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About Hannah Bracamonte

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So far Hannah Bracamonte has created 663 blog entries.

Exciting Changes to the Patient Ambassador Program

2024-03-29T02:08:07+00:00December 1st, 2013|Categories: Article, Get Involved|

DPC has revised the Patient Ambassador program to offer participants a better overall experience. To give Patient Ambassadors increased flexibility, Ambassadors will now have more of a choice over which actions they take. Prior to 2014, Ambassadors received two suggested actions to take each month. Starting in 2014, Ambassadors will receive many more possible actions to take on a bimonthly basis without any obligation to complete them all. Instead, Ambassadors will earn reward points for each action they take. The greater the time commitment and effort required to complete an action, the greater the reward point value. The format of the [...]

Patient Outcry Draws a Two-Year Reprieve From Dialysis Cuts

2024-03-29T02:08:08+00:00December 1st, 2013|Categories: Article, Care Coordination, Dialysis Funding, Treatment Options|

The Centers for Medicare and Medicaid Services (CMS) acknowledged patient concerns by delaying for two years its planned cut to the Medicare End Stage Renal Disease (ESRD) program. The Medicare agency’s decision didn’t give dialysis patients everything we asked for, but it does mean that nearly $2 billion slated to be cut from kidney care in 2014 and 2015 will remain available to treat patients. However, it also means that patient advocates must be vigilant for any signs that access to care is shrinking as providers anticipate cuts now scheduled to take effect in 2016. The Medicare ruling came in the [...]

Apply for DPC’s 2014 World Kidney Day Fly-in

2024-03-29T02:08:08+00:00December 1st, 2013|Categories: Article, Get Involved, Take Action|

Dialysis Patient Citizens (DPC) is holding our 2014 World Kidney Day Fly-in from March 11 through March 13 in Washington, DC.   Are you ready to join the nation’s top patient advocates in Washington, DC and talk to your legislators directly about the issues that affect dialysis patients? If so, be sure to apply! We are looking for kidney disease patients who are passionate about dialysis advocacy. Before applying, you must first enroll in DPC’s Patient’s Ambassador Program. Preference will be given to applicants who have volunteered for DPC in the past and who live in key congressional districts. At the [...]

CMS Releases Final Rule on 9.4% Cut to Medicare ESRD Program

2024-03-29T02:08:08+00:00November 26th, 2013|Categories: Dialysis Funding, Improve Access to Care|

The Centers for Medicare and Medicaid Services (CMS) just released a final rule on the proposed 9.4% cut to dialysis funding. The final rule made the following changes: The payment rate for dialysis services will remain the same in 2014 and 2015. The proposed 12% cut to dialysis was delayed until 2016 and will be phased in over 4 years. There will be a 50% increase in the home dialysis training payment. In response, DPC released the following statement: DPC appreciates the Centers for Medicare and Medicaid Services’ (CMS) acknowledgment of patient concerns in delaying implementation of its proposed cut to [...]

Has the ACA Expanded Medicare’s Immunosuppressive Drug Coverage for Kidney Transplant Recipients?

2024-03-29T02:08:08+00:00November 18th, 2013|Categories: Immunosuppressive Drug Coverage, Patient's Voice|

By Jim Myers, DPC Patient Ambassador. I had a conversation with my doctor last week. (My nephrologist, Dr. Vavilala, we call him Dr. V). He asked me if I had heard anything during my last trip to Washington, D.C. about an extension of coverage through the ACA to kidney transplant patients of the immunosuppressive drug coverage beyond the 36 month period that currently exists. This rang a bell in the back of my brain, so I decided to check it out. Every transplant patient or transplant candidate knows the current status of the law. If you are a kidney transplant [...]

HOPE Act Moves to White House to be Signed into Law

2024-03-29T02:08:08+00:00November 13th, 2013|Categories: Access to Transplant, Article|Tags: |

The U.S. Congress took an important step Tuesday evening with House passage of the HIV Organ Policy Equity (HOPE) Act, which will allow research on donation of organs from deceased HIV-infected donors to HIV-infected recipients. Having been passed by the Senate in June, the bill is now positioned to move to the White House to be signed into law. The HOPE Act modernizes outdated federal law to reflect the current medical understanding of HIV infection and to allow for scientific research. For patients living with HIV, deceased donors with the same infection represent a unique source of organs. Passage of [...]

How Engaged Are You?

2024-03-29T02:08:08+00:00November 7th, 2013|Categories: Patient's Voice|

Meshia Adams By Meshia Adams, DPC Patient Ambassador If you asked me if I was an engaged patient, I would tell you yes. I can tell you what my last lab values are; I am compliant with taking my medications and see my doctors on a regular basis. I consider myself to be a responsible patient who is closely involved in my healthcare needs. I haven’t always been active in my care or engaged as a patient. In the beginning, I was in a state of denial and was convinced my doctor had it wrong. Over the years, [...]

Extension of Florida’s Managed Medical Assistance (MMA) Waiver

2024-03-29T02:08:08+00:00October 31st, 2013|Categories: Care Coordination, Comment Letter|

Justin Senior State Medicaid Director Agency for Health Care Administration 2727 Mahan Drive, MS #8 Tallahassee, Florida 32308 Re: Extension of Florida’s Managed Medical Assistance (MMA) Waiver (Project Number 11- W-00206/4) Dear Mr. Senior: Dialysis Patient Citizens (DPC) appreciates the opportunity to provide the Agency for Health Care Administration with comments on extension of the managed care waiver. As America’s largest patient-led organization representing dialysis patients, DPC’s membership consists of more than 26,000 end stage renal disease (ESRD) patients and their families. We seek to ensure the patient point of view is considered by policy makers on a wide range [...]

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