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Support the Kidney Care Access Protection Act

2025-10-14T19:50:55+00:00October 11th, 2025|Categories: Increase Quality of Care, Innovation, Patient Ambassadors, Patient Stories in the News|

Kidney failure turned my life upside down. I was only 19 years old and three months pregnant when I began dialysis, the only treatment outside of a transplant for kidney failure. Since then, I’ve received a transplant that ultimately failed, and I’ve spent nearly a decade back on dialysis. It’s an exhausting and all-consuming treatment — but what makes it worse is how outdated and underfunded our system is when it comes to new therapies. That’s why I support the Kidney Care Access Protection Act (KCAPA). It would fix the way Medicare pays for innovative drugs and devices used in [...]

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Letter To The Editor: Kidney Failure, Dialysis, & Supporting Pending Legislation

2025-09-30T20:40:55+00:00September 24th, 2025|Categories: Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security|

To the Editor: Discovering I had End-Stage Renal Disease, or kidney failure, was one of the most shocking days of my life. I was a high school wrestler and felt healthy. I had recently become a proud godfather, cheering on my niece at her volleyball and softball games. I never thought I would have to confront a chronic condition. I wouldn’t be alive today without dialysis, a treatment that filters my blood several times a week. Dialysis is exhausting, but the financial burden can be just as draining. I’m fortunate to work for a company that allows me to adjust [...]

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Letters: Dialysis patients need help from Congress to fight insurers

2025-08-26T16:03:24+00:00August 21st, 2025|Categories: Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security|

I’m writing not just as a nurse, but as a wife and caregiver. My husband Kenneth was diagnosed with IgA nephropathy at just 20 years old. That disease slowly damaged his kidneys, leading to kidney failure and the need for dialysis, a treatment that does the work of the kidneys by cleaning the blood when the kidneys can no longer do so. For the past decade, we’ve built our life around his treatment. We started with peritoneal dialysis at home, which involved using a catheter and fluid exchange to filter his blood overnight while he slept. When that was no [...]

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DPC’s 2025 Advocacy Day

2025-07-23T14:55:01+00:00July 23rd, 2025|Categories: About DPC, Advance Patient Choice, Article, Improve Access to Care, Increase Quality of Care, Medigap Coverage, Patient Ambassadors, Private Insurance Coverage, Promote Financial Security, Protect Patient Care|

Last week, DPC hosted our annual Advocacy Day in Washington, D.C. where we bring together patients, family members, and care givers to meet with their Members of Congress to elevate the patient story for dialysis patients. This year we had 36 advocates attend, representing 24 states, who had over 80 Congressional meetings. Our patients spoke to their congressional leaders and encouraged their support for the Restore Act (H.R. 2199/S. 1173) and for the Kidney Care Access Protection Act (KCAPA), which is expected to be introduced soon. In doing so, they helped to elevate the voices of the ESRD community nationwide. Additionally, [...]

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He needs help to stay alive

2025-09-23T15:08:47+00:00July 20th, 2025|Categories: Featured Spotlight, Patient Ambassadors, Patient Stories in the News, Promote Financial Security, Spotlight|

At 12, a freak accident caused my kidneys to fail. My mother gave me the gift of life a second time when she donated one of her kidneys. But by 20, my body began rejecting it, and I had to start dialysis, a grueling treatment that filtered my blood because my kidneys no longer could. Three times a week, I sat in a chair for hours just to stay alive. Eventually, I received a second transplant. But even post-transplant I need expensive medications, lab work, and regular checkups. Thankfully, I have private insurance. It gave me coverage that Medicare could [...]

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Congress can help kidney patients

2025-09-23T15:08:31+00:00July 16th, 2025|Categories: Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security, Spotlight|

For decades, I worked as a teacher and mentor to students I loved. Then suddenly, I was diagnosed with kidney failure. Now, I’m a dialysis patient who relies on an exhausting treatment to survive. I was first diagnosed with kidney disease in 2016 after a family history of high blood pressure caught up with me. I came off dialysis for a few years after weight loss surgery, but in 2023, my kidneys failed again. I had to stop working, because of having too many doctor's appointments and too many sick days. I lost my private insurance, and Medicaid turned me [...]

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Congress, pass Restore Protections for Dialysis Patients Act

2025-08-26T19:40:22+00:00July 12th, 2025|Categories: Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Patient's Voice, Promote Financial Security, Spotlight|

I’ve lived with kidney failure since birth. After several transplants, I’ve now been on dialysis for 36 years, which is the only treatment besides a transplant for kidney failure. It’s not something you can skip. It’s a life-or-death treatment. That’s why I’m urging Congress to pass the Restore Protections for Dialysis Patients Act. This H.R. 2199 bill would ensure new dialysis patients can keep their private insurance for 30 months, a protection we used to have until a recent Supreme Court decision determined what health care we can receive. Private insurance gives patients better options, essential in those initial months [...]

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Dialysis Patient Citizens Applauds Texas Legislature for Passing Historic Bill Expanding Affordable Medigap Access for Dialysis and ALS Patients

2025-06-24T17:52:36+00:00June 23rd, 2025|Categories: Medigap Coverage, Patient Ambassadors, Press Release, Promote Financial Security, Protect Patient Care, State Advocacy|

Austin, TX (June 23, 2025) – House Bill 2516 has become public law, a significant victory for Texans living with End-Stage Renal Disease (ESRD), or kidney failure, and Amyotrophic Lateral Sclerosis (ALS). The legislation, championed by Representative Ryan Guillen (R-TX-31), received overwhelming bipartisan support in the Texas State Legislature, passing the House with a 133-4 vote and the Senate unanimously. The law guarantees that ESRD and ALS patients under the age of 65 can access affordable Medigap insurance. Specifically, Medigap Plans A, B, and D will be available at the same premium rate as for those age 65, while the [...]

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Medigap Protections become Law in Nevada and Texas

2025-06-25T13:56:23+00:00June 23rd, 2025|Categories: Article, Medigap Coverage, Patient Ambassadors, Promote Financial Security, Protect Patient Care, State Advocacy|

Two historic bills that expand affordable access to Medicare Supplement Insurance coverage, otherwise known as Medigap, have passed with overwhelming support in the states of Nevada and Texas this legislative session. Both bills provide affordable access to Medigap plans for dialysis patients who are under age 65. Sponsored and championed by Nevada State Senator, Roberta Lange (D-NV-7) and signed at the beginning of June by Governor Joe Lombardo (R-NV) Senate Bill 292 guarantees access to affordable Medigap coverage to Nevadans who are under age 65 and on dialysis. SB 292 fills a devastating gap in Medicare coverage for Nevadans who had [...]

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Rhode Island Passes Birthday Rule and Evaluates Community Rating for Medigap Plans

2025-06-25T14:04:54+00:00June 20th, 2025|Categories: Article, Medicare Advantage, Medigap Coverage, Promote Financial Security, Protect Patient Care, State Advocacy|

On Friday, June 20, the Rhode Island House passed SB610, Sub B, joining the Senate in approving a birthday rule and evaluation of adopting community rating for all Medicare Supplement plans.  SB 610 is awaiting the Governor’s signature. SB 610 does a number of things, including establishing a guaranteed-issue 6-month open enrollment period for individuals under-age 65 enrolled in a Medicare supplement (Medigap) plan who wish to switch to a different plan upon turning age 65.  While all individuals turning age 65 who enroll in Medicare Part B are entitled to this 6-month open enrollment period, this language eliminates any confusion [...]

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