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Increasing State Policy Maker Outreach to Better Support our Members During COVID-19

2024-03-29T01:12:06+00:00April 21st, 2020|Categories: Advance Patient Choice, Article, Improve Access to Care, Increase Quality of Care, News, State Advocacy|Tags: |

DPC works tirelessly on behalf of its patient members to elevate their voice and concerns to elected officials about policy issues that impact ESRD patients. As you know, DPC has expanded its state advocacy efforts over the past year and added two staff members who focus on state issues and government relations. So, how does an organization continue this level of engagement during a pandemic when state legislatures are recessed, and social distancing doesn’t allow face-to-face interactions? Moreover, most state governments are focused solely on fighting COVID-19 and not passing bills or expanding regulation unrelated to COVID-19. The COVID-19 crisis [...]

Advancing Care Coordination for Dialysis Patients: An Update

2024-03-29T01:12:06+00:00April 20th, 2020|Categories: Patient Stories in the News|

Efforts to modernize the delivery of quality care to dialysis patients reach several milestones in 2020: Medicare’s first care coordination program for kidney care, the Comprehensive ESRD Care Model, expires at the end of this year; providers have been invited to participate in a new program, the Comprehensive Kidney Care Contracting Model; end-stage renal disease (ESRD) patients will, in October, for the first time have access to their choice of Medicare Advantage plans effective January 1, 2021; and a new bill is being introduced in Congress to create another integrated care option for kidney patients.  Why Care Coordination? Most dialysis [...]

Care Coordination Fixes One of the Biggest Flaws in the American Health Care System.

2024-03-29T01:12:06+00:00April 1st, 2020|Categories: Patient Stories in the News|

As a dialysis patient, it has become clear to me that one of the biggest flaws in the American health care system is the disjointed way care is often provided to patients. If patients have chronic conditions alongside other health complications, it can be exceedingly difficult to navigate the different doctors and hospitals we need in order to receive proper care. When seeing so many different doctors at various clinics and hospitals, patients like me can suffer adverse effects if all our treatments are not designed to address our full medical history, rather than a single disease. This can be [...]

COVID-19 Resources for Dialysis Patients

2024-03-29T01:12:06+00:00March 31st, 2020|Categories: Article, Promote Financial Security, Transportation Services|Tags: |

Here is a list of resources for dialysis patients to help them get additional support during the COVID-19 viral outbreak and beyond. Resource topics include: disability, financial assistance, nutrition, healthcare, housing and utilities, jobs, transportation, women and children, daily living, and staying safe. In addition, visit your state department of health website for COVID-19 information that is specific to your area.

DPC Supports Increased Access and Quality of Care for Dialysis Patients Amid COVID-19

2025-01-30T20:55:41+00:00March 23rd, 2020|Categories: Care Coordination, Comment Letter, Increase Quality of Care, Medicare Advantage, Transportation Services, Treatment Options|Tags: |

DPC provided feedback to the U.S. Department of Health and Human Services (HHS) regarding the COVID-19-related issues that the kidney community is facing. DPC made recommendations to HHS in the following areas: Transportation COVID-19 Treatments and Vaccinations Home Dialysis People with End-Stage Renal Disease have a higher risk for developing a severe illness from COVID-19. As a result, it is crucial we do all that we can to help this vulnerable population in order to decrease the negative impact and spread of the virus. Read DPC's letter to HHS below for more details: Kumiko Lippold, PhD, MPH Department of Health [...]

DPC Comments on CMS Proposed Rule Regarding Medicare Advantage

2024-03-29T01:12:07+00:00March 10th, 2020|Categories: Care Coordination, Comment Letter, Medicare Advantage, Treatment Options|

In 2021 End-Stage Renal Disease (ESRD) patients will be permitted to enroll in Medicare Advantage (MA) plans, potentially bringing major changes to ESRD care and how patients experience it. When open enrollment begins this fall, we want to make sure patients have access to the same robust benefits offered with MA plans right now. DPC reached out to the Centers for Medicare & Medicaid Services (CMS) with recommendations on how to ensure ESRD patients maintain the access, choice and quality care they expect when these benefits are available to everyone. Currently, the only ESRD patients with MA plans are those [...]

DPC Increases Advocacy Efforts with New and Promoted Team Members

2024-03-29T01:12:07+00:00February 18th, 2020|Categories: Article, Staff, State Advocacy|

Elevating the patient voice with policy makers to protect dialysis patients’ access to quality care remains a core part of what we do at Dialysis Patient Citizens (DPC). To help us take our advocacy efforts to new heights, DPC recently promoted one of our team members, added two new staff and opened another office. Rhonda Clark, who has worked with DPC since June of 2016, was promoted to Grassroots Manager. Clark will spearhead DPC's grassroots efforts to help elevate the patient voice of 31 million Americans with Chronic Kidney Disease and the half-million patients with kidney failure. Clark manages DPC's [...]

Action Alert – Secure Patient Access to Immunosuppressive Medications

2024-03-29T01:13:32+00:00January 12th, 2020|Categories: Access to Transplant, Article, Immunosuppressive Drug Coverage, Take Action|

The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2019 (H.R. 5534) was recently introduced by Representatives Ron Kind (D-WI) and Michael Burgess (R-TX). This legislation would extend Medicare coverage of immunosuppressant drugs beyond the current limit of 36 months for patients who are unable to obtain health insurance coverage elsewhere. Immunosuppressive medications play a critical role in preventing transplant recipients from rejecting a donor kidney. Right now, after dialysis patients receive a transplant, if they are under the age of 65, they are only eligible to remain on Medicare for an additional 36 months. After this three-year [...]

Court Temporarily Blocks AB 290, Allowing Charitable Assistance Program to Continue Serving Dialysis Patients Pending Trial Outcome

2024-03-29T01:13:32+00:00January 8th, 2020|Categories: Article, Charitable Premium Assistance, Improve Access to Care, Legal Defense, State Advocacy|

DPC works hard to protect patient access to quality care for all dialysis patients, which is often only possible with the support charitable assistance from organizations such as the American Kidney Fund (AKF). Unfortunately, a new law recently enacted in California threatens that access. DPC quickly joined AKF and two patients as plaintiffs in a lawsuit seeking to prevent this newly passed law from going into effect at the start of 2020. In late December, we were pleased that the court recognized our concerns of potential patient harm, granting us a preliminary injunction, which prevents the law from taking effect [...]

Medigap Coverage Gains Support in New Legislation

2024-03-29T01:13:32+00:00January 4th, 2020|Categories: Article, Medigap Coverage, Take Action|

During recent discussions on drug pricing legislation, House leadership decided to use some of the potential savings to pay for some of our priorities. One such provision would provide all dialysis patients with access to Medigap—a supplemental insurance plan which helps patients pay for the expenses not covered by Medicare. This priority was originally included in the Chronic Kidney Disease Improvement in Research and Treatment Act (S. 1676/ H.R. 3912) or “Kidney Bill.” Under Federal law, Medicare beneficiaries age 65 and older are guaranteed access to Medigap policies, but beneficiaries under age 65, including many with End-Stage Renal Disease (ESRD), [...]

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