About Hannah Bracamonte

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So far Hannah Bracamonte has created 521 blog entries.

HHS Announces Organ Procurement and Transplantation Network Modernization Initiative

2023-03-29T16:40:11+00:00March 22nd, 2023|Categories: Access to Transplant, Article, Treatment Options|

In March, the Health Resources and Services Administration (HRSA), an agency of the U.S. Department of Health and Human Services (HHS), announced a Modernization Initiative to strengthen accountability and transparency in the Organ Procurement and Transplantation Network (OPTN). The initiative includes posting of data dashboards detailing individual transplant center and organ procurement organization performance; improvement of the OPTN IT system; and competitive bidding to manage the OPTN. “Every day, patients and families across the United States rely on the Organ Procurement and Transplantation Network to save the lives of their loved ones who experience organ failure,” said Carole Johnson, HRSA Administrator. [...]

National Kidney Month Reminds Us of the Possibilities of Life on Dialysis

2023-03-29T16:45:07+00:00February 21st, 2023|Categories: Article, Care Coordination, Medigap Coverage, News, Patient Ambassadors, Patient's Voice, Policy Issues, Spotlight, Treatment Options|

The coming March marks the start of National Kidney Month, a time to promote kidney health, raise awareness of the obstacles facing patients, and advocate for policies that help them as they navigate life with kidney disease. However, National Kidney Month also means so much more. It is an opportunity to spread awareness of the fact that being on dialysis doesn’t mean having to put your life on hold. You can still pursue a career and do the things you love most, whether that’s traveling, camping, or spending time with family and friends. At Dialysis Patient Citizens, we are extremely [...]

2023 State Advocacy Kick-Off

2023-01-26T14:35:32+00:00January 25th, 2023|Categories: Article, Medigap Coverage, News, State Advocacy, Transplant Donor Protection|

It’s been a busy start in 2023 for DPC’s state advocacy efforts. Bills impacting dialysis patients are being introduced in multiple state legislatures and moving quickly through the legislative process. Legislation to expand Medigap access has already been introduced in Hawaii, Indiana, Kentucky, Nebraska, and Virginia. Improving Medigap access is a top policy priority for DPC, and we are pleased that multiple states are considering how they can expand access to Medigap plans, particularly in states that have limited or no access to Medigap for the under-age 65 End State Renal Disease (ESRD) population. Hearings are scheduled in the coming days [...]

Congressional Update

2023-01-26T14:32:29+00:00January 9th, 2023|Categories: Article, Medigap Coverage, Policy Issues|

The 118th Congress was sworn in earlier this month. It started off in historic fashion with a protracted fight on the House floor to elect a Speaker of the House, which Kevin McCarthy ultimately achieved on the 15th ballot. With Republicans controlling the House, and Democrats holding the White House and an expanded margin in the Senate, Congress will have to bridge the partisan gap to ensure the government remains open and in possession of its full faith and credit. Healthcare will of course be a major focus for the 118th Congress. At DPC will be working hard with our advocates [...]

No Escaping Kidney Disease

2023-01-09T20:38:02+00:00December 29th, 2022|Categories: Medigap Coverage, Patient Stories in the News|

To the Editor: Life with kidney disease is all I’ve ever known. I was born with this hidden illness and started receiving dialysis treatments at just 25 years old. Over the years, I’ve experienced the various hurdles patients face both as a kidney patient and as someone who is legally blind. Before my kidney transplant in 2018, I did in-center dialysis. As someone who is visually impaired, driving to and from the center wasn’t an option, so I relied on other forms of transportation, which became costly. I’m covered by Medicare and Medicaid for the dialysis itself, but still have [...]

Welcome to the Board – Eugene Blankenship

2022-12-22T19:12:00+00:00December 22nd, 2022|Categories: Article, Board Members|

Eugene Blankenship has witnessed the struggles dialysis patients deal with for his entire life. Kidney disease runs in his family, and he lost both his father and grandfather to complications from kidney disease. Eugene was diagnosed with polycystic kidney disease himself while on a camping trip in 2003. Since then, he has devoted himself to helping others affected by kidney disease, first as a DPC patient advocate and now as a member of our Board of Directors. Most patients have limited access to their representatives in Congress, so Eugene wants to play a part in ensuring that every patient’s unique [...]

Welcome to the Board – Terry Peeler

2022-12-22T19:12:13+00:00December 22nd, 2022|Categories: Article, Board Members|

Terry Peeler has devoted his life to public service, working for 25 years as a firefighter paramedic before kidney disease forced him to retire in October 2016. During his career in public service, Terry was appointed as the first African American full-time fire chief and paramedic in Sumter County, Alabama in 2000. He has also held roles as both Sumter County Coroner and Sumter County Sheriff. Having been used to serving others, the adjustment to needing assistance in his own care was a difficult shift. He now had to make a 72-mile round trip three times every week to undergo [...]

Welcome to the Board – Steve Ahern

2022-12-22T14:55:29+00:00December 22nd, 2022|Categories: Blog, Board Members|

Steve has been a dialysis patient for over six years, having battled through heart stents and two bouts of lung cancer. He is honored to be a member of our board, and eager to continue focusing his efforts on making life for dialysis patients as fulfilling as possible. Steve’s battle with kidney disease took many unexpected turns but taught him the importance of perseverance and keeping a positive attitude in difficult times. In 2016 Steve became eligible for a transplant, thinking he’d receive a new kidney within the year. However, he developed lung cancer which made him ineligible for a transplant. [...]

Welcome to the Board – Raymond Scott

2022-12-22T14:52:08+00:00December 22nd, 2022|Categories: Article, Board Members|

Raymond has been battling kidney failure for 22 years, and he credits the last eight of those to his home hemodialysis treatments. Raymond has a distinguished career as a dialysis and kidney disease advocate. Since his kidneys failed him at age 29, he has dedicated his life to helping others with kidney disease. In 2016 he was a Celebrity Star Dancer with the National Kidney Foundation’s Arizona Dancing With The Stars. Along with his beloved wife, Analyn, Raymond Co-founded 1in9 Charities, Inc, a nonprofit organization committed to creating hope and changing the trajectory of kidney disease. In 2019, Raymond and Analyn [...]

Blankenship: Kidney Patients Need Better Access to Coverage

2022-12-21T17:39:28+00:00December 21st, 2022|Categories: Medigap Coverage, Patient Stories in the News|

Learning you have kidney disease can be overwhelming, something I found out myself while camping in 2003. It’s hard for patients to get the information they need about living with kidney disease, and for many patients the costs of treatment are excessive. Starting on dialysis brought with it a lot of changes, one of them being that I had to cut back on my working hours. Kidney disease as a whole can make a person weak, and going through dialysis treatments for several hours multiple times a week can take a lot out of you. Because of that, though, I [...]

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