-led organization. Our by-laws require that the President, Vice President and at least 51% of the Board be current dialysis patients. The non-dialysis patients serving on our Board [...]
State legislatures are in high gear during spring, and efforts by state legislators to support dialysis patients are in full swing this month. We’ve already had several legislative victories on living organ donor protection bills, while Medigap expansion legislation for the ESRD population has been introduced in multiple states. With support from multiple DPC Patient Ambassadors and Board Members sharing their personal stories on these two policy issues, DPC is making robust arguments for states to actively help improve the quality of life for End Stage Renal Disease (ESRD) patients. Kentucky, New Jersey, Maryland and Washington legislatures have already passed [...]
Please join us on February 13 at 2:00 p.m. Eastern for our first Patient Ambassador call of 2020! Please RSVP to let us know you can attend the call. Call Details are below: Date: Thursday, February 13, 2020 Time: 2:00 PM ET, 1:00 PM CT, 12:00 PM MT, 11:00 AM PT Follow these instructions at the time of the call: Call: 1-877-399-5186 Enter Meeting Code: 269 743 2061 Join Online (optional): https://dialysispatients.adobeconnect.com/patient-ambassador-call/ Thank you for elevating the voice of dialysis patients by representing DPC as a leader in your community.
Trump Administration Proposes New Rules to Increase Accountability and Availability of the Organ Supply
The U.S. Department of Health and Human Services (HHS) today took major steps to increase the availability of organs for the 113,000 Americans on waitlists for lifesaving organ transplants – 20 of whom die each day. As directed by President Trump in his July 10 Executive Order on Advancing American Kidney Health, the Centers for Medicare & Medicaid Services (CMS) is issuing a proposed rule to change the way organ procurement organizations (OPOs) are held accountable for their performance, and the Health Resources and Services Administration (HRSA) is issuing a proposed rule to remove financial barriers to living organ donation. This summer, [...]
With summer temperatures on the rise, so too are kidney care issues both nationally and in California, where dialysis policies in particular remain hot button topics despite the defeat of Proposition 8 last November by a relatively wide margin. In an effort to protect dialysis patients’ access to quality care, DPC continues to elevate the patient voice with policy makers while also committing even more resources on the ground. In fact, DPC recently established a new advocacy office in Sacramento less than a block from the State Capitol. We also hired Kelly Goss to serve as DPC’s new California State Advocacy Manager. [...]
Elevate the Voice of Patients with Kidney Disease and Their Caregivers Fellow kidney patients and family members, our 2019 Annual Membership Survey is live, and it will remain open until Friday, August 16. This survey takes your input as a patient with kidney disease and helps to shape our public policy agenda and patient education priorities for the next year. This year we are also surveying family caregivers of dialysis patients. In addition to determining Dialysis Patient Citizen's priorities, we regularly communicate survey results to state and federal level policy makers, so they will better understand your needs, experiences, and preferences. As a [...]
DPC supports an adequately funded treatment infrastructure that offers stable and convenient sources of care that rewards performance and incentivizes quality outcomes. In addition, we are committed to ensuring access to all forms of treatment for end-stage renal disease, including transplantation. As a result, we work closely with others within the renal community to advocate for adequate policy solutions that encourage organ donation and protect patients' health. In order for patients to make educated decisions about their care, they need transparency and accountability. A bill that was introduced by Senator Todd Young (IN) aims to tackle these issues by improving the [...]
Advocates spent a day of training getting up to speed on the latest legislation impacting the kidney community, which included presentations by Representative Donald Payne Jr. and DPC CEO Hrant Jamgochian. A rooftop reception followed where advocates strategized about the next day's meetings on Capitol Hill. The event culminated with over 100 meetings with lawmakers and their legislative staff about improving dialysis patient care. Below are the photos from DPC's Advocacy Day: If you are interested in making a difference in your community by elevating the voice of people with kidney disease, consider applying for DPC's Patient Ambassador Program. [...]
Activists from across the country gathered on Capitol Hill to advocate on behalf of dialysis patients at DPC's Annual Advocacy Day on June 11, 1019. Advocates represented 26 different states and had over 100 meetings with Members of Congress and their legislative staff. The focus of the Hill discussions centered around preserving access to Charitable Assistance and ensuring access to Medigap for all dialysis patients. Charitable Assistance Charitable Assistance is financial assistance a patient may receive from certain organizations to help with medical bills or premium payments. One out of five individuals with end-stage renal disease (ESRD) use Charitable Assistance. Access [...]