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Support S.1552/H.R. 4583 – The Living Donor Protection Act

2026-02-26T14:36:14+00:00February 25th, 2026|Categories: Access to Transplant, Advance Patient Choice, Article, Protect Patient Care, Take Action, Transplant Donor Protection|

This week, The Senate Committee on Health, Education, Labor and Pensions (HELP) will be marking up S. 1552 – The Living Donor Protection Act introduced by Senators Tom Cotton (R‑AR) and Kirsten Gillibrand (D‑NY).  This bill, and its’ House companion bill H.R. 4583, provides essential protections for living kidney donors, including job security, protection from insurance discrimination, and the financial burdens associated with transplantation. Specifically, The Living Donor Protection Act would: Prohibit life, disability, and long-term care insurance companies from denying or limiting coverage and from charging higher premiums for living organ donors. Amend the Family and Medical Leave Act of 1993 to specifically include [...]

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Urge Your Members of Congress to Cosponsor H.R. 2199/S. 1173 – The Restore Protections for Dialysis Patients Act

2026-02-18T21:00:25+00:00January 5th, 2026|Categories: Article, Private Insurance Coverage, Promote Financial Security, Take Action|

Last year, The Restore Protections for Dialysis Patients Act was introduced by Representatives Mike Kelly (R-PA), Yvette Clarke (D-NY), Neal Dunn, MD (R-FL), Danny Davis (D-IL), John Joyce, MD (R-PA) and Raul Ruiz, MD (D-CA) as well as Senators Bill Cassidy MD (R-LA), Cory Booker (D-NJ), Kevin Cramer (R-ND), and Martin Heinrich (D-NM).  This bipartisan, bicameral legislation would restore protections for ESRD patients and allow them to stay on the insurance coverage of their choice for up to 30 months.  While all ESRD patients are eligible for Medicare, allowing a patient to choose to stay on their private insurance would [...]

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Support S. 2730 – The Kidney Care Access Protection Act

2025-09-23T17:46:01+00:00September 23rd, 2025|Categories: Advance Patient Choice, Article, Improve Access to Care, Increase Quality of Care, News, Promote Financial Security, Take Action|

In early September, Senator Marsha Blackburn (R-TN) and Senator Cory Booker (D-NJ) introduced The Kidney Care Access Protection Act (S. 2730) which would strengthen Medicare’s kidney care benefits by ensuring fair reimbursement for and access to quality care. This bipartisan legislation has been endorsed by Kidney Care Partners, the American Kidney Fund, Dialysis Patient Citizens, and the Renal Support Network (RSN). Specifically, this bill would establish a long-term, sustainable Medicare payment pathway for innovative drugs, devices, and technologies. It would also implement a forecast error adjustment policy that accurately accounts for inflationary costs to help keep healthcare facilities financially viable. [...]

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Action Alert: H.R. 5027/S. 4469 – The Chronic Kidney Disease Improvement in Research and Treatment Act

2024-06-27T14:07:34+00:00June 25th, 2024|Categories: Article, Improve Access to Care, Increase Quality of Care, Medigap Coverage, Promote Financial Security, Quality Incentive Program, Take Action|

The Chronic Kidney Disease Improvement in Research and Treatment Act (H.R. 5027/S. 4469) sets the stage for the future of kidney care. Representatives Carol Miller (R-WV) and Terri Sewell (D-AL)  re-introduced the bill in the House of Representatives on July 28, 2023 and Senators Ben Cardin (D-MD) and Marsha Blackburn (R-TN) re-introduced the bill in the Senate on June 5, 2024. If passed, this legislation would improve efforts to prevent and better understand chronic kidney disease (CKD) by ensuring appropriate reimbursement for quality care and improve patient access to the best drugs, technology and innovations along the kidney care continuum. One [...]

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DPC Advocates Make Their Voices Heard!

2024-03-29T01:09:11+00:00February 21st, 2024|Categories: Article, Get Involved, Patient Ambassadors, Patient Stories in the News, Patient's Voice, Private Insurance Coverage, Promote Financial Security, Take Action|

DPC’s patient advocates are working hard to make their voices heard through media outreach, by sharing their stories through op-eds and letters to the editor. Coast to coast, patients are letting their local legislators know about the issues that are important to them, and how their votes in Congress affect their lives. Check out the amazing work of our advocates, and if you’re feeling inspired, we encourage you get involved! Learn to how to become a Patient Ambassador and other ways DPC can help you make your voice heard.

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Action Alert – Protect ESRD Patient Access to Private Coverage

2024-03-29T01:09:12+00:00February 1st, 2024|Categories: Article, Private Insurance Coverage, Promote Financial Security, Take Action|

In December, The Restore Protections for Dialysis Patients Act (H.R. 6860) was introduced by Representatives Mike Kelly (R-PA), Yvette Clarke (D-NY), Neal Dunn, MD (R-FL), Danny Davis (D-IL), John Joyce, MD (R-PA) and Raul Ruiz, MD (D-CA) to help ensure that  ESRD patients can stay on the insurance coverage of their choice. A recent U.S. Supreme Court decision threatens access to private coverage by permitting health plans to carve off dialysis benefits from their networks and impose restrictive terms on patients. This legislation would restore the protections Congress intended to guarantee for over 40 years. DPC has been compiling Letters to [...]

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2024 Advocacy Day – 24 Hours Left to Apply!

2024-03-29T01:09:12+00:00January 25th, 2024|Categories: Advance Patient Choice, Article, Get Involved, Improve Access to Care, Increase Quality of Care, Patient Ambassadors, Policy Issues, Promote Financial Security, Protect Patient Care, Take Action|

Dialysis Patient Citizens (DPC) will host our 20th Anniversary Celebration and Annual Congressional Advocacy Day May 6-7, 2024. Participants will be selected based on the quality of their applications, legislative priorities, and previous involvement in DPC's advocacy efforts. We will hold a training session ahead of our congressional meeting for those participating to explain the process and review our current legislative “asks.” The application period is open until January 26, 2024. We just ask that you tell us a little about yourself and why you think you would be a good candidate for this incredible opportunity. We will make a decision [...]

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Reminder – 24 Hours Left to Apply!

2024-03-29T01:09:18+00:00March 30th, 2023|Categories: Article, Get Involved, Policy Issues, Take Action|

Dialysis Patient Citizens (DPC) will host our Annual Congressional Advocacy Day on October 23, 2023. Participants will be selected based on the quality of their applications, legislative priorities, and previous involvement in DPC's advocacy efforts. We will hold a training session ahead of our congressional meeting for those participating, both virtually and in-person, to explain the process and review our current legislative “asks.” The application period is open until March 31, 2023. We just ask that you tell us a little about yourself and why you think you would be a good candidate for this incredible opportunity. We will make a [...]

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DPC Continues Outreach to Protect Patients’ Rights

2024-03-29T01:09:21+00:00September 6th, 2022|Categories: Advance Patient Choice, Article, Private Insurance Coverage, Protect Patient Care, Take Action, Treatment Options|

DPC Members and Patient Ambassadors continue advocacy on H.R. 8594/S. 4750 - The Restore Protections for Dialysis Patients Act, which would codify into law the right for dialysis patients to stay on their private insurance for up to 30 months, if they should so choose. This bill not only preserves patient choice but also encourages insurers to detect and treat kidney disease early and, most importantly, protects kidney disease patients from discrimination. This legislation reinstates the importance of allowing kidney patients to decide which health insurance will best serve them. For more information, to watch patient testimonials, or to take action, [...]

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Action Alert – Protect ESRD Patient Access to Private Coverage

2024-03-29T01:09:22+00:00August 19th, 2022|Categories: Article, Private Insurance Coverage, Protect Patient Care, Take Action|

Ask your representative to co-sponsor H.R. 8594/S. 4750, legislation that would protect ESRD patients by allowing them to maintain private, employer health coverage up to 30 months after diagnosis with kidney failure. A recent Supreme Court ruling now threatens their access to private coverage by permitting health plans to carve off dialysis benefits from their networks and impose restrictive terms on kidney patients.  The continuation of high-quality care and benefits during this 30-month coordination period helps kidney patient’s successfully transition into life on dialysis and/or kidney transplantation. Leave your legacy through advocacy and urge your representative to co-sponsor this life-saving legislation and restore the protections [...]

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