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Study: End Stage Renal Disease Patients Face Policy Barriers to Home Dialysis

2024-03-29T01:50:30+00:00March 10th, 2016|Categories: Improve Access to Care, Increase Quality of Care, Innovation, Promote Financial Security, Treatment Options|

Current federal policies limit patient access to home dialysis, a treatment option that offers significant clinical and quality-of-life advantages, according to a report released today by Washington, DC-based economist Alex Brill of Matrix Global Advisors (MGA). As a result of policy barriers, Brill finds a key segment of the growing population of patients who have end-stage renal disease (ESRD) miss out on the important health and lifestyle benefits of home dialysis. Brill, formerly chief economist to the House Ways & Means Committee, also finds that innovation in the home dialysis market may not reach patients if barriers cannot be addressed. Fewer [...]

Medicaid-Eligible Dialysis Patients Not Fully Informed of Treatment Options, Survey Finds

2024-03-29T01:50:31+00:00December 11th, 2015|Categories: Article, Medicaid, Treatment Options|

End-stage renal disease (ESRD) patients who receive Medicaid are less likely to be informed of home modality and transplantation options than patients covered by Medicare or commercial insurance, according to survey research DPC released earlier this month. DPC recently partnered with Baxter to facilitate a panel discussing these disparities at the National Black Caucus of State Legislators (NBCSL) Conference in Los Angeles, California. The DPC survey found that while about 74 percent of ESRD patients overall are informed about the option of home hemodialysis, there is an information gap of 17 percentage points between patients covered by Medicare (77%) and Medicaid [...]

DPC Board Members to Serve on Three Technical Expert Panels

2024-03-29T01:50:33+00:00April 7th, 2015|Categories: 5-Star Ratings, Access to Transplant, Treatment Options|

The Centers for Medicare and Medicaid Services (CMS) regularly schedules technical expert panels (TEPs) to advise the agency on quality measures. In the words of CMS, a TEP is “a group of stakeholders and experts who provide technical input…on the development, selection, and maintenance of measures for which CMS contractors are responsible.” CMS is contracting with the University of Michigan Kidney Epidemiology and Cost Center (UM-KECC) to host a TEP on the Dialysis Facility Compare star rating system. While the complete roster of participants is not public yet, we are pleased to announce that DPC Interim President Jack Reynolds was selected [...]

DPC to Host Regional Meetings

2024-03-29T02:08:04+00:00September 3rd, 2014|Categories: Article, State Advocacy, Treatment Options|

DPC is excited to announce the beginning of a new program to further engage kidney disease patients through education and advocacy. For the first time ever, DPC is hosting four regional meetings in sites around the country to bring dialysis patients together to engage on issues important to their care and well-being. The inaugural locations for these regional meetings are as follows: Detroit, Michigan; Seattle, Washington; Houston, Texas and New York, New York. We have partnered with the American Psychological Association to provide an informative and engaging session on the importance of having good mental health as a kidney disease [...]

Kidney Care Bill Introduced in U.S. House of Representatives

2024-03-29T02:08:05+00:00June 30th, 2014|Categories: Article, Care Coordination, Medicare Advantage, Treatment Options|

Congressmen John Lewis (D-GA) and Tom Marino (R-PA) have introduced the Chronic Kidney Disease Improvement in Research and Treatment Act in the U.S. House of Representatives. Lewis and Marino are leaders on the Congressional Kidney Caucus and have been staunch supporters of dialysis patients over the years. This bill seeks to advance several proactive kidney care policy initiatives and provides a vehicle for educating Members of Congress and the public about the issues facing kidney disease patients and the kidney community as a whole. The bill would: Improve understanding of kidney disease: The legislation seeks to identify the gaps in critical [...]

We Need to Hear From You!

2024-03-29T02:08:07+00:00February 7th, 2014|Categories: Article, Immunosuppressive Drug Coverage, Increase Quality of Care, Treatment Options|

DPC is currently working on two initiatives that require your input! First, the National Quality Forum is conducting a study of "Person-Centered Care" and is looking for patient input. DPC has volunteered to collect patient viewpoints on this subject, and we are inviting our members and other dialysis patients to share your experience with and insights into the care you've received. The National Quality Forum is an organization that endorses the standardized healthcare performance measures that are used by Medicare and other insurers to monitor quality. Its goal in this project is to figure out how to assess whether care is person-centered, which may [...]

Patient Outcry Draws a Two-Year Reprieve From Dialysis Cuts

2024-03-29T02:08:08+00:00December 1st, 2013|Categories: Article, Care Coordination, Dialysis Funding, Treatment Options|

The Centers for Medicare and Medicaid Services (CMS) acknowledged patient concerns by delaying for two years its planned cut to the Medicare End Stage Renal Disease (ESRD) program. The Medicare agency’s decision didn’t give dialysis patients everything we asked for, but it does mean that nearly $2 billion slated to be cut from kidney care in 2014 and 2015 will remain available to treat patients. However, it also means that patient advocates must be vigilant for any signs that access to care is shrinking as providers anticipate cuts now scheduled to take effect in 2016. The Medicare ruling came in the [...]

DPC Urges Nevada Commission of Insurance to Not Make Cuts for Patients’ Modality, Transportation, Care and Treatment

2024-03-29T02:09:01+00:00September 27th, 2012|Categories: Access to Transplant, Comment Letter, Immunosuppressive Drug Coverage, Improve Access to Care, State Advocacy, Transplant Donor Protection, Treatment Options|

Scott J. Kipper Commissioner of Insurance State of Nevada 1818 E. College Parkway, Suite 103 Carson City, NV 89706 Dear Commissioner Kipper: As America’s largest patient-led organization representing dialysis patients, Dialysis Patient Citizens (DPC) works to improve the quality of life of all dialysis patients through education and advocacy. Today we are writing on behalf of the nearly 3,000 dialysis patients in Nevada to make sure that their health and interests are represented in the State’s essential health benefits plan. DPC is committed to improving patient health and quality of life and to that end, there are several important benefits [...]

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