By Tony B., Director of Research and Information
Today we are excited to announce the creation of a new sister organization The DPC Education Center (The Center). The new organization, which is incorporated as a 501(c)(3) non-profit, will work together with DPC to advance their shared mission of improving the quality of life of all kidney disease and end-stage renal disease (ESRD) patients.
The Center is dedicated to improving kidney patients’ quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney disease issues, improving the partnership between patients and caregivers and developing favorable public policy solutions. It is a patient-led organization headed by a Board of Directors comprised of 14 ESRD patients, including 9 current dialysis patients and 5 transplant recipients.
Last week we were able to give a sneak peek of our website to our members, and the feedback so far has been wonderful. It is now our pleasure to unveil the product of our blood sweat and tears (only a few), the new website at http://www.DPCEdCenter.org.
It still kind of blows my mind how far we came from an idea, to a sketch on paper, to a set of slides in PowerPoint and then to the product that we have today. During the process, we had the pleasure of working with an amazing web team at Breakthrough Technologies, and I would like to send a special thanks to Luke, Kevin and Eric who put up with all of our questions. Without their help I fear that we would have ended up something reminiscent of the early 90’s sites.
Ever since that first idea, we have focused on making the site and the organization both accessible and functional. We could create the greatest resources in the world, but that would mean nothing if you couldn’t figure out how to find them. Additionally, as an organization we want to make sure that we are able to get our educational resources and tools into the hands of the people that need them the most in the format that works best for them. However, we are all excited about the mission and all of the possibilities for The Center.
When you have some time in the next few weeks check out the site at http://www.DPCEdCenter.org and let us know what you think. You can even help suggest things that we should work on to advance patient education and quality of care.