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DPC Advocates Help Push State Legislation Forward

2021-04-21T19:10:46+00:00April 20th, 2021|Categories: Advance Patient Choice, Article, Medigap Coverage, State Advocacy, Transplant Donor Protection, Uncategorized|

State legislatures are in high gear during spring, and efforts by state legislators to support dialysis patients are in full swing this month. We’ve already had several legislative victories on living organ donor protection bills, while Medigap expansion legislation for the ESRD population has been introduced in multiple states. With support from multiple DPC Patient Ambassadors and Board Members sharing their personal stories on these two policy issues, DPC is making robust arguments for states to actively help improve the quality of life for End Stage Renal Disease (ESRD) patients. Kentucky, New Jersey, Maryland and Washington legislatures have already passed [...]

April is Donate Life Month

2021-04-21T21:13:43+00:00April 1st, 2021|Categories: Access to Transplant, Article, Transplant Donor Protection|

Each April, National Donate Life Month encourages Americans to register as organ, eye, and tissue donors; to become educated about living donation (that includes living kidney donation!); and to honor those that have saved lives through the gift of donation. Over 100,000 children, men, and women are waiting for lifesaving organ transplants, with a new person added to the national transplant waiting list every 10 minutes. Here is some more information on the different types of transplant and what you can do to help. What are the different types of organ donation? Living donation – living donation is an opportunity [...]

Bipartisan Living Donor Protection Act Introduced to Protect Organ Donors

2021-03-23T16:49:50+00:00March 18th, 2021|Categories: Advance Patient Choice, Article, Policy Issues, Transplant Donor Protection|

Congressman Jerrold Nadler (D-NY) and Congresswoman Jamie Herrera Beutler (R-WA), joined by Senator Kirsten Gillibrand (D-NY) and Senator Tom Cotton (R-AR), introduced the Living Donor Protection Act to protect the rights of living organ donors. The Family and Medical Leave Act (FMLA) does not specify that living organ donors can take unpaid leave to recover from their donation and does not guarantee that donors will have a job waiting for them after surgery. Further, according to a 2007 study in the American Journal of Transplantation, as many as 11% of living organ donors experience difficulty securing or paying for insurance after [...]

DPC Advocates Advance Dialysis Patient Issues at the State Level

2021-02-25T14:12:53+00:00February 19th, 2021|Categories: Advance Patient Choice, Medigap Coverage, Patient Ambassadors, Patient's Voice, State Advocacy, Transplant Donor Protection|

Despite the ongoing pandemic and economic crisis, many state legislators recognize the added challenges faced by dialysis patients every day. Some have responded by introducing legislation to increased dialysis patient access to Medigap plans to help patients cover their 20% coinsurance expenses. Others are working to advance legislation to help increase the pool of living kidney donors. DPC would like to recognize some of the patient leaders who are elevating the patient voice by educating state legislators on the importance of these efforts. DPC Board Members Adrian Miller and Pius Charles Murray are pressing for passage of critical legislation in their [...]

State Legislatures Introduce Bills that Would Positively Impact Dialysis Patients

2021-01-27T16:54:50+00:00January 22nd, 2021|Categories: Access to Transplant, Article, Immunosuppressive Drug Coverage, Medigap Coverage, State Advocacy, Transplant Donor Protection|

With the start of the new year, state legislatures throughout the country are beginning their legislative sessions with a flurry of new bills being introduced on a wide-ranging number of topics. While the Covid-19 pandemic and its economic impact will dominate much of the activity at state houses across the country this year, we are encouraged that some of the bills already filed this session would improve health outcomes for dialysis patients. Both Arizona and Kentucky have already introduced bills to expand Medicare supplemental insurance, or Medigap. This is significant because Arizona and Kentucky are two of the 28 states that [...]

CMS Announces Penalties and Rewards for Promoting Home Dialysis and Transplants

2020-09-22T14:49:34+00:00September 22nd, 2020|Categories: Access to Transplant, Article, Dialysis Funding, Transplant Donor Protection, Treatment Options|

On September 18, the Centers for Medicare & Medicaid Services (CMS) announced it finalized the End-Stage Renal Disease Treatment Choices (ETC) Model. The ETC Model was a cornerstone of President Trump’s Advancing Kidney Health Executive Order in 2019. It encourages an increased use of home dialysis and kidney transplants in approximately 30 percent of dialysis facilities and nephrology practices and will be implemented on January 1, 2021. CMS estimated reduced expenditures of $23 million over five and a half years, anticipating that providers assigned to the program will be penalized for not meeting standards. DPC and many other kidney groups opposed this [...]

DPC’s 2020 Annual Membership Survey is Live!

2020-12-08T19:51:50+00:00August 6th, 2020|Categories: 5-Star Ratings, Access to Transplant, Article, Care Coordination, Charitable Premium Assistance, Dental Coverage, Dialysis Funding, Get Involved, Immunosuppressive Drug Coverage, Innovation, Medicaid, Medicare Advantage, Medigap Coverage, Quality Incentive Program, Take Action, Transplant Donor Protection, Transportation Services, Treatment Options|Tags: |

Elevate the Voice of Patients with Kidney Disease and Their Caregivers Our 2020 Annual Membership Survey is live, and it will remain open until Friday, August 21. We are counting on your participation, as patient feedback helps to shape our public policy agenda and patient education priorities for the next year. This year we ask that both patients and caregivers take our survey. Rest assured your responses will remain completely anonymous. We only share the overall survey results with state and federal level policy makers, so they will better understand your needs, experiences, and preferences. Your feedback is crucial. Therefore, we will [...]

Happy Holidays and DPC’s Top 10 Accomplishments of 2019

2020-03-21T20:40:48+00:00December 20th, 2019|Categories: 5-Star Ratings, About DPC, Access to Transplant, Article, Care Coordination, Charitable Premium Assistance, Dental Coverage, Dialysis Funding, Immunosuppressive Drug Coverage, Innovation, Medicaid, Medicare Advantage, Medigap Coverage, Quality Incentive Program, Transplant Donor Protection, Transportation Services, Treatment Options|

Dialysis Patient Citizens wants to wish you and your family a Happy Holiday, as well as a safe and healthy New Year. Our offices will be closed for the holidays starting December 23 through January 1. We also want to take this opportunity to share our list of Top 10 Accomplishments for 2019, which would not have been possible without your support. Thank you again for helping us elevate the dialysis patient voice with policy makers. We are extremely grateful for all of your advocacy efforts, and we look forward to our continued collaboration in 2020 as we work together to improve dialysis [...]

Donor Protection Bill Signed into Law While Care Access Bill Now in the Hands of California Governor

2020-09-24T16:26:50+00:00September 23rd, 2019|Categories: Article, Charitable Premium Assistance, Dialysis Funding, Improve Access to Care, Increase Quality of Care, State Advocacy, Take Action, Transplant Donor Protection|

As temperatures cool and the California legislature winds down from a flurry of late summer activity, two bills that would impact kidney disease patients recently landed on Governor Newsom’s desk for his signature or veto. We’re thrilled that the bill seeking to increase access to transplants by strengthening protections for living organ donors was just signed into law. This bill passed unanimously in the Senate, after a similar unanimous passage in the Assembly earlier this year. DPC supports this bill because it helps remove barriers for kidney donors. Specifically, it requires employers to extend an employee’s unpaid leave up to [...]

DPC Comments on CMS Proposed Rule Regarding ESRD Treatment Choices Model Demonstration

2020-12-08T19:49:39+00:00September 4th, 2019|Categories: Access to Transplant, Comment Letter, Dental Coverage, Innovation, Medicaid, Transplant Donor Protection, Treatment Options|

In response to the Administration's announcement to improve kidney health in America, the Centers for Medicare and Medicaid Services (CMS) proposed a rule to implement a mandatory Medicare payment model designed to increase the number of home dialysis treatments and kidney transplants, all while reducing Medicare expenditures. The rule—referred to as the End-Stage Renal Disease (ESRD) Treatment Choices Model (ETC Model)—would measure clinician and facility performance, as well as the rate of home dialysis and kidney transplants in selected geographic regions. These calculations would result in either an increase or decrease of Medicare funding to a particular facility or clinician, [...]

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