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Dialysis Patient Advocates Urge Congress to Improve Kidney Disease Research and Care

2020-12-07T19:45:06+00:00May 30th, 2017|Categories: Dialysis Funding, Medigap Coverage, Press Release|

Advocates for dialysis patients announced their strong support of bipartisan legislation introduced in Congress last week that would augment research on kidney disease, improve coordination among kidney care providers and expand coverage options for patients with kidney failure, also called end-stage renal disease (ESRD). The Chronic Kidney Disease Improvement in Research and Treatment Act (H.R. 2644) would improve the care of the more than 675,000 ESRD patients nationwide who require transplantation or frequent dialysis treatments to survive. Dialysis Patient Citizens (DPC), a leading advocacy group for people with kidney disease that represents nearly 30,000 dialysis and pre-dialysis patients, is particularly [...]

Dialysis Patient Advocates Applaud Ruling in Case Against CMS

2020-09-24T16:49:43+00:00January 25th, 2017|Categories: Access to Transplant, Charitable Premium Assistance, Legal Defense, Medigap Coverage, Press Release|

Federal court blocks CMS regulation that would give insurers veto power over access to private coverage; judge calls it ‘arbitrary and capricious’ Washington, D.C. – Advocates for dialysis patients are celebrating a federal court ruling today to grant a preliminary injunction preventing the U.S. Department of Health and Human Services (HHS) from implementing a regulation that could force patients off their current health insurance and jeopardize their access to care. In enjoining the regulation’s enforcement, the U.S. District Court for the Eastern District of Texas held that the rule was 1) procedurally defective because HHS adopted it without first giving [...]

Dialysis Patient Advocates Seek Restraining Order Against CMS

2020-09-24T16:50:32+00:00January 9th, 2017|Categories: Access to Transplant, Care Coordination, Charitable Premium Assistance, Medigap Coverage, Press Release, State Advocacy|

Lawsuit charges that CMS rule to take effect Jan. 13 gives insurers illegal veto power over access to private coverage Washington, D.C. – Advocates for dialysis patients filed suit in federal court today to prevent the U.S. Department of Health and Human Services (HHS) from enforcing a rule that could force patients off their current health plans and jeopardize their access to care. The regulation, which the Centers for Medicare and Medicaid Services (CMS) issued Dec. 13 outside the formal rulemaking process, gives insurers the power to prevent dialysis patients from receiving charitable premium assistance that makes it possible for [...]

Dialysis Patients Outraged by CMS Move Giving Insurers Illegal Veto Power Over Access to Private Coverage

2020-09-28T16:22:18+00:00December 19th, 2016|Categories: Access to Transplant, Care Coordination, Charitable Premium Assistance, Legal Defense, Medigap Coverage, Press Release|

Dialysis Patient Citizens says CMS rule tacitly allows insurers to discriminate based on patients’ health condition Washington, D.C. – Advocates for dialysis patients are outraged by an interim final rule issued late yesterday by the Centers for Medicare and Medicaid Services (CMS) that could force patients off their current health plans and jeopardize their access to care. The rule, which CMS wrote with the stated purpose of ensuring that dialysis patients receive accurate information about their health coverage options, instead empowers insurers to prevent those patients from receiving charitable premium assistance that makes their health insurance affordable. “The administration is [...]

Dialysis Facility Compare Star Ratings Draw First Challenge to CMS Quality Measures Under Data Quality Act

2020-03-21T20:45:44+00:00December 16th, 2014|Categories: 5-Star Ratings, Press Release|

Skewed geographic distribution of star ratings demonstrates program’s flaws, says Dialysis Patient Citizens WASHINGTON, D.C. (Dec. 16, 2014) — Dialysis Patient Citizens has filed the first challenge to a CMS quality program under the Data Quality Act, contending that the agency’s Dialysis Facility Compare (DFC) star ratings methodology fails to satisfy federal requirements for objectivity and utility in presenting information to the public. The day after being served with the complaint, CMS conceded it should have conducted cognitive testing of this system on consumers, reversing a position the agency had defended for nearly four months. “We felt this challenge was necessary in light of CMS’ continued refusal to [...]

Dialysis Advocates Praise Introduction of Kidney Transplant Drug Access Legislation

2020-12-07T22:12:35+00:00March 28th, 2013|Categories: Access to Transplant, Immunosuppressive Drug Coverage, Press Release|

Urge Support for the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2013 (Washington, DC) – In honor of National Kidney Month, dialysis patient advocates praised the introduction of the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2013 (S.323/H.R. 1325). This vital legislation will extend anti-rejection drug coverage for kidney transplant patients under the age of 65 beyond the current three year period. The bill would ensure transplant patients receive the necessary medications to maximize the life of the donated organ while using our limited federal resources more efficiently. “While receiving a kidney transplant is a [...]

Dialysis Patient Citizens’ Patient Advocates Storm Capitol Hill

2020-12-08T15:05:51+00:00September 19th, 2011|Categories: Access to Transplant, Immunosuppressive Drug Coverage, Press Release|

Participants met with Members of Congress to Discuss Extending Immunosuppressive Drug Coverage for Transplant Patients, Deficit Reduction Efforts (Washington, DC) – Last week, patient advocates with Dialysis Patient Citizens (DPC) traveled to Washington, DC to meet with their Members of Congress and discuss legislative issues important to the 31 million Americans with chronic kidney disease. Participants from 21 states came to the nation’s capital for a multi-day trip that included a congressional briefing, training session and culminated in a day of meetings on Capitol Hill. DPC, the nation’s largest patient-led dialysis organization, organized the event in an effort to raise awareness [...]

Dialysis Patient Citizens Provides Comments to CMS on ESRD Quality Incentive Program

2020-12-04T19:46:49+00:00August 31st, 2011|Categories: Press Release, Quality Incentive Program|

Letter Outlines Key Priorities Including Timeliness of Data, Lower Level Hemoglobin Measure (Washington, DC) - Yesterday, Dialysis Patient Citizens (DPC), the nation’s largest, patient-led dialysis organization, provided comments to the Centers for Medicare and Medicaid Services (CMS) on the Proposed Rule for the Changes to the End Stage Renal Disease Prospective Payment System for CY 2012, End Stage Renal Disease Quality Incentive Program for PY 2013 and PY 2014. As a member of Kidney Care Partners (KCP), DPC stated its strong support for the comments submitted by the coalition, and used the letter as an opportunity to emphasize several key [...]

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