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Texas Medigap Update – May 2025

2025-05-22T19:46:41+00:00May 22nd, 2025|Categories: Article, Medigap Coverage, Promote Financial Security, Protect Patient Care, State Advocacy|

Texas House Bill 2516 was unanimously approved by the House Insurance Committee and passed off the House Floor with overwhelming bipartisan support (130-19). This legislation, which will provide affordable access to Medicare Supplement Insurance (Medigap) to individuals who are under age 65 with ESRD, is now in the Texas Senate. HB 2516 recently passed unanimously out of the Senate Health and Human Services Committee and is expected to be heard on the Senate Floor shortly. Throughout the legislative process, we’ve had nearly 20 Texas legislators join author Representative Ryan Guillen to support this important bill. Many thanks to all of [...]

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DPC Submits Letter to HRSA on Out-of-Sequence Organ Donation

2025-05-22T17:13:52+00:00May 22nd, 2025|Categories: Access to Transplant, Advance Patient Choice, Article, Protect Patient Care|

On May 21, 2025, DPC submitted a letter to Thomas J. Engels, Administrator at the Health Resources and Services Administration (HRSA), expressing concern about the growth in out-of-sequence organ transplants reported in a recent New York Times article. The article outlines a recent shift in the transplant system, where someone’s ranking on the transplant list may be ignored and instead the organ is given to a patient further down the list, usually due to easier coordination for the transplant. As a patient-led organization whose board is comprised of dialysis and kidney transplant patients, DPC is alarmed at the reported rate [...]

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DPC’s Letter to Thomas J. Engels, Administrator at Health Resources and Services Administration, on Out-of-Sequence Organ Allocations

2025-05-21T20:16:46+00:00May 21st, 2025|Categories: Advance Patient Choice, Article, Improve Access to Care, Increase Quality of Care, Protect Patient Care|

May 21, 2025 Thomas J. Engels, Administrator Health Resources and Services Administration 5600 Fishers Lane Rockville, MD 20857 Re:      Out-of-Sequence Organ Allocations Dear Administrator Engels: Dialysis Patient Citizens (DPC) writes to express our concerns about the growth in out-of-sequence organ transplants reported in a recent New York Times article. DPC's membership, currently about 35,000, is restricted to kidney disease patients and their family members. DPC is a patient-led organization.  Our by-laws require that the President, Vice President and at least 51% of the Board be current dialysis patients.  The non-dialysis patients serving on our Board are former dialysis patients with [...]

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Nevada Medigap Update – May 2025

2025-05-22T17:19:44+00:00May 19th, 2025|Categories: Article, Medigap Coverage, Patient Ambassadors, Promote Financial Security, Protect Patient Care, State Advocacy|

After unanimous passage in the Nevada State Senate, the Nevada Assembly Committee on Commerce and Labor unanimously approved Senate Bill 292 on May 16th. Sponsored by State Senator Roberta Lange (NV-7), this important legislation will provide access to affordable Medicare Supplement Insurance, otherwise known as Medigap to the under age 65 Medicare eligible population. Currently individuals under age 65 in the state of Nevada who are eligible for Medicare as a result of End Stage Renal Disease or by disability are not able to access Medigap coverage. Nevada resident and DPC Patient Ambassador, Chuck Lizer, shared his story with the [...]

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Dialysis Patient Citizens and the DPC Education Center Mourn the Passing of Natalie Zuniga

2025-04-14T16:29:03+00:00April 14th, 2025|Categories: Article, Board Members|

It is with a heavy heart that DPC and the DPC Education Center Board, staff, and volunteers learned of the passing of our Board Vice President, Natalie Zuniga. Natalie was from San Antonio, TX, where she lived with her husband of 40 years, Eddie, and raised their daughter. Natalie worked as a corporate travel agent for over 30 years before she was diagnosed with end-stage renal disease (ESRD), a job she loved because she got to travel and meet new people. Natalie was a dialysis patient for 10 years prior to receiving a transplant just a month ago. Though Natalie’s [...]

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Dialysis Patient Citizens Applauds Introduction of Bipartisan Legislation Restoring Protections for Dialysis Patients

2025-03-31T14:14:05+00:00March 31st, 2025|Categories: Article, News, Press Release, Private Insurance Coverage, Promote Financial Security|

WASHINGTON, D.C. (March 30, 2025) -- Dialysis Patient Citizens (DPC), the leading advocacy organization for dialysis patients nationwide, today released the following statement applauding the introduction of the Restore Protections for Dialysis Patients Act (S. 1173/H.R. 2199) to restore access to critical health insurance coverage for patients who choose it. The bill was introduced in the Senate by Senators Cory Booker (D-NJ), Bill Cassidy (R-LA), Kevin Cramer (R-ND) and Martin Heinrich (D-NM), and it was introduced in the House by Representatives Mike Kelly (R-PA), Yvette Clarke (D-NY), Neal Dunn (R-FL), Danny Davis (D-IL), John Joyce (R-PA), and Raul Ruiz (D-CA). “On [...]

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Nevada Moves Closer to Medigap for ESRD Patients

2025-03-31T18:39:44+00:00March 28th, 2025|Categories: Article, Medigap Coverage, News, Patient Ambassadors, Protect Patient Care, State Advocacy|

On March 27th, the Nevada Senate Committee on Commerce and Labor unanimously approved Senate Bill 292. Sponsored by State Senator Roberta Lange (NV-7), this important legislation will provide affordable access to Medigap coverage to the under age 65 Medicare eligible population. Nevada resident and DPC Patient Ambassador, Chuck Lizer, shared his story with the committee, helping legislators understand the unique challenges faced by dialysis patients. SB 292 will now go to the full Senate for consideration, and if approved, moves to the Nevada State Assembly. Thank you, Chuck, for advocating for ESRD patients in Nevada!

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Dialysis Patient Citizens and the DPC Education Center Mourn the Passing of Stephen Ahern

2025-03-24T15:18:15+00:00March 24th, 2025|Categories: Article, Board Members|

It is with a heavy heart that DPC and the DPC Education Center Board, staff, and volunteers learned of the passing of one of our Board Members, Stephen (Steve) Ahern. Steve was born and raised just outside of Philadelphia, PA, and was a lifelong Eagles fan. He worked for the Federal Bureau of Investigation before working as a Commercial Loans Officer for PSFS Bank. Steve moved to Cape May County 40 years ago and worked as a real estate agent in Avalon and Stone Harbor, NJ, a seasonal beach community along the southern Jersey shore. He also volunteered with his local [...]

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Georgia Medigap Legislation Passes First Hurdle

2025-02-27T14:59:05+00:00February 25th, 2025|Categories: Article, Medicare Advantage, Medigap Coverage, Patient Ambassadors, Promote Financial Security, Protect Patient Care, State Advocacy|

On February 24, HB 323 was unanimously approved by the Health Committee of the Georgia House of Representatives. Sponsored by State Representative Karen Mathiak (R-82), this legislation will provide affordable access to Medigap coverage to the under 65 Medicare eligible population. DPC Patient Ambassadors Kristi Flynn and Christopher Richards shared their stories with the committee, helping legislators understand the unique challenges faced by both kidney transplant and dialysis patients. HB 323 will now go to the full House for consideration, and if approved, moves over to the Senate. Thank you, Kristi and Christopher, for traveling to Atlanta to advocate for all [...]

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Building Momentum: DPC’s Growing Patient Ambassador Network

2025-02-27T15:04:29+00:00February 10th, 2025|Categories: Advance Patient Choice, Article, Improve Access to Care, Increase Quality of Care, Medigap Coverage, Patient Ambassadors, Policy Issues, Private Insurance Coverage, Promote Financial Security, Protect Patient Care, State Advocacy|

By Yolonda Brisbane, DPC Grassroots Manager Since I began my role as Grassroots Manager for Dialysis Patient Citizens (DPC) in April 2022, I’ve had the privilege of witnessing the growth of something truly special—the Patient Ambassador Program. This network of DPC members from across the country is dedicated to amplifying their voices and making a real difference. Turning personal health challenges and difficult experiences into action, they advocate for better care for the kidney patient community. In addition to their ongoing advocacy efforts, DPC Patient Ambassadors take part in Advocacy Day in Washington, DC, meeting with lawmakers to push for positive [...]

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