fbpx

Mother urges Congress to protect access to kidney care

2026-02-18T21:01:26+00:00February 17th, 2026|Categories: Increase Quality of Care, Innovation, Patient Ambassadors, Patient Stories in the News|

My daughter, Diana, passed away at 45 due to complications from kidney failure. Diagnosed with Type 1 diabetes at age 6, she later showed signs of kidney disease and needed dialysis for more than two years. Diana received two kidney transplants. The first, in 2008, was a gift from her aunt. We were fortunate that the transplant costs were covered. Without that support, too many living donor transplants are denied because of insurance barriers. In 2018, Diana was placed on the transplant list, and just one week later, she received a perfect match. Still, her challenges didn’t end there. A [...]

Open Enrollment Deadlines for Texas Dialysis Patients

2026-01-21T19:35:03+00:00January 12th, 2026|Categories: Article, Medicare Advantage, Medigap Coverage, State Advocacy|

In a major victory for under age 65 Texans living on dialysis, House Bill 2516 became law in 2025. HB 2516 provides access for under-age 65 dialysis patients to purchase affordable Medigap insurance plans A, B and D at the same premium rate as those who are age 65. The remaining Medigap lettered plans are available at 200% of the age 65 premium. This legislation impacts not only individuals who have just started dialysis and enrolled in Medicare Part B, but it also includes a one-time, 6-month open enrollment window for dialysis patients who are already enrolled in Medicare Part B. This [...]

Kidney health treatments

2026-02-19T19:47:20+00:00January 3rd, 2026|Categories: Increase Quality of Care, Innovation, Patient Ambassadors, Patient Stories in the News|

Regarding “Affordable Care Act premiums for Texas expected to rise in 2026,” (Dec. 30): Kidney disease runs deep in my family. My grandfather had kidney disease in the 1930s when few treatments even existed. My mother started dialysis in the 1980s and lived in constant fear of being dropped by her clinic due to coverage issues. I started dialysis in 2009 and stayed on it until 2023. On Sept.16, 2023, I received a kidney transplant from the University of Texas Medical Branch in Galveston. To God be the glory! I am deeply grateful, but I also know my journey isn’t [...]

Support kidney patients by fixing Medicare gaps

2025-12-02T18:29:51+00:00November 20th, 2025|Categories: Increase Quality of Care, Innovation, Patient Ambassadors, Patient Stories in the News|

In 2017, I had a heart attack, stroke, and was diagnosed with kidney failure. I soon began dialysis, the only treatment besides a transplant for kidney failure. Thankfully, I received a transplant more than three years ago. I may be post-transplant, but I know many who are still on dialysis, including my mother. My sisters and I have been caring for her through her dialysis journey. We couldn’t imagine our mother going through this alone. Yet, many patients don’t have support systems. That’s why we need a system that’s fair and forward-looking, one that doesn’t abandon patients. That’s why I’m [...]

Support restoring dialysis patient protections

2026-01-21T19:44:44+00:00November 16th, 2025|Categories: Featured Spotlight, Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security, Spotlight|

I’ve lived with End Stage Renal Disease (ESRD) since I was 9. ESRD is permanent kidney failure. Dialysis, a process that filters your blood when your kidneys no longer can, is what keeps me alive. I’ve spent over 20 years on dialysis, and I now do treatments at home several times a week. I worked most of my adult life, taking advantage of reliable private insurance from my employers for my costly treatments. That coverage helped me stay independent and maintain my health. But I recently became quite ill and had to stop working. My only option to supplement Medicare [...]

Upcoming Open Enrollment Deadlines for Nevada Dialysis Patients

2025-10-29T18:34:36+00:00October 29th, 2025|Categories: Article, Medicare Advantage, Medigap Coverage, Protect Patient Care, State Advocacy|

In a major victory for under age 65 Nevadans living on dialysis, Senate Bill 292 became law earlier this year. SB 292 provides access for under-age 65 dialysis patients to purchase affordable Medigap insurance plans A, B and D at the same premium rate as those who are age 65. The remaining Medigap lettered plans are available at 200% of the age 65 premium. This legislation impacts not only individuals who have just started dialysis and enrolled in Medicare Part B, but it also includes a one-time, 6-month open enrollment window for dialysis patients who are already enrolled in Medicare Part [...]

Support the Kidney Care Access Protection Act

2025-10-14T19:50:55+00:00October 11th, 2025|Categories: Increase Quality of Care, Innovation, Patient Ambassadors, Patient Stories in the News|

Kidney failure turned my life upside down. I was only 19 years old and three months pregnant when I began dialysis, the only treatment outside of a transplant for kidney failure. Since then, I’ve received a transplant that ultimately failed, and I’ve spent nearly a decade back on dialysis. It’s an exhausting and all-consuming treatment — but what makes it worse is how outdated and underfunded our system is when it comes to new therapies. That’s why I support the Kidney Care Access Protection Act (KCAPA). It would fix the way Medicare pays for innovative drugs and devices used in [...]

Restore Protections for Dialysis Patients

2025-11-21T18:02:01+00:00October 10th, 2025|Categories: Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security|

As a caregiver for my late father-in-law on dialysis – the only treatment for kidney failure outside of a transplant – I saw firsthand how taxing kidney disease can be. My wife, a nurse, handled his home dialysis treatments day after day. I helped wherever I could – driving him to appointments, shaving him when he could no longer manage, and offering the emotional support both he and my wife needed. Dialysis didn’t just affect him. It shaped our entire family’s life. We gave everything to help him stay home, stay comfortable, and maintain his dignity. Thankfully, he had sufficient [...]

Letter To The Editor: Kidney Failure, Dialysis, & Supporting Pending Legislation

2025-09-30T20:40:55+00:00September 24th, 2025|Categories: Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security|

To the Editor: Discovering I had End-Stage Renal Disease, or kidney failure, was one of the most shocking days of my life. I was a high school wrestler and felt healthy. I had recently become a proud godfather, cheering on my niece at her volleyball and softball games. I never thought I would have to confront a chronic condition. I wouldn’t be alive today without dialysis, a treatment that filters my blood several times a week. Dialysis is exhausting, but the financial burden can be just as draining. I’m fortunate to work for a company that allows me to adjust [...]

Letters: Dialysis patients need help from Congress to fight insurers

2025-11-25T18:20:38+00:00August 21st, 2025|Categories: Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security, Spotlight|

I’m writing not just as a nurse, but as a wife and caregiver. My husband Kenneth was diagnosed with IgA nephropathy at just 20 years old. That disease slowly damaged his kidneys, leading to kidney failure and the need for dialysis, a treatment that does the work of the kidneys by cleaning the blood when the kidneys can no longer do so. For the past decade, we’ve built our life around his treatment. We started with peritoneal dialysis at home, which involved using a catheter and fluid exchange to filter his blood overnight while he slept. When that was no [...]

Go to Top