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Dialysis patients need Medigap expansion bill

2024-03-29T01:10:13+00:00September 8th, 2021|Categories: Patient Stories in the News, Spotlight|

It’s been 34 years since my brother donated his kidney to me and changed my life for the better. Now, we do what we can to support dialysis patients in our area and help people better understand just what challenges patients face every single day. For a lot of them, it all comes back to coverage. As a transplant recipient, it’s a major problem that I’ve experienced firsthand. Three years after my transplant, I lost the coverage I had and needed to turn to other plans that came with big out-of-pocket costs. Other patients across the country are in the [...]

Letter: Bill can ease costs

2024-03-29T01:10:13+00:00September 8th, 2021|Categories: Patient Stories in the News, Spotlight|

Starting dialysis 12 years ago at 28 completely changed my life. I had to begin going to a clinic for the hours-long treatments that dialysis involves, and the treatments, as well as their effects, forced me to end my career as an EMT. It was a difficult adjustment to make, but I’ve at least been fortunate enough to have supplemental insurance coverage through my wife’s work that helps to cover the cost of my treatments. Without that additional coverage, we’d have to find a way to make up for the 20 percent of the cost Medicare doesn’t pay for. Under [...]

Dialysis Patients Need Help. A New Medigap Bill is the Perfect Place to Start.

2024-03-29T01:10:13+00:00August 24th, 2021|Categories: Patient Stories in the News, Spotlight|

In 2004 my dad had his first dialysis treatment after flatlining from a heart procedure. We were not sure he would make it through the night as his organs were shutting down, but we were told that dialysis would help and at the time, we wanted to just do whatever was needed to save him. When my dad left the hospital, we were told that his kidneys would require dialysis in the future and his doctors would monitor him. Fast-forward to 2007, and we were informed that my dad would require dialysis three days a week for four hours at [...]

LETTER TO THE EDITOR: Medigap Bill A Welcome Change for Mississippi Dialysis Patients

2024-03-29T01:10:14+00:00August 12th, 2021|Categories: Patient Ambassadors, Patient Stories in the News, Spotlight|

Kristal pictured with her husband, Ernest Higgins. Photo by Cameron B. Potts My kidney transplant failing in 2017 changed my life. I went back on dialysis for the first time since 2012 and was spending more time in the hospital than I had before. Then, I lost my job and the insurance coverage it provided, and I had to go back on Medicare, which didn’t cover the whole cost of dialysis and forced me to pay up to 20 percent of the cost of my treatments. I’m not alone, either. Dialysis patients all over the country struggle to [...]

Medigap Expansion Bill Vital to Making Treatments Affordable

2024-03-29T01:10:14+00:00July 29th, 2021|Categories: Patient Stories in the News, Spotlight|

Something felt a little off after my daughter was born. I started feeling more exhausted each day after work, and at one point one of my elementary school students even pointed out that I didn’t look well. I had always been perfectly healthy, so I never expected that I’d be diagnosed with kidney disease. But, after a referral to Johns Hopkins for care, doctors started me on dialysis right away. That’s when my long, difficult road with kidney disease began. Shortly after starting dialysis treatments – despite receiving the best care possible – I fell into a 31-day coma that [...]

Expanding Medigap coverage

2024-03-29T01:10:15+00:00June 21st, 2021|Categories: Patient Ambassadors, Patient Stories in the News, Spotlight|

I first started dialysis just over 20 years ago, and in that time I’ve done both home and in-center dialysis treatments in addition to receiving two kidney transplants. Along the way, I’ve been fortunate enough to have good coverage that kept my treatments affordable. As I’ve met other dialysis patients, I’ve realized just how rare that is. Many people with kidney disease receive their coverage through Medicare and if they are under 65, they can get hit with big bills that they have to pay out-of-pocket if Medicare doesn’t cover the whole cost of their treatment. No one should have [...]

Former firefighter advocates for fellow renal failure patients

2024-03-29T01:10:15+00:00June 8th, 2021|Categories: Patient Stories in the News, Spotlight|

Former firefighter Terry Peeler of Livingston has released a statement urging Alabama lawmakers to support new bipartisan legislation that offers coverage for dialysis patients. Peeler’s career as a firefighter ended when he was diagnosed with kidney failure. “Starting dialysis in 2016 was unbelievably difficult,” Peeler said. “It brought my career as a firefighter to a sudden halt, and meant I needed to make a 72-mile round trip three times every week to undergo a procedure that takes five hours.” “I was fortunate, though, because the cost was not prohibitive for me,” Peeler explained. “My job provided me with good insurance [...]

Opinion | Letter: Pass Kidney-care Bill

2024-03-29T01:10:15+00:00June 1st, 2021|Categories: Care Coordination, Patient Ambassadors, Patient's Voice, Spotlight|

By Kristi Flynn of Grovetown, GA I have struggled with kidney disease my entire life. I was diagnosed when I was 7, then started dialysis at 25 before finally receiving a kidney transplant in 2018. Throughout all of this, the role of coordinating care has fallen completely on me, a task I find particularly difficult because I am legally blind. Even within my transplant center, doctors can’t always communicate, and even more frustrating, occasionally change each other’s plans without consulting each other. With a more streamlined approach to care coordination, a lot of these problems could be relieved. Thankfully, Congress is [...]

Letters: Action Needed to Help Alabama Dialysis Patients

2024-03-29T01:10:16+00:00May 1st, 2021|Categories: Care Coordination, Patient Ambassadors, Patient's Voice, Spotlight|

By Cortney Beavers of Pell City, AL. One of the most difficult moments of my life was finding out that, despite being only 24 years old, my kidney was beginning to fail. After years of dialysis and a kidney transplant, I learned through my experiences in the health care system what needs to be improved. Doctors and nurses need a better care coordination framework to more effectively treat their patients. I had the benefit of working with terrific nurses and other providers who met my needs and communicated well between one another, but unfortunately that’s not the case for every [...]

Letter: Medigap Expansion Act needs Delaware’s support

2024-03-29T01:10:16+00:00April 13th, 2021|Categories: Patient Ambassadors, Patient Stories in the News, Spotlight|

Life on dialysis is hard. It involves several hours-long treatments every week and puts a major strain on everyone involved. It’s a frustrating process that I wouldn’t have been able to get through without my family. The last thing you want to worry about while going through dialysis is the cost. The treatments already weigh on patients and families both physically and mentally, and no dialysis patient should be forced to fear they will be priced out of life-saving care. That is why it is so important that lawmakers in Washington rally behind the Jack Reynolds Memorial Medigap Expansion Act, [...]

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