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DPC State Advocacy – March 2023 Update

2024-03-29T01:09:18+00:00March 27th, 2023|Categories: Access to Transplant, Article, Get Involved, Medigap Coverage, Patient Ambassadors, State Advocacy, Transplant Donor Protection|

It has been a busy and productive legislative session for DPC’s state advocacy efforts. Bills impacting dialysis patients have been introduced in multiple state legislatures and in most cases have moved quickly through the legislative process. Improving access to Medigap coverage is a top priority for DPC, and we are thrilled that several states are working to improve Medigap access. Just last week, DPC celebrated Governor Glenn Youngkin's (R) signing of Virginia bills SB 1409 and HB 1640 into law, guaranteeing access to affordable Medigap coverage for thousands of Virginians under 65 living with end-stage renal disease (ESRD). In Kentucky, Medigap [...]

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2023 State Advocacy Kick-Off

2024-03-29T01:09:19+00:00January 25th, 2023|Categories: Article, Medigap Coverage, News, State Advocacy, Transplant Donor Protection|

It’s been a busy start in 2023 for DPC’s state advocacy efforts. Bills impacting dialysis patients are being introduced in multiple state legislatures and moving quickly through the legislative process. Legislation to expand Medigap access has already been introduced in Hawaii, Indiana, Kentucky, Nebraska, and Virginia. Improving Medigap access is a top policy priority for DPC, and we are pleased that multiple states are considering how they can expand access to Medigap plans, particularly in states that have limited or no access to Medigap for the under-age 65 End State Renal Disease (ESRD) population. Hearings are scheduled in the coming days [...]

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2022’s State Advocacy Kick-Off

2024-03-29T01:10:09+00:00February 17th, 2022|Categories: Access to Transplant, Article, Medicare Advantage, Medigap Coverage, Promote Financial Security, State Advocacy, Transplant Donor Protection|

It’s been a busy start in 2022 for DPC’s state advocacy efforts. While many states are holding shorter legislative sessions due to the upcoming primary elections, bills impacting dialysis patients are being introduced and moving quickly through the legislative process. Legislation to expanded Medigap access has already been introduced in Arizona, Kentucky, Nebraska, Maryland, New Jersey, Rhode Island, and Vermont. Improving access to Medicare supplementary (Medigap) plans is a top policy priority for DPC, and we are pleased that multiple states are considering how they can help, particularly in states that have limited or no access to Medigap for the under [...]

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2021 Annual Survey Last Call!

2024-03-29T01:10:13+00:00August 26th, 2021|Categories: 5-Star Ratings, Access to Transplant, Article, Care Coordination, Charitable Premium Assistance, Dental Coverage, Dialysis Funding, Immunosuppressive Drug Coverage, Innovation, Medicaid, Medicare Advantage, Medigap Coverage, Patient's Voice, Protect Patient Care, Quality Incentive Program, Take Action, Transplant Donor Protection, Transportation Services, Treatment Options|Tags: |

24 hours remain to complete our survey. Make sure to complete your survey for a chance at one of 10 remaining $100 gift certificates. Our 2021 Annual Membership Survey is live, and it will remain open until Friday, August 27. Your feedback helps to shape our public policy agenda and patient education priorities for the next year. This year we ask that both patients and caregivers take our survey. Rest assured your responses will remain completely anonymous. We only share the overall survey results with state and federal level policy makers, so they will better understand your needs, experiences, and [...]

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It Works When We Work Together – 2021 State Legislature Recap

2024-03-29T01:10:14+00:00July 19th, 2021|Categories: Advance Patient Choice, Article, Medigap Coverage, State Advocacy, Transplant Donor Protection|

Nearly two years ago, DPC expanded its advocacy footprint to establish a state advocacy program to complement our ongoing federal efforts and in response to states increasing their role in health care policy and the delivery system which impacts dialysis patients’ access to quality care. While Congress continues its work through the remainder of 2021, a majority of state legislatures have already adjourned for this calendar year. Forty-six (46) state legislatures hold annual regular sessions and four states (MT, ND, NV and TX) hold biennial regular sessions, meeting every other year. Working with a number of our Patient Ambassadors throughout [...]

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DPC Advocates Help Push State Legislation Forward

2024-03-29T01:10:16+00:00April 20th, 2021|Categories: Advance Patient Choice, Article, Medigap Coverage, State Advocacy, Transplant Donor Protection, Uncategorized|

State legislatures are in high gear during spring, and efforts by state legislators to support dialysis patients are in full swing this month. We’ve already had several legislative victories on living organ donor protection bills, while Medigap expansion legislation for the ESRD population has been introduced in multiple states. With support from multiple DPC Patient Ambassadors and Board Members sharing their personal stories on these two policy issues, DPC is making robust arguments for states to actively help improve the quality of life for End Stage Renal Disease (ESRD) patients. Kentucky, New Jersey, Maryland and Washington legislatures have already passed [...]

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April is Donate Life Month

2024-03-29T01:12:00+00:00April 1st, 2021|Categories: Access to Transplant, Article, Transplant Donor Protection|

Each April, National Donate Life Month encourages Americans to register as organ, eye, and tissue donors; to become educated about living donation (that includes living kidney donation!); and to honor those that have saved lives through the gift of donation. Over 100,000 children, men, and women are waiting for lifesaving organ transplants, with a new person added to the national transplant waiting list every 10 minutes. Here is some more information on the different types of transplant and what you can do to help. What are the different types of organ donation? Living donation – living donation is an opportunity [...]

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Bipartisan Living Donor Protection Act Introduced to Protect Organ Donors

2024-03-29T01:12:00+00:00March 18th, 2021|Categories: Advance Patient Choice, Article, Policy Issues, Transplant Donor Protection|

Congressman Jerrold Nadler (D-NY) and Congresswoman Jamie Herrera Beutler (R-WA), joined by Senator Kirsten Gillibrand (D-NY) and Senator Tom Cotton (R-AR), introduced the Living Donor Protection Act to protect the rights of living organ donors. The Family and Medical Leave Act (FMLA) does not specify that living organ donors can take unpaid leave to recover from their donation and does not guarantee that donors will have a job waiting for them after surgery. Further, according to a 2007 study in the American Journal of Transplantation, as many as 11% of living organ donors experience difficulty securing or paying for insurance after [...]

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DPC Advocates Advance Dialysis Patient Issues at the State Level

2024-03-29T01:12:00+00:00February 19th, 2021|Categories: Advance Patient Choice, Medigap Coverage, Patient Ambassadors, Patient's Voice, State Advocacy, Transplant Donor Protection|

Despite the ongoing pandemic and economic crisis, many state legislators recognize the added challenges faced by dialysis patients every day. Some have responded by introducing legislation to increased dialysis patient access to Medigap plans to help patients cover their 20% coinsurance expenses. Others are working to advance legislation to help increase the pool of living kidney donors. DPC would like to recognize some of the patient leaders who are elevating the patient voice by educating state legislators on the importance of these efforts. DPC Board Members Adrian Miller and Pius Charles Murray are pressing for passage of critical legislation in their [...]

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State Legislatures Introduce Bills that Would Positively Impact Dialysis Patients

2024-03-29T01:12:00+00:00January 22nd, 2021|Categories: Access to Transplant, Article, Immunosuppressive Drug Coverage, Medigap Coverage, State Advocacy, Transplant Donor Protection|

With the start of the new year, state legislatures throughout the country are beginning their legislative sessions with a flurry of new bills being introduced on a wide-ranging number of topics. While the Covid-19 pandemic and its economic impact will dominate much of the activity at state houses across the country this year, we are encouraged that some of the bills already filed this session would improve health outcomes for dialysis patients. Both Arizona and Kentucky have already introduced bills to expand Medicare supplemental insurance, or Medigap. This is significant because Arizona and Kentucky are two of the 28 states that [...]

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