The Patient's Voice: Guest Blogger

By James Myers, DPC Patient Ambassador
December 6, 2013

On the website for the Polycystic Kidney Foundation, there is an announcement about Giving Tuesday, December 3rd, 2013. It says you can give one of three ways:  your voice, your time or your dollars.  As a dialysis patient, I don’t know about you, but I don’t have any money.  But 2 things that I have a lot of are voice and time, and I am more than happy to lend those to the cause of defeating PKD. 

By Jim Myers, DPC Patient Ambassador.
November 18, 2013

I had a conversation with my doctor last week. (My nephrologist, Dr. Vavilala, we call him Dr. V).  He asked me if I had heard anything during my last trip to Washington, D.C. about an extension of coverage through the ACA to kidney transplant patients of the immunosuppressive drug coverage beyond the 36 month period that currently exists.  This rang a bell in the back of my brain, so I decided to check it out. 

By Meshia Adams, DPC Patient Ambassador
November 7, 2013

If you asked me if I was an engaged patient I would tell you yes. I can tell you what my last lab values are; I am compliant with taking my medications and see my doctors on a regular basis. I consider myself to be a responsible patient who is closely involved in my healthcare needs.

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