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DPC Letter to CMMI on ESRD Treatment Choices Demonstration Issues

2024-03-29T01:09:16+00:00October 10th, 2023|Categories: Comment Letter, Improve Access to Care, Treatment Options|

October 10, 2023 Dr. Elizabeth Fowler, Deputy Administrator Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD  21244 Re: ESRD Treatment Choices Demonstration Issues Dear Dr. Fowler: Last year, published research looking at CMMI’s ESRD Treatment Choices Model (ETC) indicated that the program is not having the effect that was hypothesized. Now, CMMI’s own evaluation contractor has echoed those findings. We urge CMMI to pause and reassess whether ETC was the best available policy intervention to promote home dialysis and transplantation, and consider alternatives. ETC imposes a bonus-and-penalty payment adjustment in randomly selected intervention regions to incentivize kidney providers [...]

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Medicare Must Increase Access to Improvements in Dialysis Care

2024-03-29T01:09:16+00:00October 6th, 2023|Categories: Advance Patient Choice, Innovation, Patient Stories in the News, Private Insurance Coverage, Treatment Options|

For people who live with a chronic illness, one of the most powerful words in the English language is hope. As a more than 20-year dialysis patient with end-stage renal disease, otherwise known as kidney failure, hope is a driving force in my life. My condition may never be cured, but new treatments are under development that could ease my symptoms. Every day, I hold out hope that a new, revolutionary treatment is around the corner that could help me and thousands like me live a more comfortable life. Unfortunately, the Centers for Medicare and Medicaid Services is becoming a [...]

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“Securing the U.S. Organ Procurement and Transplantation Network Act” Signed into Law

2024-03-29T01:09:16+00:00September 25th, 2023|Categories: Access to Transplant, Advance Patient Choice, Article, News|

On Friday, September 22, 2023, the President signed into law H.R. 2544, the “Securing the U.S. Organ Procurement and Transplantation Network Act,” which allows for the award of multiple grants, contracts, or cooperative agreements to operate the Organ Procurement and Transplantation Network. This bill would open up the number of groups that can help operate the transplant network and help to speed up the process for organ transplants. The bill was introduced by Representatives Bucshon (R-IN) and Kelly (D-IL) and Senators Wyden (D-OR), Grassley (R-IA), Cardin (D-MD), Young (R-IN), and Cassidy (R-LA). We want to thank these Members of Congress for [...]

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Medicare Policy Proposal Jeopardizes Care for Those on Dialysis

2024-03-29T01:09:16+00:00September 8th, 2023|Categories: Access to Transplant, Article, Dialysis Funding, Improve Access to Care, Innovation, Medicare Advantage, Policy Issues, Staffing Shortages, Treatment Options|

CEOs of 3 kidney care organizations explain flaws in CMS' recent reimbursement proposal. In recent years, lawmakers have turned their attention to advancing health equity and creating opportunities for the improvement of historically underserved communities—and rightly so. The urgent need for such improvements is dramatically apparent for people who have end-stage renal disease (ESRD), or kidney failure. While people of all races and ethnicities develop chronic kidney disease (CKD) at similar rates, ESRD disproportionately impacts people of color. Black Americans make up 13% of the US population, but the disparities are evident when one considers that they account for 35% of Americans with [...]

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Lawmakers Come Together to Help Transplant Patients

2024-03-29T01:09:17+00:00May 25th, 2023|Categories: Access to Transplant, Advance Patient Choice, Article|

Earlier this week, the House Energy and Commerce Committee marked up and unanimously passed H.R. 2544 - The Securing the U.S. Organ Procurement and Transplantation Network Act.  This bill was introduced by Rep. Bucshon (R-IN) and Rep. Robin Kelly (D-IL) and Senator Grassley (R-IA) and Chairman Wyden (D-OR) and would improve the efficiency and effectiveness of the organ transplantation process. The United Network for Organ Sharing (UNOS) has held a monopoly over the contract to manage organ distribution since 1984. Recent reports have raised concerns about how this monopoly affects the national Organ Procurement and Transplantation Network (OPTN). This legislation [...]

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House Introduction of the Living Donor Protection Act

2024-03-29T01:09:18+00:00May 1st, 2023|Categories: Access to Transplant, Article, Promote Financial Security, Protect Patient Care|

On April 27th, Congressman Jerrold Nadler (D-NY), Congressman Troy Balderson (R-OH), Congresswoman Lisa Blunt Rochester (D-DE), Congressman Jim Costa (D-CA), Congressman John Curtis (R-UT), Congresswoman Diana DeGette (D-CO), Congresswoman Mariannette Miller-Meeks (R-IA), Congressman Gregory F. Murphy, M.D. (R-NC), and joined by Senator Kirsten Gillibrand (D-NY) and Senator Tom Cotton (R-AR), introduced the Living Donor Protection Act to protect the rights of living organ donors. This legislation would prohibit life, disability, and long-term care insurance companies from denying or limiting coverage and from charging higher premiums for living organ donors; It would amend the Family and Medical Leave Act of 1993 [...]

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What Patients Should Know About Medicare’s New Immunosuppressive Drug Benefit

2024-03-29T01:09:18+00:00April 18th, 2023|Categories: Article, Immunosuppressive Drug Coverage, Medicare Advantage, News|

It had always seemed illogical that Medicare coverage for under-65 ESRD patients ends 36 months after a successful kidney transplant. Why would Medicare make a huge investment in a transplant and then stop paying to safeguard the organ from rejection? For this reason, decades ago kidney care advocates sought a new Medicare benefit extending coverage for immunosuppressive drugs. This bill finally became law in December 2020, and is now being implemented by Medicare. While kidney care advocates applauded this development, it’s important to understand that the context for the bill has changed in light of passage of the Affordable Care [...]

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DPC State Advocacy – March 2023 Update

2024-03-29T01:09:18+00:00March 27th, 2023|Categories: Access to Transplant, Article, Get Involved, Medigap Coverage, Patient Ambassadors, State Advocacy, Transplant Donor Protection|

It has been a busy and productive legislative session for DPC’s state advocacy efforts. Bills impacting dialysis patients have been introduced in multiple state legislatures and in most cases have moved quickly through the legislative process. Improving access to Medigap coverage is a top priority for DPC, and we are thrilled that several states are working to improve Medigap access. Just last week, DPC celebrated Governor Glenn Youngkin's (R) signing of Virginia bills SB 1409 and HB 1640 into law, guaranteeing access to affordable Medigap coverage for thousands of Virginians under 65 living with end-stage renal disease (ESRD). In Kentucky, Medigap [...]

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HHS Announces Organ Procurement and Transplantation Network Modernization Initiative

2024-03-29T01:09:19+00:00March 22nd, 2023|Categories: Access to Transplant, Article, Treatment Options|

In March, the Health Resources and Services Administration (HRSA), an agency of the U.S. Department of Health and Human Services (HHS), announced a Modernization Initiative to strengthen accountability and transparency in the Organ Procurement and Transplantation Network (OPTN). The initiative includes posting of data dashboards detailing individual transplant center and organ procurement organization performance; improvement of the OPTN IT system; and competitive bidding to manage the OPTN. “Every day, patients and families across the United States rely on the Organ Procurement and Transplantation Network to save the lives of their loved ones who experience organ failure,” said Carole Johnson, HRSA Administrator. [...]

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National Kidney Month Reminds Us of the Possibilities of Life on Dialysis

2024-03-29T01:09:19+00:00February 21st, 2023|Categories: Article, Care Coordination, Medigap Coverage, News, Patient Ambassadors, Patient's Voice, Policy Issues, Spotlight, Treatment Options|

The coming March marks the start of National Kidney Month, a time to promote kidney health, raise awareness of the obstacles facing patients, and advocate for policies that help them as they navigate life with kidney disease. However, National Kidney Month also means so much more. It is an opportunity to spread awareness of the fact that being on dialysis doesn’t mean having to put your life on hold. You can still pursue a career and do the things you love most, whether that’s traveling, camping, or spending time with family and friends. At Dialysis Patient Citizens, we are extremely [...]

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