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DPC’s 2020 Annual Membership Survey is Live!

2024-03-29T01:12:03+00:00August 6th, 2020|Categories: 5-Star Ratings, Access to Transplant, Article, Care Coordination, Charitable Premium Assistance, Dental Coverage, Dialysis Funding, Get Involved, Immunosuppressive Drug Coverage, Innovation, Medicaid, Medicare Advantage, Medigap Coverage, Quality Incentive Program, Take Action, Transplant Donor Protection, Transportation Services, Treatment Options|Tags: |

Elevate the Voice of Patients with Kidney Disease and Their Caregivers Our 2020 Annual Membership Survey is live, and it will remain open until Friday, August 21. We are counting on your participation, as patient feedback helps to shape our public policy agenda and patient education priorities for the next year. This year we ask that both patients and caregivers take our survey. Rest assured your responses will remain completely anonymous. We only share the overall survey results with state and federal level policy makers, so they will better understand your needs, experiences, and preferences. Your feedback is crucial. Therefore, we will [...]

ESRD Network – Your Resource for Access to Care

2024-03-29T01:12:05+00:00April 27th, 2020|Categories: Article, Improve Access to Care, Medicaid, Medicare Advantage, News, Transportation Services|

The Centers for Medicare & Medicaid Services (CMS), which is the federal Agency that oversees the Medicare program, recently reiterated its commitment to ensuring dialysis patient access to care during the current pandemic. They said that if any dialysis patients are having problems with transportation, that prevent you from getting to dialysis, they want to help. CMS also knows that your dialysis access is your lifeline, so if you have any complications with your fistula, graft or catheter and need help – that is why they created the End Stage Renal Disease (ESRD) Network Program – to help patients. So, [...]

Happy Holidays and DPC’s Top 10 Accomplishments of 2019

2024-03-29T01:13:32+00:00December 20th, 2019|Categories: 5-Star Ratings, About DPC, Access to Transplant, Article, Care Coordination, Charitable Premium Assistance, Dental Coverage, Dialysis Funding, Immunosuppressive Drug Coverage, Innovation, Medicaid, Medicare Advantage, Medigap Coverage, Quality Incentive Program, Transplant Donor Protection, Transportation Services, Treatment Options|

Dialysis Patient Citizens wants to wish you and your family a Happy Holiday, as well as a safe and healthy New Year. Our offices will be closed for the holidays starting December 23 through January 1. We also want to take this opportunity to share our list of Top 10 Accomplishments for 2019, which would not have been possible without your support. Thank you again for helping us elevate the dialysis patient voice with policy makers. We are extremely grateful for all of your advocacy efforts, and we look forward to our continued collaboration in 2020 as we work together to improve dialysis [...]

DPC Comments on CMS Proposed Rule Regarding ESRD Treatment Choices Model Demonstration

2024-03-29T01:13:34+00:00September 4th, 2019|Categories: Access to Transplant, Comment Letter, Dental Coverage, Innovation, Medicaid, Transplant Donor Protection, Treatment Options|

In response to the Administration's announcement to improve kidney health in America, the Centers for Medicare and Medicaid Services (CMS) proposed a rule to implement a mandatory Medicare payment model designed to increase the number of home dialysis treatments and kidney transplants, all while reducing Medicare expenditures. The rule—referred to as the End-Stage Renal Disease (ESRD) Treatment Choices Model (ETC Model)—would measure clinician and facility performance, as well as the rate of home dialysis and kidney transplants in selected geographic regions. These calculations would result in either an increase or decrease of Medicare funding to a particular facility or clinician, [...]

DPC Participates in Home Dialysis Briefing Emphasizing Current Barriers to Treatment

2024-03-29T01:50:29+00:00June 6th, 2016|Categories: Improve Access to Care, Medicaid, Treatment Options|

Hrant Jamgochian, CEO of Dialysis Patient Citizens, participated in a congressional briefing sponsored by the Alliance for Home Dialysis on May 16th. DPC joined hip-hop artist David Rush, former U.S. Representative Karen Thurman, Larry Weisberg and Dr. Sue Quaggin to provide policymakers with policy options to improve access to home dialysis. DPC’s most recent membership survey indicated significant insurance barriers to access for home dialysis. However, the largest barrier for most patients was the lack of a care partner. The DPC survey found that while 74% of ESRD patients overall were informed about the option of home hemodialysis, there was an information gap [...]

Medicaid-Eligible Dialysis Patients Not Fully Informed of Treatment Options, Survey Finds

2024-03-29T01:50:31+00:00December 11th, 2015|Categories: Article, Medicaid, Treatment Options|

End-stage renal disease (ESRD) patients who receive Medicaid are less likely to be informed of home modality and transplantation options than patients covered by Medicare or commercial insurance, according to survey research DPC released earlier this month. DPC recently partnered with Baxter to facilitate a panel discussing these disparities at the National Black Caucus of State Legislators (NBCSL) Conference in Los Angeles, California. The DPC survey found that while about 74 percent of ESRD patients overall are informed about the option of home hemodialysis, there is an information gap of 17 percentage points between patients covered by Medicare (77%) and Medicaid [...]

DPC Assists Grassroots Efforts to Secure Level Medicaid Funding in Alabama

2024-03-29T01:50:31+00:00September 30th, 2015|Categories: Article, Medicaid, State Advocacy|

DPC has been hard at work on the state level fighting to ensure continued access to quality patient care, most recently in Alabama and North Carolina. In Alabama, patients fought to maintain Medicaid funding for outpatient dialysis, which the state was considering moving to local hospitals instead, in a potential effort to close the state budget shortfall. Patient advocates quickly took action and contacted their state legislators to encourage alternative revenue generating measures to close the budget gap as opposed to eliminating Medicaid funding. Thankfully, the state legislature responded by passing a budget with new revenue generating policies. The potential [...]

Joint Letter to Committees on Part B Premiums and Deductibles

2024-03-29T01:50:31+00:00September 30th, 2015|Categories: Medicaid, Medigap Coverage|

Dear Chairman Hatch, Senator Wyden, Chairman Ryan, Congressman Levin, Chairman Upton & Congressman Pallone: The undersigned organizations share a commitment to advancing the health and economic security of older adults, people with disabilities, and their families. We are writing to urge you to advance a solution to mitigate projected increases to Medicare Part B premiums and the Part B deductible in 2016. According to the 2015 Medicare Trustees Report, Part B premiums will increase by 52%—up to $159.30 per month from $104.90—for 30% of beneficiaries. The trustees also predict that this increase will be accompanied by a hike in the [...]

Dialysis Patients Protest Proposed Cuts at Illinois State Capitol

2024-03-29T01:50:33+00:00May 26th, 2015|Categories: Article, Medicaid, State Advocacy|

Kathleen Haines being interviewed by a Springfield reporter. Dialysis patients and clinicians held a press conference at the Illinois State Capitol in Springfield on May 26 to oppose cuts to Medicaid ESRD payments proposed by Governor Bruce Rauner. Two dialysis patients from central Illinois, Alan Cook and Kathleen Haines, represented Dialysis Patient Citizens at the event, which received coverage on Chicago and Springfield TV news broadcasts. More than 5,000 people, or approximately 30% of Illinois dialysis patients, use Medicaid as their primary or secondary insurance. But all ESRD patients benefit from Medicaid dollars since they shore up the [...]

DPC Urges Arizona to Maintain Medicaid Reimbursement for Dialysis

2024-03-29T01:50:34+00:00February 27th, 2015|Categories: Comment Letter, Medicaid, State Advocacy|

Governor Doug Ducey 1700 West Washington St. Phoenix, AZ 85007 RE: Proposed Cuts to Medicaid Coverage Dear Governor Ducey, As America’s largest patient-led organization representing over 28,000 members, Dialysis Patient Citizens (DPC) works to improve the quality of life of all dialysis patients through education and advocacy. Dialysis is a life-sustaining care delivered to over 12,400 patients in Arizona who have End-Stage Renal Disease (ESRD), also known as kidney failure. For those with ESRD, receiving regular dialysis or a kidney transplant are the only treatments that allow patients to continue living. The number of individuals with kidney failure continues to [...]

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