Kidney disease has been a major part of my life from the very start. I was born with just one functioning kidney and, defying doctors’ expectations, made it to age 25 before I needed to start dialysis treatments. Through my own experiences with dialysis and my conversations with other patients in dialysis clinics across the United States in the years since, I’ve seen that there are still a lot of barriers that prevent patients who have End-Stage Renal Disease (ESRD) from getting the level of care they need at an affordable cost. This has only been magnified since the start [...]

Living with kidney disease, undergoing dialysis, and ultimately traveling out-of-state to receive a kidney transplant provided me with a harsh lesson in how challenging life with End-Stage Renal Disease (ESRD) can be both physically and financially. It’s already difficult having to go through all these treatments even before considering the financial burdens that come with them. The costs are a lot for patients, and many of them are hit with bills they simply can’t afford. As those costs pile up, patients can become ineligible for treatments that they need, and even can be excluded from getting a transplant. This especially [...]

I never considered the possibility of having kidney disease until I ended up in the emergency room with a life-threatening illness. The doctors told me I was “toxic” and said I had developed kidney disease due to hypertension. Not long after, I started dialysis treatments. Being on dialysis meant I couldn’t work full time, so I wanted to find a way to get involved and help others like me. Dialysis is tough, and I want to use my experiences to help ensure patients can get the care they need without worrying about their finances or how they will put food [...]

As the COVD-19 pandemic continues to cause problems for Americans across the country, many people have been concerned about their ability to access the care that they need. Naturally, many patients are worried about where they can turn if they fall ill, and what it could potentially cost them. Being able to see all the necessary care providers is of particular concern for patients like me who have end-stage renal disease (ESRD). ESRD can compromise a patient’s immune system, making us vulnerable to serious health problems even if they were to just get the seasonal flu. Now, with a virus [...]

From the moment I was diagnosed with kidney disease, I was fortunate to receive outstanding care and support from my providers. I know that it played a key role in my ability to get a transplant, as I live in an area with one of the longest wait times in the country. In fact, I was encouraged to get listed at multiple locations, ultimately receiving my transplant in another state. Unfortunately, many dialysis patients do not receive this level of coordinated care among their providers. From my own personal experience, I can tell you that one of the best ways [...]

Despite months of research and progress, it still seems like we learn something new about COVID-19 every day, ranging from how it affects patients with certain pre-existing conditions to new information on the long-term health risks the virus poses to those who contract it. Now, as more information continues to come to light, it is imperative that we use what we do know to help prepare doctors and patients for the challenges that may yet lie ahead. This is especially true for patients with chronic kidney disease (CKD). CKD patients are already considered high-risk patients for COVID-19, and now new [...]

Preserving patient choice is central to a successful treatment plan.

My daughter’s kidneys failed when she was just 23 years old, marking the beginning of a long and difficult path on dialysis. Her treatments were incredibly straining and gradually weakened her until, about ten years ago, she had to undergo open-heart surgery because of the stress her dialysis treatments put on her circulatory system. Throughout the entire process, though, we were fortunate to work with a great medical team. My daughter’s nephrologist also handles her primary care, and works closely alongside her cardiologist to share information about her appointments and ensure that their treatments do not interfere with each other. [...]

For many patients, adjusting to life with kidney disease means change. From new diet restrictions to multiple weekly dialysis treatments, being diagnosed with kidney disease can create a sudden and difficult shift in a person’s daily lifestyle. Unfortunately, for many patients on dialysis these changes are made all the more challenging by a lack of a truly cohesive, coordinated treatment plan. Instead, patients find themselves juggling appointments, medications, and more that force them into duplicative appointments and drive up their health care costs because there is not a system in place for their doctors to easily and proactively share information [...]