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CA Dialysis Patients Need Lawmakers’ Help

2024-03-29T01:09:20+00:00October 31st, 2022|Categories: Medigap Coverage, Patient Stories in the News, Spotlight|

Finding out I needed to start dialysis two years ago was tough to accept. I’d always been an athlete, so I felt like this wasn’t something I’d have to face. But after low kidney counts for more than 5 years, I had to start treatments. Beyond difficult treatments, the financial burden they come with is enormous. I’m fortunate, however, to have a job at Life Alert Emergency Response that lets me tailor my schedule so I can stay employed and still receive health coverage. However, even between that plan and the secondary coverage I receive through Medicare, my monthly costs [...]

Dialysis patients need better insurance coverage

2024-03-29T01:09:20+00:00October 27th, 2022|Categories: Medigap Coverage, Patient Stories in the News, Spotlight|

Editor: I have seen firsthand the hardships kidney patients face through both my daughter’s and father’s diagnoses. My daughter’s kidneys failed at age 23, and for over two decades, I was her caregiver while she was in and out of the hospitals and on dialysis. This wasn’t an easy task, but thankfully she received a kidney transplant almost two years ago. Kidney disease is not only hard on the body and makes it hard to live a normal life while tending to doctor’s appointments, dialysis treatments, and medical procedures that accompany the disease. On top of the health battles is [...]

Time is running out: Dialysis patients need Congress to act

2024-03-29T01:09:20+00:00October 26th, 2022|Categories: Patient Stories in the News, Private Insurance Coverage|

“Life, Liberty, and the Pursuit of Happiness” are the inalienable rights which our government was created to secure. Thomas Jefferson famously penned these words when authoring the Declaration of Independence, but nearly 250 years later, those rights are at risk for dialysis patients thanks to a recent Supreme Court ruling. This June, in Marietta Memorial Hospital Employee Health Benefit Plan v. DaVita Inc., the high court sided with a private insurer that was being sued for limiting its coverage of dialysis to 30 treatments. The court ruled the plan wasn’t discriminating against kidney disease patients, as the 30 treatment threshold applied to [...]

Send lifeline to kidney dialysis patients

2024-03-29T01:09:21+00:00October 11th, 2022|Categories: Patient Stories in the News, Private Insurance Coverage, Spotlight|

At 21, I was diagnosed with end-stage renal disease, which meant my kidneys were failing. Until my diagnosis, I was completely healthy, in the middle of nursing school and working full time. The onset of this disease was the beginning of a series of hospitalizations, surgeries and dialysis treatments. I began dialysis while I waited for my kidney transplant. I needed these treatments not only to live, but so I could finish nursing school and eventually return to full-time work. One of the biggest challenges beyond my health issues was insurance coverage. This problem could potentially worsen for dialysis patients with [...]

Equal Justice Remains Elusive for Kidney Patients. Congress Can Help.

2024-03-29T01:09:21+00:00October 4th, 2022|Categories: Patient Stories in the News, Private Insurance Coverage|

Four simple words sit above the entrance to the Supreme Court: “Equal Justice Under Law.” That short phrase, though, carries immense weight. It is a promise to the American people that we will receive fair treatment in our justice system, and serves as a principle to guide people in power. For dialysis patients – who already face massive health disparities – it’s a promise that might go unfulfilled following a Supreme Court decision earlier this year that could open the door for health insurance companies to discriminate against them. In Marietta Memorial Hospital Employee Health Benefit Plan v. DaVita Inc., the Court ruled [...]

Kidney patients need Congress’ help

2024-03-29T01:09:21+00:00September 9th, 2022|Categories: Medigap Coverage, Patient Stories in the News|

I know we can count on Congressman Carlos Giménez to support this important legislation. I’ve dealt with health issues my entire life. I was born with Polycystic Kidney Disease (PKD), which has caused me to have multiple organ transplant surgeries and receive life-saving dialysis treatments. And, in addition to a successful liver transplant, I’ve had two kidney transplants that my body rejected, and I am now on a waitlist to receive a third kidney. In between these surgeries, I receive dialysis treatment, allowing my body to function properly and live my life. On top of the dreaded feeling of high patient volume at my [...]

Congress needs to protect kidney patients following Supreme Court decision

2024-03-29T01:09:21+00:00August 28th, 2022|Categories: Patient Stories in the News, Private Insurance Coverage|

I recently joined other dialysis patients in meetings with Congress to discuss the challenges we face. One of the key topics we covered was how hard it is for patients to get access to the benefits and coverage we need just to survive. Those challenges are about to get much bigger for many patients after a recent Supreme Court decision. The decision could limit benefits and make it easier for private insurers to move patients off their employer-sponsored coverage and onto Medicare before the traditional 30-month point after they are diagnosed, limiting patients’ access to benefits Medicare doesn’t cover for [...]

Dialysis patients need expanded coverage for leftover costs

2024-03-29T01:09:22+00:00August 21st, 2022|Categories: Medigap Coverage, Patient Stories in the News|

In 2017, I had a below-knee leg amputation, during which it was discovered my kidneys had deteriorated. These health crises forced me to undergo physical rehabilitation and begin dialysis treatments for my kidneys. While receiving dialysis, I started writing my book on navigating midlife, which was a form of mental therapy. My book discusses my triumphs and trials as an amputee on dialysis. One of the struggles that I faced, and other kidney patients do as well, is covering the 20% of dialysis that Medicare doesn’t cover. Kidney patients under 65 don’t always have access to private insurance or Medigap [...]

Dialysis patients counting on Congress

2024-03-29T01:09:22+00:00August 8th, 2022|Categories: Patient Stories in the News, Private Insurance Coverage, Spotlight|

It’s quite the experience being a kidney patient on dialysis. There’s always new information to monitor and communication to track between various medical providers, dialysis centers, and health insurance entities. It’s important for patients to educate themselves on kidney disease to best serve themselves and others who are on dialysis. One area of dialysis that can be hard to navigate is health care coverage. As both a dialysis patient and transplant recipient, I’ve been fortunate to have both employer-sponsored insurance and coverage through the Department of Veterans Affairs. It’s essential that dialysis patients can remain on employer-sponsored insurance for 30 [...]

Medigap bill can help kidney patients

2024-03-29T01:09:22+00:00August 7th, 2022|Categories: Medigap Coverage, Patient Stories in the News, Spotlight|

When I started helping my dad after his kidney disease diagnosis, I thought it would be straightforward, taking him to the dialysis clinic and just generally caring for him. As I started learning more about the challenges kidney patients face, though, I remember looking around at all of the younger patients at his dialysis clinic and asking myself, “How on earth are they paying for this?” The answer for too many is that they can’t. In many states, Medicare only covers up to 80% of dialysis treatment, and Medigap plans to cover the remaining expense aren't accessible to patients under [...]

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