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Congress can help kidney patients

2025-07-17T16:01:41+00:00July 16th, 2025|Categories: Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security|

For decades, I worked as a teacher and mentor to students I loved. Then suddenly, I was diagnosed with kidney failure. Now, I’m a dialysis patient who relies on an exhausting treatment to survive. I was first diagnosed with kidney disease in 2016 after a family history of high blood pressure caught up with me. I came off dialysis for a few years after weight loss surgery, but in 2023, my kidneys failed again. I had to stop working, because of having too many doctor's appointments and too many sick days. I lost my private insurance, and Medicaid turned me [...]

Congress, pass Restore Protections for Dialysis Patients Act

2025-07-17T15:46:07+00:00July 12th, 2025|Categories: Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security|

I’ve lived with kidney failure since birth. After several transplants, I’ve now been on dialysis for 36 years, which is the only treatment besides a transplant for kidney failure. It’s not something you can skip. It’s a life-or-death treatment. That’s why I’m urging Congress to pass the Restore Protections for Dialysis Patients Act. This H.R. 2199 bill would ensure new dialysis patients can keep their private insurance for 30 months, a protection we used to have until a recent Supreme Court decision determined what health care we can receive. Private insurance gives patients better options, essential in those initial months [...]

DPC’s Letter to Mr. Abe Sutton, Deputy Administrator at Center for Medicare & Medicaid Innovation, on CKCC Revisions

2025-07-09T18:20:20+00:00July 9th, 2025|Categories: Comment Letter, Improve Access to Care, Policy Issues, Promote Financial Security, Protect Patient Care|

July 9, 2025 Mr. Abe Sutton, Deputy Administrator Center for Medicare & Medicaid Innovation 7500 Security Boulevard Baltimore, MD  21244 Re: CKCC Revisions Dear Mr. Sutton: We are writing to protest the recent changes to the CKCC model that manifest a reduced CMMI commitment to integrated kidney care. As a former CMMI staffer, a consumer representative on the governing body of one the CKCC sites, and a longtime health policy analyst and patient advocate, I can see CMMI programs from a global perspective, and what I see is a relegation of our patient population to a second-tier focus despite it being [...]

Dialysis Patient Citizens Applauds Texas Legislature for Passing Historic Bill Expanding Affordable Medigap Access for Dialysis and ALS Patients

2025-06-24T17:52:36+00:00June 23rd, 2025|Categories: Medigap Coverage, Patient Ambassadors, Press Release, Promote Financial Security, Protect Patient Care, State Advocacy|

Austin, TX (June 23, 2025) – House Bill 2516 has become public law, a significant victory for Texans living with End-Stage Renal Disease (ESRD), or kidney failure, and Amyotrophic Lateral Sclerosis (ALS). The legislation, championed by Representative Ryan Guillen (R-TX-31), received overwhelming bipartisan support in the Texas State Legislature, passing the House with a 133-4 vote and the Senate unanimously. The law guarantees that ESRD and ALS patients under the age of 65 can access affordable Medigap insurance. Specifically, Medigap Plans A, B, and D will be available at the same premium rate as for those age 65, while the [...]

Medigap Protections become Law in Nevada and Texas

2025-06-25T13:56:23+00:00June 23rd, 2025|Categories: Article, Medigap Coverage, Patient Ambassadors, Promote Financial Security, Protect Patient Care, State Advocacy|

Two historic bills that expand affordable access to Medicare Supplement Insurance coverage, otherwise known as Medigap, have passed with overwhelming support in the states of Nevada and Texas this legislative session. Both bills provide affordable access to Medigap plans for dialysis patients who are under age 65. Sponsored and championed by Nevada State Senator, Roberta Lange (D-NV-7) and signed at the beginning of June by Governor Joe Lombardo (R-NV) Senate Bill 292 guarantees access to affordable Medigap coverage to Nevadans who are under age 65 and on dialysis. SB 292 fills a devastating gap in Medicare coverage for Nevadans who had [...]

Rhode Island Passes Birthday Rule and Evaluates Community Rating for Medigap Plans

2025-06-25T14:04:54+00:00June 20th, 2025|Categories: Article, Medicare Advantage, Medigap Coverage, Promote Financial Security, Protect Patient Care, State Advocacy|

On Friday, June 20, the Rhode Island House passed SB610, Sub B, joining the Senate in approving a birthday rule and evaluation of adopting community rating for all Medicare Supplement plans.  SB 610 is awaiting the Governor’s signature. SB 610 does a number of things, including establishing a guaranteed-issue 6-month open enrollment period for individuals under-age 65 enrolled in a Medicare supplement (Medigap) plan who wish to switch to a different plan upon turning age 65.  While all individuals turning age 65 who enroll in Medicare Part B are entitled to this 6-month open enrollment period, this language eliminates any confusion [...]

Delaware Unanimously Passes Medigap Birthday Rule

2025-06-25T13:59:21+00:00June 13th, 2025|Categories: Article, Medicare Advantage, Medigap Coverage, Promote Financial Security, Protect Patient Care, State Advocacy|

With a unanimous vote in the Delaware House of Representatives on June 12, the Delaware General Assembly has unanimously passed SB 71 in both chambers. This legislation, called a birthday rule, creates a special open enrollment window for persons already enrolled in a Medicare Supplement policy (also called Medigap) to switch to another plan that provides the same or lesser benefits, allowing Enrollees to find a plan that better fits their financial circumstances. Further, this bill allows those on Medicare Advantage plans to switch back to Medicare Supplement coverage, but does include a pre-existing condition limitation.  The special open enrollment window [...]

Dialysis Patient Citizens Applauds Nevada Governor Signing Legislation Expanding Access to Affordable Medigap Coverage for Dialysis Patients

2025-06-09T17:58:42+00:00June 9th, 2025|Categories: Medigap Coverage, Patient Ambassadors, Press Release, Promote Financial Security, Protect Patient Care, State Advocacy|

Carson City, NV (June 9, 2025) – Governor Joe Lombardo (R-NV) and the Nevada State Legislature have taken a historic step to ensure affordable access to Medicare Supplement Insurance plans, also known as Medigap, to Medicare enrollees under age 65, including Nevada residents with End-Stage Renal Disease (ESRD). Senate Bill 292, sponsored and championed by Senator Roberta Lange (D-NV-7), passed the Senate unanimously and the Assembly with overwhelming bipartisan support (39-3), and it was signed into law by Governor Lombardo. SB 292 guarantees that dialysis patients under 65-years-old in Nevada have access to affordable Medigap coverage, filling dire gaps in [...]

Support Medigap Plans

2025-06-04T20:42:29+00:00June 2nd, 2025|Categories: Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security|

I have end-stage renal disease (ESRD), or kidney failure. My journey began after a serious accident at age 12 caused my kidneys to fail. My mother selflessly donated one of her kidneys, which lasted about eight years. At 20, my body began rejecting the transplant, and I had to start dialysis—a taxing but life-saving treatment done three times a week to filter the blood. The transition was overwhelming. I often rode a bus to San Francisco at 6 a.m. and returned home at midnight. Like many others, I had to adjust to a difficult new normal. After 16 years on [...]

Support a state law that helps those living in an insurance gap

2025-06-25T14:39:38+00:00May 29th, 2025|Categories: Featured Spotlight, Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security, Spotlight|

I’ve been living with kidney failure since 2019. Like so many Californians, I’ve faced more than just one diagnosis—diabetes, high blood pressure, gastroparesis, gout—and even the amputation of my foot due to sepsis. Dialysis, an intensive treatment done three times per week to keep me alive, has permanently affected my life. But I’ve fought every step of the way to stay strong and keep pursuing my goals. I returned to school at age 37, majoring in nutrition and dietetics to learn how food could help heal my body. I plan on pursuing another degree in sociology as well. Unfortunately, thousands [...]

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