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DPC Elevates Patient Advocacy Work to State Lawmakers

2024-03-29T01:09:16+00:00August 17th, 2023|Categories: Article, Medigap Coverage, Policy Issues, State Advocacy|

Over August 14 – 16, 2023, Dialysis Patient Citizens (DPC) spent time advocating for dialysis patients at the National Conference of State Legislatures (NCSL) Annual Legislative Summit, held in Indianapolis, Indiana. Yolanda Brisbane, Grassroots Manager and State Advocacy Directors, Elizabeth Lively and Pamela Zielske spoke with lawmakers from across the nation about issues that impact dialysis patients. With more than 6,000 legislators and staff in attendance, the NCSL conference was a tremendous opportunity to elevate our advocacy work with state policymakers. Conversations also extended to delegations from around the globe, as attendees from South Africa, Nigeria, Ghana, Portugal, India, Brazil, Germany, [...]

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OP-ED Calls for equal Medigap coverage for all Medicare Enrollees

2024-03-29T01:09:16+00:00August 8th, 2023|Categories: Article, Medigap Coverage|

In a compelling opinion piece authored by Rich Sutphin, Executive Director of the West Virginia Rural Health Association, the call was made to West Virginia policymakers to ensure that their constituents were treated equally regarding access to affordable Medicare Supplement (Medigap) insurance coverage. The opinion piece was picked up by newspapers across the state, including The Herald Dispatch, The Weston Democrat, Mineral News and Tribune, The Jackson Star and Herald, The Wayne County News, The Preston County News and Journal and the West Virginia Press Association. You can read the op-ed here: https://wvpress.org/wvpa-sharing/opinion-west-virginia-kidney-patients-deserve-access-to-care-at-any-age/ DPC invites you to share your story in [...]

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Affordable Medigap Access Now Available in Rhode Island, Kentucky and Virginia Coming Soon!

2024-03-29T01:09:16+00:00July 25th, 2023|Categories: Article, Medigap Coverage, News, Patient Ambassadors, State Advocacy|

During 2022 and 2023, DPC worked tirelessly to secure passage of legislation providing access to affordable Medigap coverage for under age 65 kidney failure patients living in three states. Those states – Kentucky, Rhode Island and Virginia, are creating regulations to implement the new state laws. The law in Rhode Island became effective July 1, 2023. In Kentucky and Virginia, the laws passed this year become effective January 1, 2024. If you live in one of these states and are not yet age 65, check with your dialysis facility finance or social workers to learn more about the Medigap Plans being [...]

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Medicare Payment Rule for 2024 Shortchanges Dialysis Clinics on Rising Wages

2024-03-29T01:09:17+00:00July 6th, 2023|Categories: Article, Dialysis Funding, Promote Financial Security|

As kidney and other healthcare providers face workforce shortages, inflation, and higher wage demands, the federal agency which oversees Medicare is proposing a mere 1.7% increase in dialysis reimbursements for 2024. According to the government’s own Bureau of Labor Statistics (BLS), wages and salaries increased 5.0% during the last year and increased 4.7% the year before; after insufficient updates over the past two years, Medicare payments are falling far behind the actual costs for clinic staff, potentially threatening patient access to care. Unlike updates to Social Security checks, which are determined by BLS inflation data, Medicare uses “forecasts” of future inflation. [...]

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Dialysis Patient Citizens Mourns the Loss of Terry Peeler

2024-03-29T01:09:17+00:00June 1st, 2023|Categories: Article, Board Members, Medigap Coverage|

It is with a heavy heart that Dialysis Patient Citizens (DPC) Board, staff, and volunteers learned of the passing of one of our Board Members, Terry Peeler. Terry was the first African American full-time Fire Chief and paramedic in Sumter County, Alabama, appointed in the year 2000. He proudly served as a firefighter and paramedic for the City of Livingston, Alabama. He was also elected Sumter County Coroner in 1999, a position he had been re-elected to. In October of 2016, Terry was diagnosed with end stage kidney disease and had to start dialysis, which meant retiring from his career as [...]

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Lawmakers Come Together to Help Transplant Patients

2024-03-29T01:09:17+00:00May 25th, 2023|Categories: Access to Transplant, Advance Patient Choice, Article|

Earlier this week, the House Energy and Commerce Committee marked up and unanimously passed H.R. 2544 - The Securing the U.S. Organ Procurement and Transplantation Network Act.  This bill was introduced by Rep. Bucshon (R-IN) and Rep. Robin Kelly (D-IL) and Senator Grassley (R-IA) and Chairman Wyden (D-OR) and would improve the efficiency and effectiveness of the organ transplantation process. The United Network for Organ Sharing (UNOS) has held a monopoly over the contract to manage organ distribution since 1984. Recent reports have raised concerns about how this monopoly affects the national Organ Procurement and Transplantation Network (OPTN). This legislation [...]

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DPC advises dialysis patients covered by Medicaid to update contact information

2024-03-29T01:09:17+00:00May 13th, 2023|Categories: Article, Medicaid|

Many states used additional federal funding to expand Medicaid enrollment during the COVID-19 public health emergency (PHE), first declared by the US Department of Health and Human Services on January 31, 2020 and ending May 11, 2023. With the end of the PHE, many federal programs and funding – including the Medicaid continuous coverage requirement and accompanying federal funding – will be ending. While it is unlikely that dialysis patients who are covered by both Medicare and Medicaid (known as dual eligibles) will lose their Medicaid coverage, DPC is urging that they make sure the state has their current contact [...]

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House Introduction of the Living Donor Protection Act

2024-03-29T01:09:18+00:00May 1st, 2023|Categories: Access to Transplant, Article, Promote Financial Security, Protect Patient Care|

On April 27th, Congressman Jerrold Nadler (D-NY), Congressman Troy Balderson (R-OH), Congresswoman Lisa Blunt Rochester (D-DE), Congressman Jim Costa (D-CA), Congressman John Curtis (R-UT), Congresswoman Diana DeGette (D-CO), Congresswoman Mariannette Miller-Meeks (R-IA), Congressman Gregory F. Murphy, M.D. (R-NC), and joined by Senator Kirsten Gillibrand (D-NY) and Senator Tom Cotton (R-AR), introduced the Living Donor Protection Act to protect the rights of living organ donors. This legislation would prohibit life, disability, and long-term care insurance companies from denying or limiting coverage and from charging higher premiums for living organ donors; It would amend the Family and Medical Leave Act of 1993 [...]

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What Patients Should Know About Medicare’s New Immunosuppressive Drug Benefit

2024-03-29T01:09:18+00:00April 18th, 2023|Categories: Article, Immunosuppressive Drug Coverage, Medicare Advantage, News|

It had always seemed illogical that Medicare coverage for under-65 ESRD patients ends 36 months after a successful kidney transplant. Why would Medicare make a huge investment in a transplant and then stop paying to safeguard the organ from rejection? For this reason, decades ago kidney care advocates sought a new Medicare benefit extending coverage for immunosuppressive drugs. This bill finally became law in December 2020, and is now being implemented by Medicare. While kidney care advocates applauded this development, it’s important to understand that the context for the bill has changed in light of passage of the Affordable Care [...]

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Reminder – 24 Hours Left to Apply!

2024-03-29T01:09:18+00:00March 30th, 2023|Categories: Article, Get Involved, Policy Issues, Take Action|

Dialysis Patient Citizens (DPC) will host our Annual Congressional Advocacy Day on October 23, 2023. Participants will be selected based on the quality of their applications, legislative priorities, and previous involvement in DPC's advocacy efforts. We will hold a training session ahead of our congressional meeting for those participating, both virtually and in-person, to explain the process and review our current legislative “asks.” The application period is open until March 31, 2023. We just ask that you tell us a little about yourself and why you think you would be a good candidate for this incredible opportunity. We will make a [...]

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