Dialysis Patient Citizens News
Trump Administration Proposes New Rules to Increase Accountability and Availability of the Organ Supply
The U.S. Department of Health and Human Services (HHS) today took major steps to increase the availability of organs for the 113,000 Americans on waitlists for lifesaving organ transplants – 20 of whom die each day. As directed by President Trump in his July 10 Executive Order on Advancing American Kidney Health, the Centers for Medicare & Medicaid Services (CMS) is issuing a proposed rule to change the way organ procurement organizations (OPOs) are held accountable for their performance, and the Health Resources and Services Administration (HRSA) is issuing [...]
Advocacy Day Application Deadline Extended 1 Week
Good news—the deadline to apply for DPC's 2020 Advocacy Day in Washington, DC has been extended one week to Friday, December 20! We want to elevate the patient voice with policy makers with a strong and united group of advocates from all 50 states. Become a leader in your community by applying, and you could be the voice for dialysis patients with your state lawmakers in our nation’s capital. We understand that the holidays are an especially busy time of year for many people, and we hope [...]
DPC Board of Directors Elect New President
Andrew Conkling Andrew Conkling was elected as the new president for Dialysis Patient Citizens by DPC's Board of Directors, effective immediately. Conkling has served as DPC Vice President since 2016, participated in a number of DPC's Advocacy Days and met with lawmakers to discuss kidney disease issues from his home state of Alabama. He has also served as a DPC Patient Ambassador, clinic patient representative and done community outreach by sharing his personal experiences with young people. "It is an honor to be selected as DPC's [...]
DPC Meets with Oregon State Legislatures to Protect Patient Care
DPC staff standing in front of Oregon State Capitol In mid-November, DPC staff traveled to Salem, Oregon, to attend an informational hearing held by the Oregon House Committee on Health Care regarding outpatient dialysis treatment. The hearing focused on issues such as improving and expanding patient access to care while exploring ways in which to lower the cost of health care delivry for dialysis patients. While there, DPC staff also took the opportunity to meet individually with nearly all the Members of the House and [...]
Congressman Payne Jr. Comments on CMS Proposed Rule Regarding ESRD Treatment Choices Model Demonstration
Congressman Donald Payne Jr. sent a letter to the U.S. Department of Health and Human Services (HHS) regarding the ESRD Treatment Choices Model Demonstration, which is the rule that pertains to increasing the number of home dialysis treatments and kidney transplants. Payne focused on the importance of protecting and prioritizing patient choice. Specifically, he explained that home dialysis is not always an optimal treatment option for patients due to a lack of caregiver support and the necessary space requirements needed for this treatment. Payne provides a unique perspective to [...]
DPC’s Advocacy Day Application is OPEN! Apply by December 13, 2019
DPC is pleased to invite you to apply for our 2020 Advocacy Day! We are very fortunate that we are able to bring dialysis patients to Washington, D.C. each year to meet with their elected officials. This provides advocates like you with the unique opportunity to make your voice heard on behalf of dialysis patients from your state in order to improve dialysis care. Next year is no exception. We will meet with Members of Congress and their staff on Tuesday, June 2, 2020 with a comprehensive training [...]
DPC Fights for Patient Access in California
DPC is participating in a lawsuit against the state of California after a bill was passed by the Legislature that jeopardizes patient access to charitable assistance. The new law (known as Assembly Bill 290) was signed by California Governor Gavin Newsom last month. Conditions in the new law practically eliminates charitable assistance, which has helped thousands of low-income patients in California pay for their health insurance. The law will take effect January 1, 2020 unless the judge orders the delay DPC is requesting. DPC is fighting similar [...]
Patients and Advocacy Groups File Federal Lawsuit Against the State of California to Overturn AB 290
ORANGE COUNTY, Calif., Two kidney failure patients, together with two patient advocacy groups—the American Kidney Fund (AKF) and Dialysis Patient Citizens (DPC)—filed a federal lawsuit today in the U.S. District Court for the Central District of California against the State of California. The lawsuit, Doe vs. Becerra, asks the court to strike down AB 290, the newly enacted law that will do irreversible harm to dialysis and transplant patients who need charitable assistance to help them pay for health care. Filed against California Attorney General Xavier Becerra, California Insurance Commissioner Ricardo Lara, Shelley Rouillard, Director of [...]
DPC Advocates for Patient Access to Private Health Insurance
DPC filed an amicus brief in support of a lawsuit to protect patient access to private health insurance coverage. This is one of a number of lawsuits challenging discrimination by employer health plans in how they pay for dialysis. End-Stage Renal Disease (ESRD) patients are protected by the Medicare Secondary Payer Act (MSP), which permits ESRD patients to remain on their private health insurance plans for 30 months before they must enroll in Medicare. To protect this right from being chipped away, Congress prohibited health plans from making any distinctions [...]
Meet our Newest Board Members and Get Site Visit Tips During November’s Patient Ambassador Call
Join us next month on November 14 at 2:00 pm ET for our upcoming Patient Ambassador call. We will be introducing our newest Board members and discussing strategies for scheduling a facility tour with your lawmaker. Please RSVP to let us know you can attend the call. Check out our accompanying handout for this call. Learn more about our Patient Ambassador program. Call Details are below: Date: Thursday, November 14, 2019 Time: 2:00 PM ET, 1:00 PM CT, 12:00 PM MT, 11:00 AM PT Follow these instructions at the time [...]
Congress Comments on CMS Proposed Rule Regarding ESRD Treatment Choices Model Demonstration
This month Members of Congress reached out to the Centers for Medicare and Medicaid Services (CMS) about the ETC Model, which is the same rule DPC commented on last month that pertains to increasing the number of home dialysis treatments and kidney transplants. In the letter, lawmakers raised concerns that parallel many of the priorities DPC advocates for in order to improve dialysis patient care. Specifically, the letter addressed: Improving access to care and treatment options Promoting patient choice Advancing care coordination Increasing access to transplant With over [...]
DPC Comments on CMS Proposed ESRD Annual Payment Rule to Improve Dialysis Patient Quality of Life
Each year—typically during the summer—the Centers for Medicare and Medicaid Services (CMS) puts out rules for how they are going to pay for dialysis treatment. The rules reflect CMS' latest policies, and organizations have the opportunity to provide feedback about the rules before they go into effect on January 1. DPC provided feedback to CMS regarding their end-stage renal disease (ESRD) Annual Payment rule. DPC's letter addresses the following important topics for improving ESRD patient care: Transitional Add-On Payment Adjustment for New and Innovative Equipment and Supplies [...]
Donor Protection Bill Signed into Law While Care Access Bill Now in the Hands of California Governor
As temperatures cool and the California legislature winds down from a flurry of late summer activity, two bills that would impact kidney disease patients recently landed on Governor Newsom’s desk for his signature or veto. We’re thrilled that the bill seeking to increase access to transplants by strengthening protections for living organ donors was just signed into law. This bill passed unanimously in the Senate, after a similar unanimous passage in the Assembly earlier this year. DPC supports this bill because it helps remove barriers for kidney [...]
Action Alert – Urge Your Legislators to Help Dialysis Patients by Supporting the Kidney Bill
Dialysis Patient Citizens (DPC) works hard to promote financial security as financial hardships are common for many people with end-stage renal disease. Congress has introduced a bill that would decrease the financial burden experienced by many dialysis patients and improve their access to care. The bill—known as the Chronic Kidney Disease Improvement in Research and Treatment Act of 2019 (S. 1676/ H.R. 3912)—would amend current law to ensure ESRD patients under the age of 65 have access to Medigap plans. Without a supplemental insurance like Medigap, Medicare [...]
DPC Advocates for Improved Patient Access to Care with State Lawmakers
Last month, DPC spoke with lawmakers at the National Conference of State Legislatures about the importance of having access to a supplemental insurance like Medigap to help pay for the deductibles and co-pays not covered by Medicare. When Medigap plans were first introduced, Congress only guaranteed issue of these plans to traditional Medicare beneficiaries and therefore did not extend this protection to those who gain Medicare coverage prior to age 65, including people with end-stage renal disease. Currently, only 28 states offer Medigap plans to people on dialysis. [...]
DPC Comments on CMS Proposed Rule Regarding ESRD Treatment Choices Model Demonstration
In response to the Administration's announcement to improve kidney health in America, the Centers for Medicare and Medicaid Services (CMS) proposed a rule to implement a mandatory Medicare payment model designed to increase the number of home dialysis treatments and kidney transplants, all while reducing Medicare expenditures. The rule—referred to as the End-Stage Renal Disease (ESRD) Treatment Choices Model (ETC Model)—would measure clinician and facility performance, as well as the rate of home dialysis and kidney transplants in selected geographic regions. These calculations would result in either [...]
Dialysis Issues Are Heating Up in California
With summer temperatures on the rise, so too are kidney care issues both nationally and in California, where dialysis policies in particular remain hot button topics despite the defeat of Proposition 8 last November by a relatively wide margin. In an effort to protect dialysis patients’ access to quality care, DPC continues to elevate the patient voice with policy makers while also committing even more resources on the ground. In fact, DPC recently established a new advocacy office in Sacramento less than a block from the State Capitol. We [...]
DPC’s 2019 Annual Membership Survey is Live!
Elevate the Voice of Patients with Kidney Disease and Their Caregivers Fellow kidney patients and family members, our 2019 Annual Membership Survey is live, and it will remain open until Friday, August 16. This survey takes your input as a patient with kidney disease and helps to shape our public policy agenda and patient education priorities for the next year. This year we are also surveying family caregivers of dialysis patients. In addition to determining Dialysis Patient Citizen's priorities, we regularly communicate survey results to state and federal level policy [...]
DPC Advances Quality of Care and Patient Choice
DPC supports an adequately funded treatment infrastructure that offers stable and convenient sources of care that rewards performance and incentivizes quality outcomes. In addition, we are committed to ensuring access to all forms of treatment for end-stage renal disease, including transplantation. As a result, we work closely with others within the renal community to advocate for adequate policy solutions that encourage organ donation and protect patients' health. In order for patients to make educated decisions about their care, they need transparency and accountability. A bill that was introduced [...]
The Administration’s Plan to Improve Quality of Life and Patient Choice for Dialysis Patients
President Donald J. Trump thanks DPC Board Member Nancy Scott prior to signing an Executive Order on Advancing American Kidney Health Wednesday, July 10, 2019, at the Ronald Reagan Building and International Trade Center in Washington, D.C. (Official White House Photo by Shealah Craighead) "I did dialysis. I did not let it do me." Those powerful words were shared by DPC Board Member Nancy Scott shortly before President Trump signed an Executive Order centered around improving kidney health in America on July 10, 2019. Scott [...]