In response to the Administration's announcement to improve kidney health in America, the Centers for Medicare and Medicaid Services (CMS) proposed a rule to implement a mandatory Medicare payment model designed to increase the number of home dialysis treatments and kidney transplants, all while reducing Medicare expenditures. The rule—referred to as the End-Stage Renal Disease (ESRD) Treatment Choices Model (ETC Model)—would measure clinician and facility performance, as well as the rate of home dialysis and kidney transplants in selected geographic regions. These calculations would result in either an increase or decrease of Medicare funding to a particular facility or clinician, [...]
Congressman Donald Payne Jr. is a Representative for New Jersey's 10th congressional district. He has end-stage renal disease (ESRD) and receives in-center dialysis treatment multiple times a week. Payne spoke with advocates during DPC's 2019 Annual Fly-In about his experience with dialysis and the efforts he is taking to elevate the patient voice. Payne's incidence with kidney failure is similar to the stories shared by thousands of people on dialysis. The progression of his diabetes led to the decline in his kidney function, and Payne speaks openly about his struggle to maintain a healthy lifestyle. Establishing dialysis access has been a [...]
Dialysis Patient Citizens continues to work hard advocating to increase quality of care for patients. We are supporting a house bill that encourages research and innovations to provide patients with hope and new treatment options. This is an important issue because there has been little progress made in treatment for dialysis patients when compared to other diseases. In addition, advances in dialysis care could astronomically improve the lives of millions of Americans with kidney disease. We will continue to work hard to improve the dialysis patient quality of life by elevating the voice of patients with policy makers.
Assembly Member Jim Wood Chair Committee on Health State Capitol, Room 6005 Sacramento, CA 95814 Assembly Member Chad Mayes Vice Chair Committee on Health State Capitol, Room 6005 Sacramento, CA 95814 Re: Support for AB 1448 Dear Chairman Wood and Vice Chairman Mayes: With 32,000 dialysis patient members, over 4,000 of whom reside in California, Dialysis Patient Citizens (DPC) is the nation’s largest patient-led organization representing individuals with end-stage renal disease (ESRD). On behalf of California’s 70,000 ESRD patients and the DPC Board of Directors, I am writing to express our strong support for [...]
Receiving dialysis treatment three times a week is critical for the survival of the 6,000 patients in Oregon with End-Stage Renal Disease, or kidney failure. Unfortunately, this access to treatment is being threatened with Senate Bill 900, which may disrupt the provider network dialysis patients rely on and lower the quality of care they depend on. Specifically, we are concerned that SB 900 will cut reimbursement rates private insurance companies pay to cover dialysis care. These reimbursement rates are crucial to dialysis facilities because Medicare does not cover the full cost of care for treating dialysis patients. Reduced payments may [...]
By Megan Hashbarger, Director of Congressional and State Relations, Dialysis Patient Citizens Dialysis Patients Citizen’s (DPC) mission is to improve dialysis citizens’ quality of life. As a result, we have played an important role in increasing patient access to: health insurance coverage, care coordination, medications and innovative therapies. While we work hard to improve public policies for patients, sometimes we are put on defense to protect our previous hard-fought victories. One of the most important tools for protecting patient choice and access to insurance coverage is the ability of charities to provide financial assistance in helping dialysis patients purchase insurance [...]
Insights from the Dialysis Patient Citizens 2018 Patient Survey: Patients’ Priorities for Quality Measures and New Innovations in ESRD Care
By Jackson Williams, Director of Regulatory Affairs and General Counsel, Dialysis Patient Citizens Dialysis Patient Citizens (DPC) thanks everyone who completed its 2018 Patient Survey. It is another way to make your voices heard. We use our patient survey to get your input on current issues and to convey your opinions to policymakers in Washington, DC. This year, our survey included questions on two recent developments in Washington: Medicare’s “Meaningful Measures” Initiative: In early 2018, Medicare officials announced plans to reduce the number of quality measures it uses to hold health care providers accountable. This meant that for dialysis care, [...]
Receiving dialysis treatment three times a week is critical to survival for the 70,000 patients in California with End-Stage Renal Disease, or kidney failure. Unfortunately, this access to treatment is being threatened with California Assembly Bill 290 (Woods), which may disrupt the provider network dialysis patients rely on and lower the quality of care they depend on. This legislation is similar to Senate Bill 1156, which was defeated by dialysis patients and vetoed by California Governor Jerry Brown last year. Specifically, we are concerned that AB 290 will cut reimbursement rates private insurance companies pay to cover dialysis care. These reimbursement rates [...]
Dialysis Patient Citizens wants to wish you and your family a Happy Holiday, as well as a safe and healthy New Year. We also want to take this opportunity to share with you our Top 10 list of accomplishments for 2018, which would not have been possible without your support. Thank you for helping us elevate the dialysis patient voice with policy makers. We are extremely grateful for all of your efforts, and we look forward to our continued collaboration in 2019 as we work together to improve dialysis patient quality of life.
On November 1, 2018, the Centers for Medicare & Medicaid Services (CMS) issued its final annual rule updating payment policies for the End-Stage Renal Disease (ESRD) Prospective Payment System and the ESRD Quality Incentive Program (QIP). Among new quality measures to take effect beginning in 2022 is Percentage of Prevalent Patients Placed on a Transplant Waiting List (PPPW). This measure was already scheduled to be reported for individual clinics, beginning next year, on CMS’ Dialysis Facility Compare website. Adding it to the QIP means that facilities can be penalized if the percentage of their patients waitlisted for transplant is below [...]