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DPC Comment Letter to CMS Recounts Heartbreaking Story of Rural Dialysis Clinic Closure

2025-08-28T13:48:55+00:00August 28th, 2025|Categories: Comment Letter, Dialysis Funding, Improve Access to Care, Innovation, Policy Issues, Promote Financial Security, Protect Patient Care, Quality Incentive Program, Staffing Shortages, Treatment Options|

DPC has submitted its comments responding to this year’s Medicare ESRD Payment Rule. The Medicare agency is proposing a payment update of only 1.9%, which doesn’t keep pace with increasing costs. According to the Bureau of Labor Statistics, compensation costs for civilian workers increased 3.6 percent for the 12-month period ending in June, while inflation was 2.7%. The Medicare Payment Advisory Commission recently reported that dialysis clinics’ Medicare margin was –1.1 percent in 2022 and –0.2 percent in 2023. They project a 2025 FFS Medicare margin of 0 percent. The comment letter brought officials’ attention to the story of a [...]

DPC’s Letter to Dr. Mehmet Oz, Administrator at Centers for Medicare & Medicaid Services, on ESRD Prospective Payment System

2025-09-11T17:44:31+00:00August 27th, 2025|Categories: Comment Letter, Dialysis Funding, Improve Access to Care, Innovation, Policy Issues, Promote Financial Security, Protect Patient Care, Quality Incentive Program, Staffing Shortages, Treatment Options|

August 27, 2025 The Honorable Mehmet Oz Administrator Centers for Medicare & Medicaid Services 200 Independence Avenue, SW Washington, DC  20001 Re: CMS-1830-P - End-Stage Renal Disease Prospective Payment System  Dear Dr. Oz: Dialysis Patient Citizens (DPC) writes to offer its comments on the above referenced proposed rule. DPC's membership, currently about 35,000, is restricted to kidney disease patients and their family members. DPC is a patient-led organization.  Our by-laws require that the President, Vice President and at least 51% of the Board be current dialysis patients.  The non-dialysis patients serving on our Board are former dialysis patients with kidney [...]

Letter: Medicare, Medicaid not keeping up with inflation, hurting patient care

2024-06-06T16:32:28+00:00June 5th, 2024|Categories: Dialysis Funding, Medicare Advantage, Patient Stories in the News, Staffing Shortages|

Dear Editor, I was born with a rare genetic disorder that caused my kidneys and eyes to be underdeveloped. I have battled chronic kidney disease at all levels throughout my entire life. At age 25, I went into complete kidney failure (AKA End Stage Renal Disease) and began dialysis, which is a continuous and grueling treatment which does the work my kidneys can’t. The financial and emotional difficulties I’ve dealt with have been very challenging. Unfortunately, I must also worry about medical workforce shortages caused by a lack of federal funding. Over the past few years, the Centers for Medicare [...]

Letter: Medicare failed us

2024-05-10T15:08:12+00:00May 6th, 2024|Categories: Dialysis Funding, Medicare Advantage, Patient Stories in the News, Staffing Shortages|

As a program coordinator for the Kidney Foundation of Central Pennsylvania, I have made it my life’s mission to help kidney patients manage their condition. I see or hear stories of the inadequate standards of care currently practiced at clinics, hospitals and specialist practices in this country. Many patients I talk to are frustrated and feel like they have been forgotten. We must do better. The problem lies in the lack of health care workers. A severe lack of funding makes it more difficult to hire and keep doctors, nurses and technicians. Much of the problem is demographic. With fewer [...]

Poor care? Blame Medicare payments

2024-04-16T15:09:10+00:00April 14th, 2024|Categories: Dialysis Funding, Medicare Advantage, Patient Stories in the News, Staffing Shortages|

My husband Raymond and I met on a blind date. Three months later, his kidney unexpectedly failed, and I have walked alongside him on his patient journey ever since. My husband’s life depends on dialysis, the treatment that does what his kidney can’t do. Unfortunately, we confronted problems with our dialysis center that reflect larger trends caused by insufficient reimbursements from the Center for Medicare and Medicaid Services (CMS). Our nation is confronting a demographic crisis, with fewer working-aged people and more patients, which is why we are seeing worsening shortages of health care workers. CMS’ reimbursements have been far [...]

Reimbursement rates for health care professionals needs to be increased

2024-04-15T14:49:54+00:00April 7th, 2024|Categories: Dialysis Funding, Medicare Advantage, Patient Stories in the News, Staffing Shortages|

As a patient with End Stage Renal Disease (ESRD), or kidney failure, I know how health care workforce shortages can affect patients. I have been on dialysis for 7 years. At the clinic where I receive dialysis – the life-saving treatment which replaces my kidney function – any staff shortage can mean the difference between a smooth treatment and chaos. America is facing a historic health care workforce crisis. Staffing challenges and high demand have led to gaps in care like longer emergency room wait times. Unfortunately, Medicare is failing to address inadequate staffing and care. The Centers for Medicare and Medicaid [...]

DPC Expresses Outrage at CMS Indifference to Dialysis Patient Suffering

2024-03-29T01:09:15+00:00October 31st, 2023|Categories: Article, Dialysis Funding, Improve Access to Care, Increase Quality of Care, Innovation, News, Staffing Shortages|

On October 27, 2023, the Centers for Medicare & Medicaid Services (CMS) issued its final rule updating payment rates and policies under the end-stage renal disease (ESRD) prospective payment system. This rule fails to address two serious problems currently facing dialysis patients, which DPC raised in its comment letter: workforce shortages and lack of access to innovative treatments. DPC’s statement on the Rule is available here.

Dialysis Patient Citizens Responds to Disappointing Final CMS Rule That Will Harm Patient Healthcare

2024-03-29T01:09:15+00:00October 30th, 2023|Categories: Dialysis Funding, Innovation, News, Press Release, Staffing Shortages|

WASHINGTON, D.C. (October 30, 2023) - Dialysis Patient Citizens (DPC), the nation’s largest patient-led, non-profit advocacy group for dialysis patients, released the following statement in response to the final rule issued by the Centers for Medicare and Medicaid Services (CMS) which only increases Medicare reimbursements for dialysis treatment centers by 1.6% and fails to properly fund access to new therapies. “The End Stage Renal Disease (ESRD) final rule released on Friday paints a chilling picture of an agency that is completely indifferent to the suffering of dialysis patients,” said DPC President Andrew Conkling. “The regulation acknowledges the heartbreaking stories from [...]

DPC Commentary Discusses How Workforce Shortages Impact Patients

2024-03-29T01:09:16+00:00September 20th, 2023|Categories: Article, Medicare Advantage, Promote Financial Security, Staffing Shortages, Uncategorized|

A commentary about workforce shortage issues authored by DPC Vice President of Public Policy Jackson Williams amplifies findings from this summer’s DPC member survey to explain how ESRD patients have been impacted. The article also discusses how Medicare policies must adapt for an era with fewer working-age Americans and more retirees. The article is available on AJMC’s website: https://www.ajmc.com/view/contributor-medicare-s-leadership-needs-to-confront-our-shrinking-us-workforce, as well as on DPC’s website: https://www.dialysispatients.org/news/medicares-leadership-needs-to-confront-our-shrinking-us-workforce/.

AJMC Contributor Article: Medicare’s Leadership Needs to Confront Our Shrinking US Workforce

2024-03-29T01:09:16+00:00September 17th, 2023|Categories: Article, Improve Access to Care, Medicare Advantage, News, Policy Issues, Promote Financial Security, Staffing Shortages|

Written by Jackson Williams, JD, DPC Vice President of Public Policy Medicare’s administered pricing system has never had to deal with labor scarcity before. Fifteen years ago, the Institute of Medicine issued its report, “Retooling for an Aging America: Building the Health Care Workforce,” that warned of looming health workforce shortages due to demographic changes. The era foreseen by that report has likely arrived. Labor shortages are beginning to impact patient care. Media reports indicate numerous instances of hospitals declaring “contingency standards of care” or ordering ambulance diversions due to staffing shortages. I’m an advocate for patients who have end-stage renal disease (ESRD), who [...]

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