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Mark Your Calendar for our February Patient Ambassador Call

2020-03-21T20:40:48+00:00January 17th, 2020|Categories: Uncategorized|

Please join us on February 13 at 2:00 p.m. Eastern for our first Patient Ambassador call of 2020! Please RSVP to let us know you can attend the call. Call Details are below: Date: Thursday, February 13, 2020 Time: 2:00 PM ET, 1:00 PM CT, 12:00 PM MT, 11:00 AM PT Follow these instructions at the time of the call: Call: 1-877-399-5186 Enter Meeting Code: 269 743 2061 Join Online (optional): https://dialysispatients.adobeconnect.com/patient-ambassador-call/ Thank you for elevating the voice of dialysis patients by representing DPC as a leader in your community.

Trump Administration Proposes New Rules to Increase Accountability and Availability of the Organ Supply

2020-03-21T20:40:49+00:00December 17th, 2019|Categories: Uncategorized|

The U.S. Department of Health and Human Services (HHS) today took major steps to increase the availability of organs for the 113,000 Americans on waitlists for lifesaving organ transplants – 20 of whom die each day. As directed by President Trump in his July 10 Executive Order on Advancing American Kidney Health, the Centers for Medicare & Medicaid Services (CMS) is issuing a proposed rule to change the way organ procurement organizations (OPOs) are held accountable for their performance, and the Health Resources and Services Administration (HRSA) is issuing a proposed rule to remove financial barriers to living organ donation. This summer, [...]

Dialysis Issues Are Heating Up in California

2020-09-24T16:28:43+00:00August 6th, 2019|Categories: State Advocacy, Uncategorized|

With summer temperatures on the rise, so too are kidney care issues both nationally and in California, where dialysis policies in particular remain hot button topics despite the defeat of Proposition 8 last November by a relatively wide margin. In an effort to protect dialysis patients’ access to quality care, DPC continues to elevate the patient voice with policy makers while also committing even more resources on the ground. In fact, DPC recently established a new advocacy office in Sacramento less than a block from the State Capitol. We also hired Kelly Goss to serve as DPC’s new California State Advocacy Manager. [...]

DPC’s 2019 Annual Membership Survey is Live!

2020-03-21T20:41:19+00:00August 1st, 2019|Categories: Uncategorized|

Elevate the Voice of Patients with Kidney Disease and Their Caregivers Fellow kidney patients and family members, our 2019 Annual Membership Survey is live, and it will remain open until Friday, August 16. This survey takes your input as a patient with kidney disease and helps to shape our public policy agenda and patient education priorities for the next year. This year we are also surveying family caregivers of dialysis patients. In addition to determining Dialysis Patient Citizen's priorities, we regularly communicate survey results to state and federal level policy makers, so they will better understand your needs, experiences, and preferences. As a [...]

DPC Advances Quality of Care and Patient Choice

2020-03-21T20:41:19+00:00July 18th, 2019|Categories: Uncategorized|

DPC supports an adequately funded treatment infrastructure that offers stable and convenient sources of care that rewards performance and incentivizes quality outcomes. In addition, we are committed to ensuring access to all forms of treatment for end-stage renal disease, including transplantation. As a result, we work closely with others within the renal community to advocate for adequate policy solutions that encourage organ donation and protect patients' health. In order for patients to make educated decisions about their care, they need transparency and accountability. A bill that was introduced by Senator Todd Young (IN) aims to tackle these issues by improving the [...]

Pictures for DPC’s 2019 Advocacy Day Are Here!

2020-03-21T20:41:19+00:00July 9th, 2019|Categories: Uncategorized|

Advocates spent a day of training getting up to speed on the latest legislation impacting the kidney community, which included presentations by Representative Donald Payne Jr. and DPC CEO Hrant Jamgochian. A rooftop reception followed where advocates strategized about the next day's meetings on Capitol Hill. The event culminated with over 100 meetings with lawmakers and their legislative staff about improving dialysis patient care. Below are the photos from DPC's Advocacy Day: If you are interested in making a difference in your community by elevating the voice of people with kidney disease, consider applying for DPC's Patient Ambassador Program. [...]

DPC Rallies Over 60 Advocates on Capitol Hill

2020-03-21T20:41:19+00:00June 12th, 2019|Categories: Uncategorized|

Activists from across the country gathered on Capitol Hill to advocate on behalf of dialysis patients at DPC's Annual Advocacy Day on June 11, 1019. Advocates represented 26 different states and had over 100 meetings with Members of Congress and their legislative staff. The focus of the Hill discussions centered around preserving access to Charitable Assistance and ensuring access to Medigap for all dialysis patients. Charitable Assistance Charitable Assistance is financial assistance a patient may receive from certain organizations to help with medical bills or premium payments. One out of five individuals with end-stage renal disease (ESRD) use Charitable Assistance. Access [...]

Advocacy Day Insights and Action Alerts During June’s Patient Ambassador Call

2020-03-21T20:41:19+00:00May 29th, 2019|Categories: Uncategorized|

Join us next month on June 20th at 2:00 pm ET for our upcoming Patient Ambassador call. We will have special guest speakers to discuss the inside scoop learned during DPC's fly-in and the actions you can take to help kidney patients. Please RSVP to let us know you can attend the call. Learn more about our Patient Ambassador program. Call Details are below: Date: Thursday, June 20, 2019 Time: 2:00 PM ET, 1:00 PM CT, 12:00 PM MT, 11:00 AM PT Follow these instructions at the time of the call: Join Online: https://dialysispatients.adobeconnect.com/patient-ambassador-call/ Call: 1-877-399-5186 Enter Meeting Code: 269 743 2061 Mute/Unmute: *6/#6 Thank you for elevating [...]

How Medicare Can Improve Dialysis Patient Quality of Life

2020-03-21T20:41:50+00:00May 13th, 2019|Categories: Uncategorized|

Dialysis Patient Citizens helps patients by working to improve access to care, promote financial security, increase quality of care and advance patient choice. Two leading members of the US Senate Committee on Finance, which oversees the Medicare program, recently raised concerns to the Centers for Medicare & Medicaid Services (CMS) on issues impacting the care of dialysis patients. Many of these items align with our priorities to improve the quality of life for patients with end-stage renal disease. Emphasis was placed on the following dialysis-care issues: better sustainability for new treatment research and innovation the importance of care coordination by strengthening the lines of [...]

Help DPC Protect Dialysis Access in Oregon, Illinois and California

2020-09-24T16:29:27+00:00April 18th, 2019|Categories: State Advocacy, Uncategorized|

Dialysis Patient Citizens (DPC) continues to work hard protecting dialysis patients by opposing three bills that would threaten access to quality care if passed. More than 468,000 Americans rely on dialysis treatments to stay alive. Unfortunately, this access to treatment is being threatened with three bills, which may disrupt the provider network dialysis patients rely on and lower the quality of care they depend on. These bills are: Senate Bill 900 – Oregon Senate Bill 650 – Illinois Assembly Bill 290 – California Specifically, we are concerned that these bills will cut reimbursement rates private insurance companies pay to cover dialysis care. [...]

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